DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Other
Registered: 2 November 2000
Removed: Not supplied
Financial period: 1 January 2024 – 31 December 2024
Latest income: £70,635
Latest expenditure: £86,584
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: 31 Roman Place, Leeds, LS8 2DS

Website recorded by the regulator: http://www.diamondblackfan.org.uk (displayed as text)

02 Activities

What the charity does

Provide support to families affected by Diamond Blackfan Anaemia.Provide information and education on the condition.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 22 October 2025
Date Accounts Received: 22 October 2025
Total Gross Income: £70,635
Total Gross Expenditure: £86,584

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 2 October 2024
Date Accounts Received: 2 October 2024
Total Gross Income: £78,663
Total Gross Expenditure: £71,268

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 18 October 2023
Date Accounts Received: 18 October 2023
Total Gross Income: £64,409
Total Gross Expenditure: £57,200

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 28 October 2022
Date Accounts Received: 28 October 2022
Total Gross Income: £71,326
Total Gross Expenditure: £30,598

Fin Period Start Date: 1 January 2020
Fin Period End Date: 31 December 2020
Ar Cycle Reference: AR20
Reporting Due Date: 31 October 2021
Date Annual Return Received: 29 October 2021
Date Accounts Received: 29 October 2021
Total Gross Income: £78,976
Total Gross Expenditure: £76,735

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 22 October 2025
Total Gross Income: £70,635
Total Gross Expenditure: £86,584
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 2 October 2024
Total Gross Income: £78,663
Total Gross Expenditure: £71,268
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: Yes
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 18 October 2023
Total Gross Income: £64,409
Total Gross Expenditure: £57,200
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 28 October 2022
Total Gross Income: £71,326
Total Gross Expenditure: £30,598
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR20
Fin Period Start Date: 1 January 2020
Fin Period End Date: 31 December 2020
Ar Due Date: 31 October 2021
Ar Received Date: 29 October 2021
Total Gross Income: £78,976
Total Gross Expenditure: £76,735
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 104
Classification Type: What
Classification Description: Disability

07 Official extract

Charity Event History

Charity Name: DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2000-11-02T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CONSTITUTION ADOPTED 22 JULY 2000 AS AMENDED 16 SEPTEMBER 2000 as amended on 09 Jul 2019
Charitable Objects: A) FOR THE RELIEF OF SICKNESS OF THOSE SUFFERING EITHER DIRECTLY OR INDIRECTLY FROM DIAMOND BLACKFAN ANAEMIA (DBA), AND ASSOCIATED CONDITIONS.B) TO EDUCATE THE GENERAL PUBLIC THROUGH PROMOTION OF RESEARCH AND THE DISSEMINATION OF KNOWLEDGE ABOUT DIAMOND BLACKFAN ANAEMIA (DBA).
Area Of Benefit: NOT DEFINED. IN PRACTICE ENGLAND AND WALES, SCOTLAND AND NORTHERN IRELAND

09 Official extract

Charity Other Names

Charity Name Id: 433029
Charity Name Type: Working name
Charity Name: DBA UK

Charity Name Id: 433020
Charity Name Type: Working name
Charity Name: DBA SUPPORT GROUP UK

10 Official extract

Charity Policy

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Risk management

Policy Name: Serious incident reporting policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Internal risk management policy and procedures