BritDB

CCEW Charity Commission profile

HUNTINGTONS DISEASE ASSOCIATION

Registered charity 296453 · organisation 296453

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
20 March 1987
Removed
Not supplied
Company number supplied
02021975
Financial period
1 April 2025 – 31 March 2026
Latest income
£3,171,364
Latest expenditure
£2,779,017
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: SUITE 24, THE LIVERPOOL SCIENCE PARK, INNOVATION CENTRE 1, 131 MOUNT PLEASANT, LIVERPOOL, L3 5TF

Website recorded by the regulator: www.hda.org.uk (displayed as text)

02 Activities

What the charity does

Relief and treatment of those suffering from or believed to be suffering from Huntington's Disease and to provide support to them and their families. The Association also sponsors research and is involved in disseminating the results of research.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Cycle Reference
AR26
Reporting Due Date
31 January 2027
Date Annual Return Received
24 August 2026
Date Accounts Received
24 August 2026
Total Gross Income
£3,171,364
Total Gross Expenditure
£2,779,017
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
9 September 2025
Date Accounts Received
9 September 2025
Total Gross Income
£2,531,843
Total Gross Expenditure
£2,716,817
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
27 September 2024
Date Accounts Received
27 September 2024
Total Gross Income
£2,266,817
Total Gross Expenditure
£2,372,725
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
25 November 2023
Date Accounts Received
25 November 2023
Total Gross Income
£2,003,578
Total Gross Expenditure
£2,034,566
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
31 October 2022
Date Accounts Received
31 October 2022
Total Gross Income
£2,166,325
Total Gross Expenditure
£1,419,521

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR26
Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Due Date
31 January 2027
Ar Received Date
24 August 2026
Total Gross Income
£3,171,364
Total Gross Expenditure
£2,779,017
Grant Making Is Main Activity
No
Count Govt Contracts
5
Income From Government Contracts
32640
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
Yes
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 80001 90000
1
Count Volunteers
202
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
9 September 2025
Total Gross Income
£2,531,843
Total Gross Expenditure
£2,716,817
Grant Making Is Main Activity
No
Count Govt Contracts
1
Count Govt Grants
£4
Income From Government Contracts
21000
Income From Government Grants
£19,583
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
Yes
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 80001 90000
1
Count Volunteers
189
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
27 September 2024
Total Gross Income
£2,266,817
Total Gross Expenditure
£2,372,725
Grant Making Is Main Activity
No
Count Govt Contracts
7
Count Govt Grants
£0
Income From Government Contracts
39597
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
Yes
Trustee Resigned Employment
Yes
Employees Salary Over 60k
Yes
Count Salary Band 80001 90000
1
Count Volunteers
5112
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
25 November 2023
Total Gross Income
£2,003,578
Total Gross Expenditure
£2,034,566
Grant Making Is Main Activity
No
Count Govt Contracts
1
Count Govt Grants
£8
Income From Government Contracts
21525
Income From Government Grants
£60,413
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Volunteers
200
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
31 October 2022
Total Gross Income
£2,166,325
Total Gross Expenditure
£1,419,521
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
Yes
Count Govt Contracts
1
Charity Receives Govt Funding Grants
No
Income From Government Contracts
21000
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
5000

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR26
Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Due Date
31 January 2027
Ar Received Date
24 August 2026
Income Donations And Legacies
2600140
Income Other Trading Activities
44054
Income Charitable Activities
489242
Income Investments
37928
Income Other
0
Income Total Income And Endowments
3171364
Income Legacies
1487139
Income Endowments
0
Expenditure Raising Funds
£365,316
Expenditure Charitable Expenditure
£2,413,018
Expenditure Other
683
Expenditure Total
2779017
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
15948
Expenditure Support Costs
443523
Expenditure Depreciation
8117
Gain Loss Investment
64201
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£2,037,488
Assets Total Fixed
507587
Assets Own Use
12624
Assets Long Term Investment
494963
Defined Benefit Pension Scheme
0
Assets Other Assets
£2,329,538
Assets Total Liabilities
£229,790
Assets Current Investment
0
Assets Total Assets And Liabilities
£2,607,335
Creditors One Year Total Current
229790
Creditors Falling Due After One Year
0
Assets Cash
£711,998
Funds Endowment
0
Funds Unrestricted
2437794
Funds Restricted
169541
Funds Total
2607335
Count Employees
52
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
9 September 2025
Income Donations And Legacies
1983050
Income Other Trading Activities
48219
Income Charitable Activities
439421
Income Investments
61153
Income Other
0
Income Total Income And Endowments
2531843
Income Legacies
769921
Income Endowments
0
Expenditure Raising Funds
£318,590
Expenditure Charitable Expenditure
£2,394,774
Expenditure Other
3453
Expenditure Total
2716817
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
11642
Expenditure Support Costs
535160
Expenditure Depreciation
12294
Gain Loss Investment
-6870
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£1,531,707
Assets Total Fixed
1049760
Assets Own Use
17067
Assets Long Term Investment
1032693
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,273,396
Assets Total Liabilities
£172,369
Assets Current Investment
0
Assets Total Assets And Liabilities
£2,150,787
Creditors One Year Total Current
172369
Creditors Falling Due After One Year
0
Assets Cash
£533,487
Funds Endowment
0
Funds Unrestricted
1992748
Funds Restricted
158039
Funds Total
2150787
Count Employees
51
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
27 September 2024
Income Donations And Legacies
1768436
Income Other Trading Activities
83709
Income Charitable Activities
337139
Income Investments
77533
Income Other
0
Income Total Income And Endowments
2266817
Income Legacies
634091
Income Endowments
0
Expenditure Raising Funds
£293,933
Expenditure Charitable Expenditure
£2,078,792
Expenditure Other
0
Expenditure Total
2372725
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
12691
Expenditure Support Costs
376730
Expenditure Depreciation
13276
Gain Loss Investment
64416
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£1,869,548
Assets Total Fixed
1061277
Assets Own Use
21714
Assets Long Term Investment
1039563
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,436,126
Assets Total Liabilities
£154,772
Assets Current Investment
0
Assets Total Assets And Liabilities
£2,342,631
Creditors One Year Total Current
154772
Creditors Falling Due After One Year
0
Assets Cash
£987,706
Funds Endowment
0
Funds Unrestricted
2193097
Funds Restricted
149534
Funds Total
2342631
Count Employees
45
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
25 November 2023
Income Donations And Legacies
1372829
Income Other Trading Activities
18367
Income Charitable Activities
570380
Income Investments
36267
Income Other
5735
Income Total Income And Endowments
2003578
Income Legacies
297406
Income Endowments
0
Expenditure Raising Funds
£292,650
Expenditure Charitable Expenditure
£1,741,916
Expenditure Other
0
Expenditure Total
2034566
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
11654
Expenditure Support Costs
390567
Expenditure Depreciation
9618
Gain Loss Investment
-73663
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£1,746,363
Assets Total Fixed
895506
Assets Own Use
20359
Assets Long Term Investment
875147
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,643,472
Assets Total Liabilities
£154,855
Assets Current Investment
0
Assets Total Assets And Liabilities
£2,384,123
Creditors One Year Total Current
154855
Creditors Falling Due After One Year
0
Assets Cash
£1,243,672
Funds Endowment
0
Funds Unrestricted
2158146
Funds Restricted
225977
Funds Total
2384123
Count Employees
41
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
31 October 2022
Income Donations And Legacies
1751479
Income Other Trading Activities
24975
Income Charitable Activities
375386
Income Investments
12941
Income Other
1544
Income Total Income And Endowments
2166325
Income Legacies
808537
Income Endowments
0
Expenditure Raising Funds
£219,774
Expenditure Charitable Expenditure
£1,199,747
Expenditure Other
0
Expenditure Total
1419521
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
11654
Expenditure Support Costs
269252
Expenditure Depreciation
7771
Gain Loss Investment
-3937
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£1,928,865
Assets Total Fixed
968947
Assets Own Use
20137
Assets Long Term Investment
948810
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,650,593
Assets Total Liabilities
£130,766
Assets Current Investment
0
Assets Total Assets And Liabilities
£2,488,774
Creditors One Year Total Current
130766
Creditors Falling Due After One Year
0
Assets Cash
£962,916
Funds Endowment
0
Funds Unrestricted
2405724
Funds Restricted
83050
Funds Total
2488774
Count Employees
33
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
304
Classification Type
How
Classification Description
Provides Human Resources
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
204
Classification Type
Who
Classification Description
People Of A Particular Ethnic Or Racial Origin
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
205
Classification Type
Who
Classification Description
Other Charities Or Voluntary Bodies
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
105
Classification Type
What
Classification Description
The Prevention Or Relief Of Poverty
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
102
Classification Type
What
Classification Description
Education/training

08 Official extract

Charity Event History

Charity Name
HUNTINGTONS DISEASE ASSOCIATION
Charity Event Order
1
Event Type
Standard registration
Date Of Event
1987-03-20T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES INCORPORATED 21/05/1986AS AMENDED BY SPECIAL RESOLUTION(S) DATED 28/07/1990AS AMENDED BY SPECIAL RESOLUTION(S) DATED 05/10/2013AS REGISTERED AT COMPANIES HOUSE ON 18/10/2013
Charitable Objects
THE RELIEF AND TREATMENT OF THOSE SUFFERING FROM OR BELIEVED TO BE SUFFERING FROM HUNTINGTON'S DISEASE AND TO PROVIDE FINANCIAL SUPPORT FOR BOTH SUCH PERSONS AND THEIR FAMILIES IN NEED AND FOR RESEARCH AND THE DISSEMINATION OF THE RESULTS OF SUCH RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSE AND POSSIBLE CURES WHETHER PARTIAL OR COMPLETE AND POSSIBLE PREVENTION OF THE SAID DISEASE.
Area Of Benefit
NOT DEFINED

10 Official extract

Charity Other Names

Charity Name Id
153742
Charity Name Type
Previous name
Charity Name
THE ASSOCIATION TO COMBAT HUNTINGTON'S CHOREA

11 Official extract

Charity Policy

Policy Name
Internal charity financial controls policy and procedures
Policy Name
Investment
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Volunteer management
Policy Name
Complaints policy and procedures
Policy Name
Paying staff
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Conflicting interests
Policy Name
Safeguarding policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Complaints handling
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Risk management
Policy Name
Financial reserves policy and procedures