CCEW Charity Commission profile

CYSTIC FIBROSIS TRUST

Registered charity 1079049 · organisation 3967367

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
21 January 2000
Removed
Not supplied
Company number supplied
03880213
Financial period
1 April 2024 – 31 March 2025
Latest income
£12,014,000
Latest expenditure
£13,832,000
Gift Aid
Yes
Owns or uses land
Yes
In administration
No
Insolvent
No
CIO
No

Public contact address: Cystic Fibrosis Trust, 33 Creechurch Lane, LONDON, EC3A 5EB

Website recorded by the regulator: www.cysticfibrosis.org.uk (displayed as text)

02 Activities

What the charity does

The Cystic Fibrosis Trust works to improve and transform the lives of people with cystic fibrosis by investing in research and its application to patients, driving up standards of clinical care in the NHS, providing information, advice and support for people with cystic fibrosis and their families, campaigning and influencing policy and raising awareness in the media and the general public.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
16 September 2025
Date Accounts Received
16 September 2025
Total Gross Income
£12,014,000
Total Gross Expenditure
£13,832,000
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
18 December 2024
Date Accounts Received
18 December 2024
Total Gross Income
£14,666,000
Total Gross Expenditure
£15,094,000
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
11 January 2024
Date Accounts Received
11 January 2024
Total Gross Income
£14,666,000
Total Gross Expenditure
£12,772,000
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
24 January 2023
Date Accounts Received
24 January 2023
Total Gross Income
£15,681,000
Total Gross Expenditure
£15,968,000
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
10 November 2021
Date Accounts Received
10 November 2021
Total Gross Income
£14,386,000
Total Gross Expenditure
£13,905,000

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
16 September 2025
Total Gross Income
£12,014,000
Total Gross Expenditure
£13,832,000
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
Yes
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
7
Count Salary Band 70001 80000
3
Count Salary Band 80001 90000
1
Count Salary Band 130001 140000
1
Count Volunteers
162
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
18 December 2024
Total Gross Income
£14,666,000
Total Gross Expenditure
£15,094,000
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
Yes
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
4
Count Salary Band 70001 80000
3
Count Salary Band 80001 90000
1
Count Salary Band 130001 140000
1
Count Volunteers
200
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
11 January 2024
Total Gross Income
£14,666,000
Total Gross Expenditure
£12,772,000
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
Yes
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
9
Count Salary Band 80001 90000
2
Count Salary Band 90001 100000
3
Count Salary Band 140001 150000
1
Count Volunteers
183
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
24 January 2023
Total Gross Income
£15,681,000
Total Gross Expenditure
£15,968,000
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
Yes
Charity Agreement Professional Fundraiser
Yes
Charity Commercial Participator
Yes
Charity Agreement Commerical Participator
Yes
Grant Making Is Main Activity
Yes
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
Yes
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
6
Count Salary Band 70001 80000
2
Count Salary Band 80001 90000
1
Count Salary Band 90001 100000
2
Count Salary Band 130001 140000
1
Count Volunteers
183
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
10 November 2021
Total Gross Income
£14,386,000
Total Gross Expenditure
£13,905,000
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
Yes
Charity Agreement Professional Fundraiser
Yes
Charity Commercial Participator
Yes
Charity Agreement Commerical Participator
Yes
Grant Making Is Main Activity
Yes
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
Yes
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
9
Count Salary Band 70001 80000
2
Count Salary Band 80001 90000
1
Count Salary Band 90001 100000
0
Count Salary Band 100001 110000
0
Count Salary Band 110001 120000
1
Count Volunteers
200

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
16 September 2025
Income Donations And Legacies
10032000
Income Other Trading Activities
1257000
Income Charitable Activities
0
Income Investments
655000
Income Other
70000
Income Total Income And Endowments
12014000
Income Legacies
1971000
Income Endowments
0
Expenditure Raising Funds
£2,845,000
Expenditure Charitable Expenditure
£10,987,000
Expenditure Other
0
Expenditure Total
13832000
Expenditure Investment Management
40199
Expenditure Grants Institution
2885000
Expenditure Governance
580000
Expenditure Support Costs
2628000
Expenditure Depreciation
67000
Gain Loss Investment
40000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£8,106,000
Assets Total Fixed
5899000
Assets Own Use
64000
Assets Long Term Investment
5835000
Defined Benefit Pension Scheme
0
Assets Other Assets
£17,138,000
Assets Total Liabilities
£13,475,000
Assets Current Investment
11558000
Assets Total Assets And Liabilities
£9,562,000
Creditors One Year Total Current
8158000
Creditors Falling Due After One Year
5317000
Assets Cash
£2,584,000
Funds Endowment
1000000
Funds Unrestricted
8106000
Funds Restricted
456000
Funds Total
9562000
Count Employees
133
Consolidated Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
18 December 2024
Income Donations And Legacies
12402000
Income Other Trading Activities
1304000
Income Charitable Activities
0
Income Investments
628000
Income Other
332000
Income Total Income And Endowments
14666000
Income Legacies
2616000
Income Endowments
0
Expenditure Raising Funds
£3,074,000
Expenditure Charitable Expenditure
£12,020,000
Expenditure Other
0
Expenditure Total
15094000
Expenditure Investment Management
28093
Expenditure Grants Institution
4453000
Expenditure Governance
582000
Expenditure Support Costs
2357000
Expenditure Depreciation
64000
Gain Loss Investment
411000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£9,840,000
Assets Total Fixed
5928000
Assets Own Use
132000
Assets Long Term Investment
5796000
Defined Benefit Pension Scheme
0
Assets Other Assets
£21,146,000
Assets Total Liabilities
£15,734,000
Assets Current Investment
12024000
Assets Total Assets And Liabilities
£11,340,000
Creditors One Year Total Current
8837000
Creditors Falling Due After One Year
6897000
Assets Cash
£4,046,000
Funds Endowment
1032000
Funds Unrestricted
9840000
Funds Restricted
468000
Funds Total
11340000
Count Employees
134
Consolidated Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
11 January 2024
Income Donations And Legacies
10417000
Income Other Trading Activities
2873000
Income Charitable Activities
0
Income Investments
279000
Income Other
1097000
Income Total Income And Endowments
14666000
Income Legacies
978000
Income Endowments
0
Expenditure Raising Funds
£3,322,000
Expenditure Charitable Expenditure
£9,450,000
Expenditure Other
0
Expenditure Total
12772000
Expenditure Investment Management
28000
Expenditure Grants Institution
3565000
Expenditure Governance
190000
Expenditure Support Costs
1996000
Expenditure Depreciation
25000
Gain Loss Investment
-208000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£9,711,000
Assets Total Fixed
5543000
Assets Own Use
155000
Assets Long Term Investment
5388000
Defined Benefit Pension Scheme
0
Assets Other Assets
£21,504,000
Assets Total Liabilities
£15,690,000
Assets Current Investment
11485000
Assets Total Assets And Liabilities
£11,357,000
Creditors One Year Total Current
5056000
Creditors Falling Due After One Year
10634000
Assets Cash
£3,430,000
Funds Endowment
972000
Funds Unrestricted
9711000
Funds Restricted
674000
Funds Total
11357000
Count Employees
121
Consolidated Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
24 January 2023
Income Donations And Legacies
11788000
Income Other Trading Activities
3703000
Income Charitable Activities
0
Income Investments
78000
Income Other
112000
Income Total Income And Endowments
15681000
Income Legacies
1895000
Income Endowments
0
Expenditure Raising Funds
£4,184,000
Expenditure Charitable Expenditure
£11,784,000
Expenditure Other
0
Expenditure Total
15968000
Expenditure Investment Management
51245
Expenditure Grants Institution
6744000
Expenditure Governance
66087
Expenditure Support Costs
1957000
Expenditure Depreciation
18000
Gain Loss Investment
442000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£8,354,000
Assets Total Fixed
5623000
Assets Own Use
19000
Assets Long Term Investment
5604000
Defined Benefit Pension Scheme
0
Assets Other Assets
£20,410,000
Assets Total Liabilities
£16,362,000
Assets Current Investment
11265000
Assets Total Assets And Liabilities
£9,671,000
Creditors One Year Total Current
8937000
Creditors Falling Due After One Year
7425000
Assets Cash
£5,197,000
Funds Endowment
1046000
Funds Unrestricted
8354000
Funds Restricted
271000
Funds Total
9671000
Count Employees
110
Consolidated Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
10 November 2021
Income Donations And Legacies
11678000
Income Other Trading Activities
2580000
Income Charitable Activities
0
Income Investments
128000
Income Other
0
Income Total Income And Endowments
14386000
Income Legacies
2267000
Income Endowments
0
Expenditure Raising Funds
£3,721,000
Expenditure Charitable Expenditure
£10,184,000
Expenditure Other
0
Expenditure Total
13905000
Expenditure Investment Management
22559
Expenditure Grants Institution
4870000
Expenditure Governance
279000
Expenditure Support Costs
2083000
Expenditure Depreciation
23000
Gain Loss Investment
810000
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£8,279,000
Assets Total Fixed
5233000
Assets Own Use
37000
Assets Long Term Investment
5196000
Defined Benefit Pension Scheme
0
Assets Other Assets
£17,923,000
Assets Total Liabilities
£13,640,000
Assets Current Investment
11256000
Assets Total Assets And Liabilities
£9,516,000
Creditors One Year Total Current
8817000
Creditors Falling Due After One Year
4823000
Assets Cash
£3,366,000
Funds Endowment
989000
Funds Unrestricted
8279000
Funds Restricted
248000
Funds Total
9516000
Count Employees
122
Consolidated Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations

08 Official extract

Charity Event History

Charity Name
CYSTIC FIBROSIS TRUST
Charity Event Order
4
Event Type
Asset transfer in
Date Of Event
2022-03-23T00:00:00
Reason
Ceased to exist
Assoc Organisation Number
207598
Assoc Registered Charity Number
207598
Assoc Charity Name
BOURNEMOUTH VOLUNTARY CARE COMMITTEE FOR TUBERCULOSIS AND DISEASES OF THE CHEST
Charity Name
CYSTIC FIBROSIS TRUST
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2015-04-21T00:00:00
Reason
Transfer of funds
Assoc Organisation Number
3950911
Assoc Registered Charity Number
1070372
Assoc Charity Name
THE JORDAN BOND MEMORIAL FUND
Charity Name
CYSTIC FIBROSIS TRUST
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2000-01-21T00:00:00
Charity Name
CYSTIC FIBROSIS TRUST
Charity Event Order
6
Event Type
Asset transfer in
Date Of Event
2026-06-30T00:00:00
Reason
Removed by application
Assoc Organisation Number
5105656
Assoc Registered Charity Number
1178063
Assoc Charity Name
CF WARRIORS
Charity Name
CYSTIC FIBROSIS TRUST
Charity Event Order
3
Event Type
Asset transfer in
Date Of Event
2021-05-11T00:00:00
Reason
Does not operate
Assoc Organisation Number
3998417
Assoc Registered Charity Number
1098725
Assoc Charity Name
FORMER EMS LIMITED
Charity Name
CYSTIC FIBROSIS TRUST
Charity Event Order
5
Event Type
Asset transfer in
Date Of Event
2026-02-23T00:00:00
Reason
Removed by application
Assoc Organisation Number
5120065
Assoc Registered Charity Number
1181381
Assoc Charity Name
CYSTIC FIBROSIS SUPPORTERS (BROMLEY)

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 19TH NOVEMBER 1999 AND AS AMENDED BY SPECIAL RESOLUTIONS PASSED ON 18TH JANUARY 2000 AND 8TH DECEMBER 2009AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 16 NOV 2017 as amended on 24 Jul 2023
Charitable Objects
1) TO PROMOTE RESEARCH INTO THE CAUSES OF AND A CURE FOR CYSTIC FIBROSIS AND THE DISSEMINATION OF THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT2) THE CARE, TREATMENT, EDUCATION AND ADVANCEMENT IN SUCH WAYS AS ARE CHARITABLE OF PERSONS SUFFERING FROM CYSTIC FIBROSIS IN ANY FORM AND3) THE EDUCATION OF THE GENERAL PUBLIC ABOUT THE CAUSES AND EFFECTS OF CYSTIC FIBROSIS
Area Of Benefit
NOT DEFINED

10 Official extract

Charity Policy

Policy Name
Bullying and harassment policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Risk management
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Volunteer management
Policy Name
Serious incident reporting policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Conflicting interests
Policy Name
Paying staff
Policy Name
Complaints policy and procedures
Policy Name
Investment
Policy Name
Trustee expenses policy and procedures
Policy Name
Complaints handling
Policy Name
Safeguarding vulnerable beneficiaries