CCEW Charity Commission profile

MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND

Registered charity 205395 · organisation 205395

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
16 May 1962
Removed
Not supplied
Company number supplied
00705357
Financial period
1 April 2024 – 31 March 2025
Latest income
£7,912,000
Latest expenditure
£10,091,000
Gift Aid
Yes
Owns or uses land
Yes
In administration
No
Insolvent
No
CIO
No

Public contact address: 32 Ufford Street, LONDON, SE1 8QD

Website recorded by the regulator: www.musculardystrophyuk.org (displayed as text)

02 Activities

What the charity does

We support research with the aim of finding treatments and effective cures and we drive improvements in health care. We provide information and advice, campaign to raise awareness, provide care and support. Further, we enable people to lead as full and rich a life as possible through the provision of advocacy support and equipment grants as well as campaigns to remove barriers to independence.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
9 January 2026
Date Accounts Received
9 January 2026
Total Gross Income
£7,912,000
Total Gross Expenditure
£10,091,000
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
28 January 2025
Date Accounts Received
28 January 2025
Total Gross Income
£9,508,000
Total Gross Expenditure
£8,042,000
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
2 January 2024
Date Accounts Received
2 January 2024
Total Gross Income
£8,221,000
Total Gross Expenditure
£6,856,000
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
6 December 2022
Date Accounts Received
6 December 2022
Total Gross Income
£6,669,000
Total Gross Expenditure
£5,609,000
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
22 December 2021
Date Accounts Received
22 December 2021
Total Gross Income
£5,544,000
Total Gross Expenditure
£3,574,000

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
9 January 2026
Total Gross Income
£7,912,000
Total Gross Expenditure
£10,091,000
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£15,000
Income From Government Grants
£15,000
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
4
Count Salary Band 70001 80000
3
Count Salary Band 80001 90000
1
Count Salary Band 90001 100000
0
Count Salary Band 100001 110000
1
Count Salary Band 110001 120000
0
Count Salary Band 120001 130000
0
Count Salary Band 130001 140000
0
Count Salary Band 140001 150000
0
Count Salary Band 150001 200000
0
Count Salary Band 200001 250000
0
Count Salary Band 250001 300000
0
Count Salary Band 300001 350000
0
Count Salary Band 350001 400000
0
Count Salary Band 400001 450000
0
Count Salary Band 450001 500000
0
Count Salary Band Over 500000
0
Count Volunteers
520
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
28 January 2025
Total Gross Income
£9,508,000
Total Gross Expenditure
£8,042,000
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£3
Income From Government Grants
£1,228,000
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 70001 80000
1
Count Salary Band 80001 90000
1
Count Salary Band 110001 120000
1
Count Volunteers
464
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
2 January 2024
Total Gross Income
£8,221,000
Total Gross Expenditure
£6,856,000
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£3
Income From Government Grants
£941,000
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 70001 80000
1
Count Salary Band 80001 90000
1
Count Salary Band 110001 120000
1
Count Volunteers
400
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
6 December 2022
Total Gross Income
£6,669,000
Total Gross Expenditure
£5,609,000
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
Yes
Charity Agreement Commerical Participator
Yes
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£2
Income From Government Grants
£604,000
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
Yes
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 70001 80000
2
Count Salary Band 100001 110000
1
Count Volunteers
450
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
22 December 2021
Total Gross Income
£5,544,000
Total Gross Expenditure
£3,574,000
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
Yes
Charity Agreement Commerical Participator
Yes
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£2
Income From Government Grants
£1,304,000
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
2
Count Salary Band 100001 110000
1
Count Volunteers
450

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
9 January 2026
Income Donations And Legacies
7092000
Income Other Trading Activities
194000
Income Charitable Activities
0
Income Investments
554000
Income Other
72000
Income Total Income And Endowments
7912000
Income Legacies
2595000
Income Endowments
0
Expenditure Raising Funds
£3,222,000
Expenditure Charitable Expenditure
£6,869,000
Expenditure Other
0
Expenditure Total
10091000
Expenditure Investment Management
49000
Expenditure Grants Institution
3500000
Expenditure Governance
41000
Expenditure Support Costs
1215000
Expenditure Depreciation
109000
Gain Loss Investment
109000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£4,000,000
Assets Total Fixed
6197000
Assets Own Use
273000
Assets Long Term Investment
5924000
Defined Benefit Pension Scheme
0
Assets Other Assets
£9,998,000
Assets Total Liabilities
£4,444,000
Assets Current Investment
1000000
Assets Total Assets And Liabilities
£11,751,000
Creditors One Year Total Current
4444000
Creditors Falling Due After One Year
0
Assets Cash
£7,194,000
Funds Endowment
415000
Funds Unrestricted
8802000
Funds Restricted
2534000
Funds Total
11751000
Count Employees
73
Consolidated Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
28 January 2025
Income Donations And Legacies
5755000
Income Other Trading Activities
67000
Income Charitable Activities
2483000
Income Investments
340000
Income Other
863000
Income Total Income And Endowments
9508000
Income Legacies
2920000
Income Endowments
0
Expenditure Raising Funds
£2,596,000
Expenditure Charitable Expenditure
£5,446,000
Expenditure Other
0
Expenditure Total
8042000
Expenditure Investment Management
27000
Expenditure Grants Institution
2498000
Expenditure Governance
36000
Expenditure Support Costs
812000
Expenditure Depreciation
117000
Gain Loss Investment
442000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£5,688,000
Assets Total Fixed
6383000
Assets Own Use
370000
Assets Long Term Investment
6013000
Defined Benefit Pension Scheme
0
Assets Other Assets
£11,080,000
Assets Total Liabilities
£3,642,000
Assets Current Investment
1000000
Assets Total Assets And Liabilities
£13,821,000
Creditors One Year Total Current
3642000
Creditors Falling Due After One Year
0
Assets Cash
£7,608,000
Funds Endowment
419000
Funds Unrestricted
8564000
Funds Restricted
4838000
Funds Total
13821000
Count Employees
70
Consolidated Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
2 January 2024
Income Donations And Legacies
6211000
Income Other Trading Activities
206000
Income Charitable Activities
941000
Income Investments
169000
Income Other
694000
Income Total Income And Endowments
8221000
Income Legacies
2944000
Income Endowments
0
Expenditure Raising Funds
£2,030,000
Expenditure Charitable Expenditure
£4,826,000
Expenditure Other
0
Expenditure Total
6856000
Expenditure Investment Management
26000
Expenditure Grants Institution
1924000
Expenditure Governance
29000
Expenditure Support Costs
955000
Expenditure Depreciation
117000
Gain Loss Investment
-281000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£6,511,000
Assets Total Fixed
5800000
Assets Own Use
401000
Assets Long Term Investment
5399000
Defined Benefit Pension Scheme
0
Assets Other Assets
£10,155,000
Assets Total Liabilities
£4,042,000
Assets Current Investment
0
Assets Total Assets And Liabilities
£11,913,000
Creditors One Year Total Current
4042000
Creditors Falling Due After One Year
0
Assets Cash
£8,641,000
Funds Endowment
387000
Funds Unrestricted
6948000
Funds Restricted
4578000
Funds Total
11913000
Count Employees
65
Consolidated Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
6 December 2022
Income Donations And Legacies
3301000
Income Other Trading Activities
101000
Income Charitable Activities
2832000
Income Investments
151000
Income Other
284000
Income Total Income And Endowments
6669000
Income Legacies
1648000
Income Endowments
0
Expenditure Raising Funds
£1,828,000
Expenditure Charitable Expenditure
£3,781,000
Expenditure Other
0
Expenditure Total
5609000
Expenditure Investment Management
30000
Expenditure Grants Institution
1236000
Expenditure Governance
27000
Expenditure Support Costs
920000
Expenditure Depreciation
77000
Gain Loss Investment
47000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£4,959,000
Assets Total Fixed
6104000
Assets Own Use
323000
Assets Long Term Investment
5781000
Defined Benefit Pension Scheme
0
Assets Other Assets
£8,401,000
Assets Total Liabilities
£3,676,000
Assets Current Investment
0
Assets Total Assets And Liabilities
£10,829,000
Creditors One Year Total Current
3676000
Creditors Falling Due After One Year
0
Assets Cash
£7,507,000
Funds Endowment
407000
Funds Unrestricted
5378000
Funds Restricted
5044000
Funds Total
10829000
Count Employees
57
Consolidated Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
22 December 2021
Income Donations And Legacies
3434000
Income Other Trading Activities
101000
Income Charitable Activities
1694000
Income Investments
158000
Income Other
157000
Income Total Income And Endowments
5544000
Income Legacies
874000
Income Endowments
0
Expenditure Raising Funds
£1,203,000
Expenditure Charitable Expenditure
£2,371,000
Expenditure Other
0
Expenditure Total
3574000
Expenditure Investment Management
28000
Expenditure Grants Institution
192000
Expenditure Governance
22000
Expenditure Support Costs
748000
Expenditure Depreciation
58000
Gain Loss Investment
711000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£4,780,000
Assets Total Fixed
5817000
Assets Own Use
189000
Assets Long Term Investment
5628000
Defined Benefit Pension Scheme
0
Assets Other Assets
£7,578,000
Assets Total Liabilities
£3,673,000
Assets Current Investment
0
Assets Total Assets And Liabilities
£9,722,000
Creditors One Year Total Current
3673000
Creditors Falling Due After One Year
0
Assets Cash
£7,194
Funds Endowment
405000
Funds Unrestricted
4969000
Funds Restricted
4348000
Funds Total
9722000
Count Employees
59
Consolidated Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities

08 Official extract

Charity Event History

Charity Name
MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2015-06-04T00:00:00
Reason
Funds spent up (s.75)
Assoc Organisation Number
3993769
Assoc Registered Charity Number
1094978
Assoc Charity Name
BREAKAWAY CHILDREN'S FUND
Charity Name
MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND
Charity Event Order
1
Event Type
Standard registration
Date Of Event
1962-05-16T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM & ARTICLES OF ASSOCIATION INCORPORATED ON 10 OCT 1961 AS AMENDED BY SPECIAL RESOLUTIONS OF 6 APR 1963, 12 APR 1980, 28 MAR 1981, 28 MAR 1981, 27 MAR 1982, 14 NOV 1989, 6 MAY 1995, 8 MAR 2003, 15 SEPTEMBER 2007 AND 24 OCTOBER 2007
Charitable Objects
TO PROMOTE RESEARCH INTO MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO PROMOTE THE PROVISION OF CARE AND TREATMENT AND OTHER RELIEF TO THOSE AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO ASSIST THOSE WHO CARE FOR PERSONS AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO PROVIDE EDUCATION AND TRAINING TO PERSONS AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEURO MUSCULAR CONDITIONS; TO RAISE THE AWARENESS OF THE PUBLIC ON ANY MATTERS RELATING TO THE CHARITY'S OBJECTS.
Area Of Benefit
NOT DEFINED

10 Official extract

Charity Other Names

Charity Name Id
238553
Charity Name Type
Working name
Charity Name
MUSCULAR DYSTROPHY CAMPAIGN
Charity Name Id
555960
Charity Name Type
Working name
Charity Name
MUSCULAR DYSTROPHY UK

11 Official extract

Charity Policy

Policy Name
Volunteer management
Policy Name
Investing charity funds policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Conflicting interests
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Risk management
Policy Name
Complaints policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Complaints handling
Policy Name
Investment
Policy Name
Social media policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Paying staff