ALSTROM SYNDROME UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Charitable company
Registered: 25 August 1998
Removed: Not supplied
Company number supplied: 03557191
Financial period: 1 April 2024 – 31 March 2025
Latest income: £379,388
Latest expenditure: £335,401
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: The Rectory, Barnstaple Hill, Swimbridge, BARNSTAPLE, Devon, EX32 0PH

Website recorded by the regulator: www.alstrom.org.uk (displayed as text)

02 Activities

What the charity does

Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 January 2026
Date Annual Return Received: 3 December 2025
Date Accounts Received: 3 December 2025
Total Gross Income: £379,388
Total Gross Expenditure: £335,401

Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 January 2025
Date Annual Return Received: 9 December 2024
Date Accounts Received: 9 December 2024
Total Gross Income: £354,666
Total Gross Expenditure: £340,985

Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 January 2024
Date Annual Return Received: 6 December 2023
Date Accounts Received: 6 December 2023
Total Gross Income: £370,768
Total Gross Expenditure: £364,836

Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 January 2023
Date Annual Return Received: 28 November 2022
Date Accounts Received: 28 November 2022
Total Gross Income: £300,024
Total Gross Expenditure: £303,193

Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 January 2022
Date Annual Return Received: 15 December 2021
Date Accounts Received: 15 December 2021
Total Gross Income: £375,024
Total Gross Expenditure: £232,270

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 3 December 2025
Total Gross Income: £379,388
Total Gross Expenditure: £335,401
Grant Making Is Main Activity: No
Count Govt Contracts: 1
Count Govt Grants: £0
Income From Government Contracts: 187700
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 9 December 2024
Total Gross Income: £354,666
Total Gross Expenditure: £340,985
Grant Making Is Main Activity: No
Count Govt Contracts: 1
Count Govt Grants: £180,089
Income From Government Contracts: 0
Income From Government Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: Yes
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Due Date: 31 January 2024
Ar Received Date: 6 December 2023
Total Gross Income: £370,768
Total Gross Expenditure: £364,836
Grant Making Is Main Activity: No
Count Govt Contracts: 1
Count Govt Grants: £0
Income From Government Contracts: 171061
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Due Date: 31 January 2023
Ar Received Date: 28 November 2022
Total Gross Income: £300,024
Total Gross Expenditure: £303,193
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: Yes
Count Govt Contracts: 1
Charity Receives Govt Funding Grants: No
Income From Government Contracts: 165602
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Due Date: 31 January 2022
Ar Received Date: 15 December 2021
Total Gross Income: £375,024
Total Gross Expenditure: £232,270
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: Yes
Count Govt Contracts: 1
Charity Receives Govt Funding Grants: No
Income From Government Contracts: 165602
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 304
Classification Type: How
Classification Description: Provides Human Resources

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 305
Classification Type: How
Classification Description: Provides Buildings/facilities/open Space

07 Official extract

Charity Event History

Charity Name: ALSTROM SYNDROME UK
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 1998-08-25T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 1ST MAY 1998. as amended on 09 Apr 2025
Charitable Objects: 1. To promote the health and wellbeing of people with Alstr?m Syndrome - particularly (but not exclusively) through the provision of awareness raising, support, advice and information for people living with Alstr?m Syndrome, their families, carers and those working with them. 2. To promote research into Alstr?m Syndrome and related conditions in the UK and abroad and disseminate the results to the public.
Area Of Benefit: NOT DEFINED

09 Official extract

Charity Other Names

Charity Name Id: 341934
Charity Name Type: Working name
Charity Name: AS UK

10 Official extract

Charity Policy

Policy Name: Risk management

Policy Name: Trustee expenses policy and procedures

Policy Name: Volunteer management

Policy Name: Internal risk management policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Safeguarding policy and procedures

Policy Name: Paying staff

Policy Name: Serious incident reporting policy and procedures

Policy Name: Conflicting interests

Policy Name: Complaints handling

Policy Name: Financial reserves policy and procedures

Policy Name: Investment