BritDB

CCEW Charity Commission profile

CYSTINOSIS FOUNDATION OF THE UK

Registered charity 1074885 · organisation 3958394

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received Late
Charity type
Other
Registered
26 March 1999
Removed
Not supplied
Financial period
1 April 2024 – 31 March 2025
Latest income
£34,431
Latest expenditure
£19,238
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Cystinosis Foundation UK, Unit 81304, PO Box 15113, Birmingham, B2 2NJ

Website recorded by the regulator: www.cystinosis.org.uk (displayed as text)

02 Activities

What the charity does

To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
28 January 2026
Date Accounts Received
2 February 2026
Total Gross Income
£34,431
Total Gross Expenditure
£19,238
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
30 November 2024
Total Gross Income
£21,084
Total Gross Expenditure
£16,033
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
29 May 2024
Date Accounts Received
29 May 2024
Total Gross Income
£45,281
Total Gross Expenditure
£115,891
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
18 January 2023
Total Gross Income
£21,443
Total Gross Expenditure
£5,664
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
14 March 2022
Total Gross Income
£20,278
Total Gross Expenditure
£10,844

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
28 January 2026
Total Gross Income
£34,431
Total Gross Expenditure
£19,238
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
30 November 2024
Total Gross Income
£21,084
Total Gross Expenditure
£16,033
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
29 May 2024
Total Gross Income
£45,281
Total Gross Expenditure
£115,891
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
18 January 2023
Total Gross Income
£21,443
Total Gross Expenditure
£5,664
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
6
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
14 March 2022
Total Gross Income
£20,278
Total Gross Expenditure
£10,844
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
310
Classification Type
How
Classification Description
Other Charitable Activities
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information

07 Official extract

Charity Event History

Charity Name
CYSTINOSIS FOUNDATION OF THE UK
Charity Event Order
1
Event Type
Standard registration
Date Of Event
1999-03-26T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
DECLARATION OF TRUST DATED 2 FEBRUARY 1998
Charitable Objects
TO RELIEVE PERSONS SUFFERING FROM CYSTINOSIS AND MEMBERS OF THEIR IMMEDIATE FAMILIES WHO ARE NECESSITOUS CIRCUMSTANCES IN PARTICULAR BY THE PROVISION OF INFORMATION AND FINANCIAL SUPPORT AND BY RAISING PUBLIC AWARENESS OF THE DISORDER.
Area Of Benefit
NOT DEFINED

09 Official extract

Charity Other Names

Charity Name Id
459004
Charity Name Type
Previous name
Charity Name
CYSTINOSIS FOUNDATION - UK AND EIRE
Charity Name Id
459035
Charity Name Type
Previous name
Charity Name
CYSTINOSIS SUPPORT FOUNDATION OF THE UK AND EIRE