BritDB

CCEW Charity Commission profile

ACTION FOR ME

Registered charity 1036419 · organisation 1036419

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
14 April 1994
Removed
Not supplied
Company number supplied
02906840
Financial period
1 April 2024 – 31 March 2025
Latest income
£1,365,672
Latest expenditure
£1,780,448
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Unit 2.2 Streamline, 436-441 Paintworks, Arnos Vale, BRISTOL, BS4 3AS

Website recorded by the regulator: www.actionforme.org.uk (displayed as text)

02 Activities

What the charity does

Action for M.E. was established for the relief of people suffering from the disease MyalgicEncephalomyelitis, (commonly known as M.E., or CFS/ME), and to provide information, advice and support, and to promote public education, campaigning and research into the disease. On a day to day basis we provide telephone support to people with M.E., manage Online M.E Centre and publish 'InterAction'.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
30 September 2025
Date Accounts Received
30 September 2025
Total Gross Income
£1,365,672
Total Gross Expenditure
£1,780,448
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
5 November 2024
Date Accounts Received
5 November 2024
Total Gross Income
£1,734,551
Total Gross Expenditure
£1,788,660
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
17 November 2023
Date Accounts Received
17 November 2023
Total Gross Income
£1,123,419
Total Gross Expenditure
£1,794,518
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
7 October 2022
Date Accounts Received
7 October 2022
Total Gross Income
£2,497,718
Total Gross Expenditure
£1,326,158
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
6 October 2021
Date Accounts Received
6 October 2021
Total Gross Income
£1,192,127
Total Gross Expenditure
£832,594

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
30 September 2025
Total Gross Income
£1,365,672
Total Gross Expenditure
£1,780,448
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£7,357
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 100001 110000
1
Count Volunteers
36
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
5 November 2024
Total Gross Income
£1,734,551
Total Gross Expenditure
£1,788,660
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£32,528
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
2
Count Salary Band 70001 80000
0
Count Salary Band 80001 90000
0
Count Salary Band 90001 100000
0
Count Salary Band 100001 110000
1
Count Salary Band 110001 120000
0
Count Salary Band 120001 130000
0
Count Salary Band 130001 140000
0
Count Salary Band 140001 150000
0
Count Salary Band 150001 200000
0
Count Salary Band 200001 250000
0
Count Salary Band 250001 300000
0
Count Salary Band 300001 350000
0
Count Salary Band 350001 400000
0
Count Salary Band 400001 450000
0
Count Salary Band 450001 500000
0
Count Salary Band Over 500000
0
Count Volunteers
48
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
17 November 2023
Total Gross Income
£1,123,419
Total Gross Expenditure
£1,794,518
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£21,500
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 100001 110000
1
Count Volunteers
63
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
7 October 2022
Total Gross Income
£2,497,718
Total Gross Expenditure
£1,326,158
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£3
Income From Government Grants
£40,758
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 80001 90000
1
Count Volunteers
50
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
6 October 2021
Total Gross Income
£1,192,127
Total Gross Expenditure
£832,594
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£3
Income From Government Grants
£21,118
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 80001 90000
1
Count Volunteers
70

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
30 September 2025
Income Donations And Legacies
1069607
Income Other Trading Activities
11372
Income Charitable Activities
183316
Income Investments
29354
Income Other
72023
Income Total Income And Endowments
1365672
Income Legacies
124890
Income Endowments
0
Expenditure Raising Funds
£419,522
Expenditure Charitable Expenditure
£1,360,926
Expenditure Other
0
Expenditure Total
1780448
Expenditure Investment Management
0
Expenditure Grants Institution
111088
Expenditure Governance
42393
Expenditure Support Costs
271003
Expenditure Depreciation
10413
Gain Loss Investment
-1151
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£397,892
Assets Total Fixed
86141
Assets Own Use
35612
Assets Long Term Investment
50529
Defined Benefit Pension Scheme
0
Assets Other Assets
£906,953
Assets Total Liabilities
£82,474
Assets Current Investment
0
Assets Total Assets And Liabilities
£910,620
Creditors One Year Total Current
82474
Creditors Falling Due After One Year
0
Assets Cash
£615,413
Funds Endowment
0
Funds Unrestricted
397892
Funds Restricted
512728
Funds Total
910620
Count Employees
35
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
5 November 2024
Income Donations And Legacies
1198723
Income Other Trading Activities
335842
Income Charitable Activities
176135
Income Investments
23851
Income Other
0
Income Total Income And Endowments
1734551
Income Legacies
271430
Income Endowments
0
Expenditure Raising Funds
£445,513
Expenditure Charitable Expenditure
£1,343,147
Expenditure Other
0
Expenditure Total
1788660
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
42157
Expenditure Support Costs
801171
Expenditure Depreciation
8872
Gain Loss Investment
361
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£8
Assets Total Fixed
54864
Assets Own Use
10184
Assets Long Term Investment
44680
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,365,175
Assets Total Liabilities
£93,492
Assets Current Investment
0
Assets Total Assets And Liabilities
£1,326,547
Creditors One Year Total Current
93492
Creditors Falling Due After One Year
0
Assets Cash
£1,065,781
Funds Endowment
0
Funds Unrestricted
903535
Funds Restricted
423012
Funds Total
1326547
Count Employees
24
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
17 November 2023
Income Donations And Legacies
813066
Income Other Trading Activities
17228
Income Charitable Activities
139967
Income Investments
8556
Income Other
144601
Income Total Income And Endowments
1123418
Income Legacies
66487
Income Endowments
0
Expenditure Raising Funds
£281,251
Expenditure Charitable Expenditure
£1,513,267
Expenditure Other
0
Expenditure Total
1794518
Expenditure Investment Management
0
Expenditure Grants Institution
38665
Expenditure Governance
41743
Expenditure Support Costs
846833
Expenditure Depreciation
15063
Gain Loss Investment
-3431
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£1,206,570
Assets Total Fixed
63726
Assets Own Use
19406
Assets Long Term Investment
44320
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,425,382
Assets Total Liabilities
£108,813
Assets Current Investment
0
Assets Total Assets And Liabilities
£1,380,295
Creditors One Year Total Current
108813
Creditors Falling Due After One Year
0
Assets Cash
£1,277,077
Funds Endowment
0
Funds Unrestricted
1206570
Funds Restricted
173725
Funds Total
1380295
Count Employees
40
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
7 October 2022
Income Donations And Legacies
2288385
Income Other Trading Activities
18456
Income Charitable Activities
81941
Income Investments
1058
Income Other
107878
Income Total Income And Endowments
2497718
Income Legacies
1308128
Income Endowments
0
Expenditure Raising Funds
£243,249
Expenditure Charitable Expenditure
£1,082,909
Expenditure Other
0
Expenditure Total
1326158
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
36256
Expenditure Support Costs
687298
Expenditure Depreciation
13118
Gain Loss Investment
-2249
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£1,803,244
Assets Total Fixed
75174
Assets Own Use
27423
Assets Long Term Investment
47751
Defined Benefit Pension Scheme
0
Assets Other Assets
£2,098,952
Assets Total Liabilities
£119,300
Assets Current Investment
0
Assets Total Assets And Liabilities
£2,054,826
Creditors One Year Total Current
119300
Creditors Falling Due After One Year
0
Assets Cash
£1,042,512
Funds Endowment
0
Funds Unrestricted
1803244
Funds Restricted
251582
Funds Total
2054826
Count Employees
29
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
6 October 2021
Income Donations And Legacies
999106
Income Other Trading Activities
111320
Income Charitable Activities
81400
Income Investments
301
Income Other
0
Income Total Income And Endowments
1192127
Income Legacies
127924
Income Endowments
0
Expenditure Raising Funds
£115,809
Expenditure Charitable Expenditure
£716,785
Expenditure Other
0
Expenditure Total
832594
Expenditure Investment Management
0
Expenditure Grants Institution
15664
Expenditure Governance
30646
Expenditure Support Costs
256276
Expenditure Depreciation
11624
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£608,050
Assets Total Fixed
77679
Assets Own Use
27679
Assets Long Term Investment
50000
Defined Benefit Pension Scheme
0
Assets Other Assets
£882,088
Assets Total Liabilities
£74,252
Assets Current Investment
0
Assets Total Assets And Liabilities
£885,515
Creditors One Year Total Current
74252
Creditors Falling Due After One Year
0
Assets Cash
£689,256
Funds Endowment
0
Funds Unrestricted
608050
Funds Restricted
277465
Funds Total
885515
Count Employees
19
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
105
Classification Type
What
Classification Description
The Prevention Or Relief Of Poverty
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
309
Classification Type
How
Classification Description
Acts As An Umbrella Or Resource Body
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
101
Classification Type
What
Classification Description
General Charitable Purposes
Classification Code
117
Classification Type
What
Classification Description
Other Charitable Purposes
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People

08 Official extract

Charity Event History

Charity Name
ACTION FOR ME
Charity Event Order
1
Event Type
Standard registration
Date Of Event
1994-04-14T00:00:00
Charity Name
ACTION FOR ME
Charity Event Order
6
Event Type
Asset transfer in
Date Of Event
2022-04-05T00:00:00
Assoc Organisation Number
5019366
Assoc Registered Charity Number
1142583
Assoc Charity Name
THE M.E. TRUST
Charity Name
ACTION FOR ME
Charity Event Order
4
Event Type
Asset transfer in
Date Of Event
2018-05-16T00:00:00
Reason
Does not operate
Assoc Organisation Number
3985228
Assoc Registered Charity Number
1090755
Assoc Charity Name
M.E. NORTH DEVON
Charity Name
ACTION FOR ME
Charity Event Order
3
Event Type
Asset transfer in
Date Of Event
2017-05-10T00:00:00
Assoc Organisation Number
3973484
Assoc Registered Charity Number
1082059
Assoc Charity Name
ASSOCIATION OF YOUNG PEOPLE WITH ME LIMITED
Charity Name
ACTION FOR ME
Charity Event Order
5
Event Type
Asset transfer in
Date Of Event
2021-03-18T00:00:00
Reason
Ceased to exist
Assoc Organisation Number
1002764
Assoc Registered Charity Number
1002764
Assoc Charity Name
COLCHESTER M E S H GROUP
Charity Name
ACTION FOR ME
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2015-01-02T00:00:00
Reason
Transfer of funds
Assoc Organisation Number
1011900
Assoc Registered Charity Number
1011900
Assoc Charity Name
CFS RESEARCH FOUNDATION

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 10 MARCH 1994 AS AMENDED BY SPECIAL RESOLUTIONS DATED 24 OCTOBER 2008 AND 22 OCTOBER 2009AS AMENDED BY SPECIAL RESOLUTION(S) DATED 08 FEB 2018
Charitable Objects
THE RELIEF OF PERSONS SUFFERING FROM THE DISEASE MYALGIC ENCEPHALOMYELITIS (M.E. WHICH EXPRESSION WHERE USED IN THE ARTICLES SHALL INCLUDE CHRONIC FATIGUE SYNDROMES AND OTHER ASSOCIATED SYNDROMES) AND TO PROVIDE INFORMATION, ADVICE AND SUPPORT AND TO PROMOTE PUBLIC EDUCATION AND RESEARCH INTO THE DISEASE (PROVIDED THAT THE USEFUL RESULTS OF ANY SUCH RESEARCH ARE FULLY DISSEMINATED TO THE GENERAL PUBLIC)
Area Of Benefit
NOT DEFINED

10 Official extract

Charity Other Names

Charity Name Id
68807
Charity Name Type
Previous name
Charity Name
ACTION FOR M E
Charity Name Id
68814
Charity Name Type
Working name
Charity Name
AFME

11 Official extract

Charity Policy

Policy Name
Safeguarding policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Conflicting interests
Policy Name
Social media policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Investment
Policy Name
Serious incident reporting policy and procedures
Policy Name
Risk management
Policy Name
Bullying and harassment policy and procedures
Policy Name
Complaints handling
Policy Name
Volunteer management
Policy Name
Paying staff
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Trustee expenses policy and procedures
Policy Name
Internal risk management policy and procedures