FD-UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Other
Registered: 14 September 1982
Removed: Not supplied
Financial period: 1 January 2025 – 31 December 2025
Latest income: £15,332
Latest expenditure: £18,812
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: 15 SOMALI ROAD, LONDON, NW2 3RN

Website recorded by the regulator: fd-uk.org (displayed as text)

02 Activities

What the charity does

Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026
Date Annual Return Received: 29 August 2026
Total Gross Income: £15,332
Total Gross Expenditure: £18,812

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 7 October 2025
Total Gross Income: £19,592
Total Gross Expenditure: £18,692

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 30 October 2024
Total Gross Income: £21,563
Total Gross Expenditure: £35,698

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 31 October 2023
Total Gross Income: £18,100
Total Gross Expenditure: £28,800

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 30 October 2022
Total Gross Income: £20,800
Total Gross Expenditure: £27,208

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 29 August 2026
Total Gross Income: £15,332
Total Gross Expenditure: £18,812
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 12

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 7 October 2025
Total Gross Income: £19,592
Total Gross Expenditure: £18,692
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 30 October 2024
Total Gross Income: £21,563
Total Gross Expenditure: £35,698
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 31 October 2023
Total Gross Income: £18,100
Total Gross Expenditure: £28,800
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 8

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 30 October 2022
Total Gross Income: £20,800
Total Gross Expenditure: £27,208
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 304
Classification Type: How
Classification Description: Provides Human Resources

Classification Code: 204
Classification Type: Who
Classification Description: People Of A Particular Ethnic Or Racial Origin

Classification Code: 303
Classification Type: How
Classification Description: Provides Other Finance

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 301
Classification Type: How
Classification Description: Makes Grants To Individuals

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 117
Classification Type: What
Classification Description: Other Charitable Purposes

07 Official extract

Charity Event History

Charity Name: FD-UK
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2024-05-22T00:00:00
Reason: Funds transferred (gi)
Assoc Organisation Number: 3950076
Assoc Registered Charity Number: 1070222
Assoc Charity Name: EASY-ACCESS JEWISH HELPLINK

Charity Name: FD-UK
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 1982-09-14T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CONSTITUTION ADOPTED 11/08/1982AS AMENDED ON 07/02/2012
Charitable Objects: THE RELIEF OF PERSONS SUFFERING FROM ANY MENTAL OR PHYSICAL DISORDER IN PARTICULAR DYSAUTONOMIA. THE PROMOTION OF THE STUDY OF AND RESEARCH INTO THE CAUSES TREATMENT ELEVATION AND CURE OF SUCH DISORDERS IN PARTICULAR DYSAUTONOMIA PROVIDED THAT THE USEFUL RESULTS OF SUCH RESEARCH OF STUDIES ARE DISSEMINATED AMONG THE PUBLIC AT LARGE.
Area Of Benefit: NOT DEFINED

09 Official extract

Charity Other Names

Charity Name Id: 233079
Charity Name Type: Previous name
Charity Name: THE DYSAUTONOMIA SOCIETY OF GREAT BRITAIN

10 Official extract

Charity Policy

Policy Name: Bullying and harassment policy and procedures

Policy Name: Conflicting interests

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Complaints policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Risk management

Policy Name: Campaigns and political activity policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Volunteer management

Policy Name: Social media policy and procedures

Policy Name: Internal charity financial controls policy and procedures