01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Trust
- Registered
- 4 October 2011
- Removed
- Not supplied
- Financial period
- 21 July 2024 – 20 July 2025
- Latest income
- £8
- Latest expenditure
- £0
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: 91 OAKENSHAW ROAD, REDDITCH, B98 7PN
02 Activities
What the charity does
Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 21 July 2024
- Fin Period End Date
- 20 July 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 20 May 2026
- Date Annual Return Received
- 1 May 2026
- Total Gross Income
- £8
- Total Gross Expenditure
- £0
- Fin Period Start Date
- 21 July 2023
- Fin Period End Date
- 20 July 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 20 May 2025
- Date Annual Return Received
- 15 May 2025
- Total Gross Income
- £36
- Total Gross Expenditure
- £0
- Fin Period Start Date
- 21 July 2022
- Fin Period End Date
- 20 July 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 20 May 2024
- Date Annual Return Received
- 23 June 2024
- Total Gross Income
- £8
- Total Gross Expenditure
- £0
- Fin Period Start Date
- 21 July 2021
- Fin Period End Date
- 20 July 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 20 May 2023
- Date Annual Return Received
- 13 March 2023
- Total Gross Income
- £10
- Total Gross Expenditure
- £0
- Fin Period Start Date
- 21 July 2020
- Fin Period End Date
- 20 July 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 20 May 2022
- Date Annual Return Received
- 17 March 2022
- Total Gross Income
- £5
- Total Gross Expenditure
- £0
04 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
05 Official extract
Charity Classification
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 101
- Classification Type
- What
- Classification Description
- General Charitable Purposes
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
06 Official extract
Charity Event History
- Charity Name
- EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 1983-06-14T00:00:00
- Charity Name
- EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE
- Charity Event Order
- 2
- Event Type
- Removed
- Date Of Event
- 2011-02-09T00:00:00
- Reason
- Does not operate
- Charity Name
- EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE
- Charity Event Order
- 3
- Event Type
- Re-registered
- Date Of Event
- 2011-10-04T00:00:00
07 Official extract
Charity Governing Document
- Governing Document Description
- TRUST DEED DATED 25TH MARCH 1983
- Charitable Objects
- TO PROMOTE OR ASSIST IN PROMOTING RESEARCH INTO THE CAUSES AND CURE OF SANDHOFF'S DISEASE AND TO DISSEMINATE THE USEFUL RESULTS OF SUCH RESEARCH. TO RELIEVE OR ASSSIIST IN RELIEVING ALL PERSONS SUFFERING FROM SANDHOFF'S DISEASE IN ANY MANNER WHICH NOW OR HEREAFTER MAY BE DEEMED BY LAW TO BE CHARITABLE.
- Area Of Benefit
- NOT DEFINED