BritDB

CCEW Charity Commission profile

ECTODERMAL DYSPLASIA SOCIETY

Registered charity 1089135 · organisation 3985673

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Other
Registered
31 October 2001
Removed
Not supplied
Financial period
1 January 2025 – 31 December 2025
Latest income
£107,407
Latest expenditure
£115,098
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: UNIT 1 MAIDA VALE BUSINESS CENTRE, LECKHAMPTON, CHELTENHAM, GLOS, GL53 7ER

Website recorded by the regulator: www.edsociety.co.uk (displayed as text)

02 Activities

What the charity does

The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 October 2026
Date Annual Return Received
13 May 2026
Date Accounts Received
13 May 2026
Total Gross Income
£107,407
Total Gross Expenditure
£115,098
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
2 April 2025
Date Accounts Received
2 April 2025
Total Gross Income
£77,208
Total Gross Expenditure
£72,613
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
11 April 2024
Date Accounts Received
11 April 2024
Total Gross Income
£62,771
Total Gross Expenditure
£71,229
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
16 May 2023
Date Accounts Received
16 May 2023
Total Gross Income
£71,573
Total Gross Expenditure
£50,984
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 October 2022
Date Annual Return Received
11 September 2022
Date Accounts Received
11 September 2022
Total Gross Income
£34,163
Total Gross Expenditure
£43,857

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Due Date
31 October 2026
Ar Received Date
13 May 2026
Total Gross Income
£107,407
Total Gross Expenditure
£115,098
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
5
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
2 April 2025
Total Gross Income
£77,208
Total Gross Expenditure
£72,613
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
10
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
11 April 2024
Total Gross Income
£62,771
Total Gross Expenditure
£71,229
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
10
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
16 May 2023
Total Gross Income
£71,573
Total Gross Expenditure
£50,984
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Due Date
31 October 2022
Ar Received Date
11 September 2022
Total Gross Income
£34,163
Total Gross Expenditure
£43,857
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
10

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities

07 Official extract

Charity Event History

Charity Name
ECTODERMAL DYSPLASIA SOCIETY
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2001-10-31T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CONSTITUTION ADOPTED 14 JULY 2001 AS AMENDED ON 8 MAY 2004AS AMENDED ON 07 MAY 2016 as amended on 15 Oct 2022
Charitable Objects
THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TOA) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY.B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.
Area Of Benefit
NOT DEFINED. IN PRACTICE WORLDWIDE

09 Official extract

Charity Other Names

Charity Name Id
348550
Charity Name Type
Working name
Charity Name
EDS

10 Official extract

Charity Policy

Policy Name
Complaints policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Complaints handling
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Risk management
Policy Name
Safeguarding policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Investing charity funds policy and procedures