CCEW Charity Commission profile

DANCING EYE SYNDROME SUPPORT TRUST

Registered charity 1060181 · organisation 1060181

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received Late
Charity type
Trust
Registered
16 January 1997
Removed
Not supplied
Financial period
1 September 2024 – 31 August 2025
Latest income
£15,398
Latest expenditure
£27,983
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: 98 Brookhill Street, Stapleford, NOTTINGHAM, NG9 7GG

Website recorded by the regulator: www.dancingeyes.org.uk (displayed as text)

02 Activities

What the charity does

The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 September 2024
Fin Period End Date
31 August 2025
Ar Cycle Reference
AR25
Reporting Due Date
30 June 2026
Date Annual Return Received
8 July 2026
Total Gross Income
£15,398
Total Gross Expenditure
£27,983
Fin Period Start Date
1 September 2023
Fin Period End Date
31 August 2024
Ar Cycle Reference
AR24
Reporting Due Date
30 June 2025
Date Annual Return Received
30 June 2025
Total Gross Income
£10,161
Total Gross Expenditure
£15,059
Fin Period Start Date
1 September 2022
Fin Period End Date
31 August 2023
Ar Cycle Reference
AR23
Reporting Due Date
30 June 2024
Date Annual Return Received
31 August 2024
Total Gross Income
£9,916
Total Gross Expenditure
£14,789
Fin Period Start Date
1 September 2021
Fin Period End Date
31 August 2022
Ar Cycle Reference
AR22
Reporting Due Date
30 June 2023
Date Annual Return Received
22 October 2023
Total Gross Income
£3,151
Total Gross Expenditure
£8,785
Fin Period Start Date
1 September 2020
Fin Period End Date
31 August 2021
Ar Cycle Reference
AR21
Reporting Due Date
30 June 2022
Date Annual Return Received
24 May 2022
Total Gross Income
£3,172
Total Gross Expenditure
£2,317

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 September 2024
Fin Period End Date
31 August 2025
Ar Due Date
30 June 2026
Ar Received Date
8 July 2026
Total Gross Income
£15,398
Total Gross Expenditure
£27,983
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
8
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 September 2023
Fin Period End Date
31 August 2024
Ar Due Date
30 June 2025
Ar Received Date
30 June 2025
Total Gross Income
£10,161
Total Gross Expenditure
£15,059
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
8

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities

07 Official extract

Charity Event History

Charity Name
DANCING EYE SYNDROME SUPPORT TRUST
Charity Event Order
1
Event Type
Standard registration
Date Of Event
1997-01-16T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
TRUST DEED DATED 29 OCTOBER 1996
Charitable Objects
1) FOR THE RELIEF OF PERSONS AFFECTED BY DANCING EYE SYNDROME AND THE ASSISTANCE OF THEIR FAMILY AND DEPENDANTS. 2) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF DANCING EYE SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY AND DEPENDANTS OF PERSONS AFFECTED BY DANCING EYE SYNDROME. 3) TO PROMOTE RESEARCH INTO THE MANAGEMENT OF DANCING EYE SYNDROME AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO DANCING EYE SYNDROME.
Area Of Benefit
NOT DEFINED

09 Official extract

Charity Policy

Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Safeguarding policy and procedures