CCEW Charity Commission profile

GALACTOSAEMIA SUPPORT GROUP

Registered charity 1020167 · organisation 1020167

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received Late
Charity type
Other
Registered
23 April 1993
Removed
Not supplied
Financial period
1 April 2024 – 31 March 2025
Latest income
£40,403
Latest expenditure
£26,599
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: 757 MANCHESTER ROAD, STOCKSBRIDGE, SHEFFIELD, S36 1DQ

Website recorded by the regulator: www.galactosaemia.org (displayed as text)

02 Activities

What the charity does

Principal objectives: to alleviate the suffering and promote the relief and care of persons suffering from the metabolic disease known as "Galactosaemia", to advance education concerning this disease and to engage in any charitable activities which may lessen the suffering of such people and ancillary thereto, to protect and preserve the health of their families, friends and carers.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
2 February 2026
Date Accounts Received
2 February 2026
Total Gross Income
£40,403
Total Gross Expenditure
£26,599
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
7 February 2025
Total Gross Income
£19,629
Total Gross Expenditure
£21,893
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
30 January 2024
Total Gross Income
£23,432
Total Gross Expenditure
£22,735
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
30 January 2023
Total Gross Income
£20,678
Total Gross Expenditure
£20,498
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
28 January 2022
Total Gross Income
£18,658
Total Gross Expenditure
£18,969

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
2 February 2026
Total Gross Income
£40,403
Total Gross Expenditure
£26,599
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
25
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
7 February 2025
Total Gross Income
£19,629
Total Gross Expenditure
£21,893
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
30
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
30 January 2024
Total Gross Income
£23,432
Total Gross Expenditure
£22,735
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
Yes
Employees Salary Over 60k
No
Count Volunteers
30
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
30 January 2023
Total Gross Income
£20,678
Total Gross Expenditure
£20,498
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
28 January 2022
Total Gross Income
£18,658
Total Gross Expenditure
£18,969
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
Yes
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities

07 Official extract

Charity Event History

Charity Name
GALACTOSAEMIA SUPPORT GROUP
Charity Event Order
1
Event Type
Standard registration
Date Of Event
1993-04-23T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CONSTITUTION ADOPTED 24 OCTOBER 1992 AS AMENDED 14 MARCH 1993
Charitable Objects
TO ALLEVIATE THE SUFFERING AND PROMOTE THE RELIEF AND CARE OF PERSONS SUFFERING FROM THE METABOLIC DISEASE KNOWN AS GALACTOSAEMIA. TO ADVANCE EDUCATION CONCERNING THIS DISEASE. TO ENGAGE IN ANY CHARITABLE ACTIVITIES WHICH MAY LESSEN THE SUFFERING OF SUCH PEOPLE AND ANCILLARY THERETO, TO PROTECT AND PRESERVE THE HEALTH OF THEIR FAMILIES FRIENDS AND CARERS
Area Of Benefit
THROUGHOUT THE UNITED KINGDOM

09 Official extract

Charity Policy

Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Bullying and harassment policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Conflicting interests