CCEW Charity Commission profile

HAEMOCHROMATOSIS UK

Registered charity 1001307 · organisation 1001307

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
17 December 1990
Removed
Not supplied
Company number supplied
02541361
Financial period
1 January 2025 – 31 December 2025
Latest income
£565,416
Latest expenditure
£657,788
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: The Flaxmill, Flaxmill Lane, Pinchbeck, Spalding, Lincolnshire, PE11 3YP

Website recorded by the regulator: http://www.haemochromatosis.org.uk (displayed as text)

02 Activities

What the charity does

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 October 2026
Date Annual Return Received
11 September 2026
Date Accounts Received
11 September 2026
Total Gross Income
£565,416
Total Gross Expenditure
£657,788
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
1 October 2025
Date Accounts Received
1 October 2025
Total Gross Income
£575,107
Total Gross Expenditure
£622,646
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
28 March 2024
Date Accounts Received
28 March 2024
Total Gross Income
£423,698
Total Gross Expenditure
£394,085
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
19 July 2023
Date Accounts Received
19 July 2023
Total Gross Income
£436,806
Total Gross Expenditure
£457,303
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 October 2022
Date Annual Return Received
11 July 2022
Date Accounts Received
11 July 2022
Total Gross Income
£366,138
Total Gross Expenditure
£326,020

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Due Date
31 October 2026
Ar Received Date
11 September 2026
Total Gross Income
£565,416
Total Gross Expenditure
£657,788
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
7
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
1 October 2025
Total Gross Income
£575,107
Total Gross Expenditure
£622,646
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
150
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
28 March 2024
Total Gross Income
£423,698
Total Gross Expenditure
£394,085
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
40
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
19 July 2023
Total Gross Income
£436,806
Total Gross Expenditure
£457,303
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
40
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Due Date
31 October 2022
Ar Received Date
11 July 2022
Total Gross Income
£366,138
Total Gross Expenditure
£326,020
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
20

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Due Date
31 October 2026
Ar Received Date
11 September 2026
Income Donations And Legacies
103581
Income Other Trading Activities
0
Income Charitable Activities
456553
Income Investments
5282
Income Other
0
Income Total Income And Endowments
565416
Income Legacies
7930
Income Endowments
0
Expenditure Raising Funds
£0
Expenditure Charitable Expenditure
£657,788
Expenditure Other
0
Expenditure Total
657788
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
0
Expenditure Support Costs
518307
Expenditure Depreciation
0
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£125,084
Assets Total Fixed
0
Assets Own Use
0
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£646,670
Assets Total Liabilities
£380,640
Assets Current Investment
0
Assets Total Assets And Liabilities
£266,030
Creditors One Year Total Current
98780
Creditors Falling Due After One Year
281860
Assets Cash
£382,858
Funds Endowment
0
Funds Unrestricted
125084
Funds Restricted
140946
Funds Total
266030
Count Employees
7
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
1 October 2025
Income Donations And Legacies
209251
Income Other Trading Activities
0
Income Charitable Activities
359022
Income Investments
6834
Income Other
0
Income Total Income And Endowments
575107
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£0
Expenditure Charitable Expenditure
£622,646
Expenditure Other
0
Expenditure Total
622646
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
0
Expenditure Support Costs
0
Expenditure Depreciation
0
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£239,492
Assets Total Fixed
0
Assets Own Use
0
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£393,899
Assets Total Liabilities
£35,497
Assets Current Investment
0
Assets Total Assets And Liabilities
£358,402
Creditors One Year Total Current
35497
Creditors Falling Due After One Year
0
Assets Cash
£390,451
Funds Endowment
0
Funds Unrestricted
239492
Funds Restricted
118910
Funds Total
358402
Count Employees
7
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
303
Classification Type
How
Classification Description
Provides Other Finance
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives

08 Official extract

Charity Event History

Charity Name
HAEMOCHROMATOSIS UK
Charity Event Order
1
Event Type
Standard registration
Date Of Event
1990-12-17T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM & ARTICLES OF ASSOCIATION INCORPORATED 20 SEPTEMBER 1990, AMENDED BY SPECIAL RESOLUTION DATED 29 NOVEMBER 1990 AND 19 JUNE 2010AS REGISTERED AT COMPANIES HOUSE ON 12 JUL 2016 as amended on 24 Jul 2019 as amended on 28 Jun 2024
Charitable Objects
1)TO PROVIDE FOR PERSONS WITH HEREDITARY HAEMOCHROMATOSIS OR ASSOCIATED DISEASES HELP WITH THOSE PROBLEMS(INCLUDING BUT NOT LIMITED TO DIAGNOSIS,MEDICAL CARE,TREATMENT & FINANCIAL BURDEN) RESULTING FROM THE DISEASES & TO PROVIDE SUCH OTHERS CHARITABLE RELIEF AS THE SOCIETY MAY THINK FIT.2.)TO UNDERTAKE FOR THE PUBLIC BENEFIT RESEARCH INTO THE DISEASES & TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH. 3.)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC & THE MEDICAL PROFESSION INTO THE CAUSES OF:(A) INCREASING THE PROPORTION OF HAEMOCHROMATOTICS DIAGNOSED AS SUCH (B) PROMOTING DIAGNOSIS AT AN EARLY STAGE BEFORE THE ONSET OF IRREVERSIBLE ORGAN DAMAGE.
Area Of Benefit
NOT DEFINED

10 Official extract

Charity Other Names

Charity Name Id
603473
Charity Name Type
Working name
Charity Name
HAEMOCHROMATOSIS UK
Charity Name Id
53449
Charity Name Type
Previous name
Charity Name
THE HAEMOCHROMATOSIS SOCIETY
Charity Name Id
603474
Charity Name Type
Working name
Charity Name
HUK

11 Official extract

Charity Policy

Policy Name
Conflicting interests
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Trustee expenses policy and procedures
Policy Name
Risk management
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Paying staff
Policy Name
Internal risk management policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Complaints handling
Policy Name
Volunteer management
Policy Name
Investment
Policy Name
Safeguarding policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Serious incident reporting policy and procedures