01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Charitable company
- Registered
- 9 February 2001
- Removed
- Not supplied
- Company number supplied
- 04118259
- Financial period
- 1 January 2024 – 31 December 2024
- Latest income
- £18,176,154
- Latest expenditure
- £18,557,148
- Gift Aid
- Yes
- Owns or uses land
- Yes
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: D E B R A, The Capitol Building, Oldbury, BRACKNELL, RG12 8FZ
Website recorded by the regulator: www.debra.org.uk (displayed as text)
02 Activities
What the charity does
Promote research for the benefit of the public into the cause, nature, treatment and cure of Epidermolysis Bullosa and other related medical conditions.To relieve physical and mental illness and distress among persons suffering from EB by the provision of practical advice, guidance and support for the persons responsible for their welfare
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 31 October 2025
- Date Annual Return Received
- 13 August 2025
- Date Accounts Received
- 13 August 2025
- Total Gross Income
- £18,176,154
- Total Gross Expenditure
- £18,557,148
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 31 October 2024
- Date Annual Return Received
- 12 August 2024
- Date Accounts Received
- 12 August 2024
- Total Gross Income
- £18,228,440
- Total Gross Expenditure
- £18,891,360
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 31 October 2023
- Date Annual Return Received
- 11 October 2023
- Date Accounts Received
- 11 October 2023
- Total Gross Income
- £16,420,725
- Total Gross Expenditure
- £15,968,928
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 31 October 2022
- Date Annual Return Received
- 19 October 2022
- Date Accounts Received
- 19 October 2022
- Total Gross Income
- £13,317,401
- Total Gross Expenditure
- £12,500,016
- Fin Period Start Date
- 1 January 2020
- Fin Period End Date
- 31 December 2020
- Ar Cycle Reference
- AR20
- Reporting Due Date
- 31 October 2021
- Date Annual Return Received
- 7 September 2021
- Date Accounts Received
- 31 October 2021
- Total Gross Income
- £11,412,897
- Total Gross Expenditure
- £13,783,428
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Due Date
- 31 October 2025
- Ar Received Date
- 13 August 2025
- Total Gross Income
- £18,176,154
- Total Gross Expenditure
- £18,557,148
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- Yes
- Trustee Also Director Of Subsidiary
- Yes
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 60001 70000
- 1
- Count Salary Band 70001 80000
- 5
- Count Salary Band 80001 90000
- 1
- Count Salary Band 90001 100000
- 1
- Count Salary Band 130001 140000
- 2
- Count Volunteers
- 1200
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Due Date
- 31 October 2024
- Ar Received Date
- 12 August 2024
- Total Gross Income
- £18,228,440
- Total Gross Expenditure
- £18,891,360
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £58
- Income From Government Grants
- £101,554
- Charity Has Trading Subsidiary
- Yes
- Trustee Also Director Of Subsidiary
- Yes
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 70001 80000
- 4
- Count Salary Band 80001 90000
- 1
- Count Salary Band 90001 100000
- 1
- Count Salary Band 120001 130000
- 1
- Count Volunteers
- 1200
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Due Date
- 31 October 2023
- Ar Received Date
- 11 October 2023
- Total Gross Income
- £16,420,725
- Total Gross Expenditure
- £15,968,928
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Grant Making Is Main Activity
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- Yes
- Count Govt Grants
- £71
- Income From Government Grants
- £77,908
- Charity Has Trading Subsidiary
- Yes
- Trustee Also Director Of Subsidiary
- Yes
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 60001 70000
- 1
- Count Salary Band 80001 90000
- 4
- Count Salary Band 100001 110000
- 2
- Count Salary Band 110001 120000
- 1
- Count Volunteers
- 1100
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Due Date
- 31 October 2022
- Ar Received Date
- 19 October 2022
- Total Gross Income
- £13,317,401
- Total Gross Expenditure
- £12,500,016
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Grant Making Is Main Activity
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- Yes
- Count Govt Grants
- £334
- Income From Government Grants
- £2,433,399
- Charity Has Trading Subsidiary
- Yes
- Trustee Also Director Of Subsidiary
- Yes
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 60001 70000
- 1
- Count Salary Band 70001 80000
- 2
- Count Salary Band 80001 90000
- 2
- Count Salary Band 120001 130000
- 1
- Count Volunteers
- 840
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR20
- Fin Period Start Date
- 1 January 2020
- Fin Period End Date
- 31 December 2020
- Ar Due Date
- 31 October 2021
- Ar Received Date
- 7 September 2021
- Total Gross Income
- £11,412,897
- Total Gross Expenditure
- £13,783,428
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- Yes
- Charity Agreement Commerical Participator
- Yes
- Grant Making Is Main Activity
- Yes
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- Yes
- Count Govt Grants
- £46
- Income From Government Grants
- £2,093,868
- Charity Has Trading Subsidiary
- Yes
- Trustee Also Director Of Subsidiary
- Yes
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 60001 70000
- 3
- Count Salary Band 80001 90000
- 2
- Count Salary Band 150001 200000
- 1
- Count Volunteers
- 800
05 Official extract
Charity Annual Return Partb
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Due Date
- 31 October 2025
- Ar Received Date
- 13 August 2025
- Income Donations And Legacies
- 5701451
- Income Other Trading Activities
- 12343028
- Income Charitable Activities
- 31247
- Income Investments
- 43478
- Income Other
- 56950
- Income Total Income And Endowments
- 18176154
- Income Legacies
- 1286862
- Income Endowments
- 0
- Expenditure Raising Funds
- £14,713,773
- Expenditure Charitable Expenditure
- £3,843,375
- Expenditure Other
- 0
- Expenditure Total
- 18557148
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 534084
- Expenditure Governance
- 24850
- Expenditure Support Costs
- 3341660
- Expenditure Depreciation
- 0
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £1,000,000
- Assets Total Fixed
- 1681940
- Assets Own Use
- 1681937
- Assets Long Term Investment
- 3
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £6,250,450
- Assets Total Liabilities
- £4,726,132
- Assets Current Investment
- 500000
- Assets Total Assets And Liabilities
- £3,206,258
- Creditors One Year Total Current
- 3628830
- Creditors Falling Due After One Year
- 1097302
- Assets Cash
- £2,795,577
- Funds Endowment
- 0
- Funds Unrestricted
- 2831590
- Funds Restricted
- 374668
- Funds Total
- 3206258
- Count Employees
- 362
- Charity Only Accounts
- Yes
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Due Date
- 31 October 2024
- Ar Received Date
- 12 August 2024
- Income Donations And Legacies
- 5525589
- Income Other Trading Activities
- 12544882
- Income Charitable Activities
- 11834
- Income Investments
- 97461
- Income Other
- 48674
- Income Total Income And Endowments
- 18228440
- Income Legacies
- 513276
- Income Endowments
- 0
- Expenditure Raising Funds
- £14,494,656
- Expenditure Charitable Expenditure
- £4,396,704
- Expenditure Other
- 0
- Expenditure Total
- 18891360
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 1255924
- Expenditure Governance
- 31300
- Expenditure Support Costs
- 921446
- Expenditure Depreciation
- 186055
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £3,166,584
- Assets Total Fixed
- 1437305
- Assets Own Use
- 1437302
- Assets Long Term Investment
- 3
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £6,250,396
- Assets Total Liabilities
- £4,100,449
- Assets Current Investment
- 2024298
- Assets Total Assets And Liabilities
- £3,587,252
- Creditors One Year Total Current
- 2999964
- Creditors Falling Due After One Year
- 1100485
- Assets Cash
- £2,111,857
- Funds Endowment
- 0
- Funds Unrestricted
- 3166584
- Funds Restricted
- 420668
- Funds Total
- 3587252
- Count Employees
- 368
- Charity Only Accounts
- Yes
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Due Date
- 31 October 2023
- Ar Received Date
- 11 October 2023
- Income Donations And Legacies
- 4011636
- Income Other Trading Activities
- 12253334
- Income Charitable Activities
- 28410
- Income Investments
- 5472
- Income Other
- 121873
- Income Total Income And Endowments
- 16420725
- Income Legacies
- 409665
- Income Endowments
- 0
- Expenditure Raising Funds
- £13,328,601
- Expenditure Charitable Expenditure
- £2,640,327
- Expenditure Other
- 0
- Expenditure Total
- 15968928
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 0
- Expenditure Governance
- 39910
- Expenditure Support Costs
- 2598253
- Expenditure Depreciation
- 180733
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £4,250,172
- Assets Total Fixed
- 1290094
- Assets Own Use
- 1290094
- Assets Long Term Investment
- 0
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £7,004,886
- Assets Total Liabilities
- £4,044,808
- Assets Current Investment
- 0
- Assets Total Assets And Liabilities
- £4,250,172
- Creditors One Year Total Current
- 3672317
- Creditors Falling Due After One Year
- 372491
- Assets Cash
- £2,146,142
- Funds Endowment
- 0
- Funds Unrestricted
- 3762661
- Funds Restricted
- 487511
- Funds Total
- 4250172
- Count Employees
- 362
- Charity Only Accounts
- Yes
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Due Date
- 31 October 2022
- Ar Received Date
- 19 October 2022
- Income Donations And Legacies
- 4608652
- Income Other Trading Activities
- 8654004
- Income Charitable Activities
- 20441
- Income Investments
- 14564
- Income Other
- 19740
- Income Total Income And Endowments
- 13317401
- Income Legacies
- 12579
- Income Endowments
- 0
- Expenditure Raising Funds
- £10,614,818
- Expenditure Charitable Expenditure
- £1,885,198
- Expenditure Other
- 0
- Expenditure Total
- 12500016
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 0
- Expenditure Governance
- 41011
- Expenditure Support Costs
- 2007320
- Expenditure Depreciation
- 159256
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £4,050,325
- Assets Total Fixed
- 1009275
- Assets Own Use
- 1009275
- Assets Long Term Investment
- 0
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £6,986,186
- Assets Total Liabilities
- £4,197,086
- Assets Current Investment
- 0
- Assets Total Assets And Liabilities
- £3,798,375
- Creditors One Year Total Current
- 3861818
- Creditors Falling Due After One Year
- 335268
- Assets Cash
- £4,967,810
- Funds Endowment
- 0
- Funds Unrestricted
- 4050325
- Funds Restricted
- -251950
- Funds Total
- 3798375
- Count Employees
- 360
- Charity Only Accounts
- Yes
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR20
- Fin Period Start Date
- 1 January 2020
- Fin Period End Date
- 31 December 2020
- Ar Due Date
- 31 October 2021
- Ar Received Date
- 7 September 2021
- Income Donations And Legacies
- 4283261
- Income Other Trading Activities
- 7025873
- Income Charitable Activities
- 18210
- Income Investments
- 47403
- Income Other
- 38150
- Income Total Income And Endowments
- 11412897
- Income Legacies
- 257178
- Income Endowments
- 0
- Expenditure Raising Funds
- £10,935,662
- Expenditure Charitable Expenditure
- £2,847,766
- Expenditure Other
- 0
- Expenditure Total
- 13783428
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 895419
- Expenditure Governance
- 23528
- Expenditure Support Costs
- 2160262
- Expenditure Depreciation
- 158452
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £2,980,990
- Assets Total Fixed
- 1077949
- Assets Own Use
- 1077949
- Assets Long Term Investment
- 0
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £6,867,042
- Assets Total Liabilities
- £4,964,001
- Assets Current Investment
- 0
- Assets Total Assets And Liabilities
- £2,980,990
- Creditors One Year Total Current
- 4182719
- Creditors Falling Due After One Year
- 781282
- Assets Cash
- £5,076,553
- Funds Endowment
- 0
- Funds Unrestricted
- 2904447
- Funds Restricted
- 76543
- Funds Total
- 2980990
- Count Employees
- 376
- Charity Only Accounts
- Yes
06 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
07 Official extract
Charity Classification
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 117
- Classification Type
- What
- Classification Description
- Other Charitable Purposes
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
08 Official extract
Charity Event History
- Charity Name
- DEBRA
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 2001-02-09T00:00:00
09 Official extract
Charity Governing Document
- Governing Document Description
- MEMORANDUM AND ARTICLES INCORPORATED 01/12/2000AS AMENDED BY SPECIAL RESOLUTION(S) DATED 10/05/2008AS AMENDED BY SPECIAL RESOLUTION(S) DATED 19/05/2012AS AMENDED BY SPECIAL RESOLUTION(S) DATED 18/05/2013AS AMENDED BY SPECIAL RESOLUTION(S) DATED 17/05/2014 as amended on 09 Apr 2022 as amended on 18 Jul 2022
- Charitable Objects
- 1) TO PROMOTE RESEARCH FOR THE BENEFIT OF THE PUBLIC INTO THE CAUSE, NATURE, TREATMENT AND CURE OF EPIDERMOLYSIS BULLOSA AND OTHER RELATED MEDICAL CONDITIONS AND TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH; AND2) TO RELIEVE PHYSICAL AND MENTAL ILLNESS AND DISTRESS AMONG PERSONS SUFFERING FROM THE SAID CONDITION BY THE PROVISION OF PRACTICAL ADVICE, GUIDANCE AND SUPPORT FOR THE PERSONS RESPONSIBLE FOR THEIR WELFARE AND IN SUCH OTHER WAYS AS THE COMMITTEE SHALL DETERMINE.
- Area Of Benefit
- NOT DEFINED. IN PRACTICE NATIONAL AND OVERSEAS.
10 Official extract
Charity Policy
- Policy Name
- Campaigns and political activity policy and procedures
- Policy Name
- Conflicting interests
- Policy Name
- Social media policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Risk management
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Safeguarding vulnerable beneficiaries
- Policy Name
- Paying staff
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Investment
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Complaints handling
- Policy Name
- Volunteer management
- Policy Name
- Complaints policy and procedures