MYAWARE — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Charitable company
Registered: 19 May 1995
Removed: Not supplied
Company number supplied: 03038358
Financial period: 1 April 2024 – 31 March 2025
Latest income: £449,135
Latest expenditure: £1,054,088
Gift Aid: Yes
Owns or uses land: Yes
In administration: No
Insolvent: No
CIO: No

Public contact address: myaware, College Business Centre, The College, Uttoxeter New Road, DERBY, DE22 3WZ

Website recorded by the regulator: www.myaware.org (displayed as text)

02 Activities

What the charity does

The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 January 2026
Date Annual Return Received: 23 October 2025
Date Accounts Received: 23 October 2025
Total Gross Income: £449,135
Total Gross Expenditure: £1,054,088

Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 January 2025
Date Annual Return Received: 30 January 2025
Date Accounts Received: 30 January 2025
Total Gross Income: £1,178,400
Total Gross Expenditure: £1,068,135

Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 January 2024
Date Annual Return Received: 12 January 2024
Date Accounts Received: 12 January 2024
Total Gross Income: £329,444
Total Gross Expenditure: £716,633

Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 January 2023
Date Annual Return Received: 17 December 2022
Date Accounts Received: 17 December 2022
Total Gross Income: £706,905
Total Gross Expenditure: £1,022,153

Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 January 2022
Date Annual Return Received: 21 December 2021
Date Accounts Received: 21 December 2021
Total Gross Income: £992,799
Total Gross Expenditure: £1,052,417

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 23 October 2025
Total Gross Income: £449,135
Total Gross Expenditure: £1,054,088
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 30 January 2025
Total Gross Income: £1,178,400
Total Gross Expenditure: £1,068,135
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Due Date: 31 January 2024
Ar Received Date: 12 January 2024
Total Gross Income: £329,444
Total Gross Expenditure: £716,633
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Due Date: 31 January 2023
Ar Received Date: 17 December 2022
Total Gross Income: £706,905
Total Gross Expenditure: £1,022,153
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 80

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Due Date: 31 January 2022
Ar Received Date: 21 December 2021
Total Gross Income: £992,799
Total Gross Expenditure: £1,052,417
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 80

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 30 January 2025
Income Donations And Legacies: 972242
Income Other Trading Activities: 119736
Income Charitable Activities: 0
Income Investments: 86422
Income Other: 0
Income Total Income And Endowments: 1178400
Income Legacies: 856054
Income Endowments: 0
Expenditure Raising Funds: £12,655
Expenditure Charitable Expenditure: £1,055,480
Expenditure Other: 0
Expenditure Total: 1068135
Expenditure Investment Management: 0
Expenditure Grants Institution: 505511
Expenditure Governance: 19355
Expenditure Support Costs: 130305
Expenditure Depreciation: 2241
Gain Loss Investment: 20105
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £1,033,039
Assets Total Fixed: 242880
Assets Own Use: 1501
Assets Long Term Investment: 241379
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,438,951
Assets Total Liabilities: £540,881
Assets Current Investment: 0
Assets Total Assets And Liabilities: £2,140,950
Creditors One Year Total Current: 237449
Creditors Falling Due After One Year: 303432
Assets Cash: £1,596,255
Funds Endowment: 0
Funds Unrestricted: 1801464
Funds Restricted: 339486
Funds Total: 2140950
Count Employees: 18
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Due Date: 31 January 2023
Ar Received Date: 17 December 2022
Income Donations And Legacies: 640966
Income Other Trading Activities: 58106
Income Charitable Activities: 0
Income Investments: 7832
Income Other: 0
Income Total Income And Endowments: 706904
Income Legacies: 490115
Income Endowments: 0
Expenditure Raising Funds: £9,499
Expenditure Charitable Expenditure: £1,012,654
Expenditure Other: 0
Expenditure Total: 1022153
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 14258
Expenditure Support Costs: 179607
Expenditure Depreciation: 18601
Gain Loss Investment: 18493
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £1,716,258
Assets Total Fixed: 241536
Assets Own Use: 11739
Assets Long Term Investment: 229797
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,674,993
Assets Total Liabilities: £510,236
Assets Current Investment: 0
Assets Total Assets And Liabilities: £2,406,293
Creditors One Year Total Current: 210480
Creditors Falling Due After One Year: 299756
Assets Cash: £2,093,030
Funds Endowment: 0
Funds Unrestricted: 1727997
Funds Restricted: 678296
Funds Total: 2406293
Count Employees: 19
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Due Date: 31 January 2022
Ar Received Date: 21 December 2021
Income Donations And Legacies: 675821
Income Other Trading Activities: 306918
Income Charitable Activities: 0
Income Investments: 10060
Income Other: 0
Income Total Income And Endowments: 992799
Income Legacies: 519560
Income Endowments: 0
Expenditure Raising Funds: £10,329
Expenditure Charitable Expenditure: £1,042,088
Expenditure Other: 0
Expenditure Total: 1052417
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 14715
Expenditure Support Costs: 179359
Expenditure Depreciation: 31643
Gain Loss Investment: 35783
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £1,227,680
Assets Total Fixed: 238442
Assets Own Use: 27138
Assets Long Term Investment: 211304
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,901,907
Assets Total Liabilities: £437,300
Assets Current Investment: 0
Assets Total Assets And Liabilities: £2,703,049
Creditors One Year Total Current: 273400
Creditors Falling Due After One Year: 163900
Assets Cash: £2,040,174
Funds Endowment: 0
Funds Unrestricted: 1640760
Funds Restricted: 1062289
Funds Total: 2703049
Count Employees: 24
Charity Only Accounts: Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

07 Official extract

Charity Classification

Classification Code: 205
Classification Type: Who
Classification Description: Other Charities Or Voluntary Bodies

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 104
Classification Type: What
Classification Description: Disability

08 Official extract

Charity Event History

Charity Name: MYAWARE
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2016-11-08T00:00:00
Reason: Transfer of funds
Assoc Organisation Number: 298925
Assoc Registered Charity Number: 298925
Assoc Charity Name: SWALE CHARITY TRUST

Charity Name: MYAWARE
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 1995-05-19T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description: MEMORANDUM AND ARTICLES INCORPORATED 27/03/1995AS AMENDED BY SPECIAL RESOLUTION(S) DATED 27/09/2003NOW ARTICLES ADOPTED BY SPECIAL RESOLUTION DATED 24/11/2012AS AMENDED BY SPECIAL RESOLUTION(S) DATED 09/11/2015AS REGISTERED AT COMPANIES HOUSE ON 20/12/2015AS AMENDED BY SPECIAL RESOLUTION(S) DATED 06 JUN 2017 as amended on 29 Mar 2018
Charitable Objects: TO PROMOTE ANY CHARITABLE PURPOSES FOR THE BENEFIT OF THOSE PERSONS WHO SUFFER FROM MYASTHENIA GRAVIS, AND IN PARTICULAR BUT WITHOUT LIMITATION TO RELIEVE SICKNESS, HARDSHIP AND DISTRESS AND PROVIDE COMFORT AND SUPPORT TO PEOPLE SUFFERING FROM MYASTHENIA GRAVIS AND TO PROMOTE AND ENCOURAGE EDUCATION AND RESEARCH INTO MYASTHENIA GRAVIS AND TO PUBLISH THE USEFUL RESULTS OF ANY SUCH RESEARCH.
Area Of Benefit: IN PRACTICE, UNITED KINGDOM AND REPUBLIC OF IRELAND

10 Official extract

Charity Other Names

Charity Name Id: 547499
Charity Name Type: Working name
Charity Name: MYAWARE

Charity Name Id: 250341
Charity Name Type: Previous name
Charity Name: MYASTHENIA GRAVIS ASSOCIATION

11 Official extract

Charity Policy

Policy Name: Campaigns and political activity policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Social media policy and procedures

Policy Name: Paying staff

Policy Name: Risk management

Policy Name: Internal risk management policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Volunteer management