CCEW Charity Commission profile

HHUGS-UK HYPOTHALAMIC HAMARTOMA UNCONTROLLED GELASTIC SEIZURES UNITED KINGDOM

Registered charity 1098698 · organisation 3999285

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Other
Registered
22 July 2003
Removed
Not supplied
Financial period
1 January 2025 – 31 December 2025
Latest income
£3,307
Latest expenditure
£320
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: 7 POND CLOSE, WINCHMORE HILL, AMERSHAM, HP7 0NU

Website recorded by the regulator: www.hhugs-uk.com (displayed as text)

02 Activities

What the charity does

HHUGS-UK give support to person/persons who are affected with hypothalamic hamartoma and its associated problems.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 October 2026
Date Annual Return Received
3 October 2026
Total Gross Income
£3,307
Total Gross Expenditure
£320
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
30 October 2025
Total Gross Income
£2,750
Total Gross Expenditure
£380
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
31 October 2024
Total Gross Income
£3,867
Total Gross Expenditure
£360
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
18 October 2023
Total Gross Income
£3,867
Total Gross Expenditure
£360
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 October 2022
Date Annual Return Received
22 March 2022
Total Gross Income
£4,587
Total Gross Expenditure
£360

04 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

05 Official extract

Charity Classification

Classification Code
101
Classification Type
What
Classification Description
General Charitable Purposes
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
117
Classification Type
What
Classification Description
Other Charitable Purposes
Classification Code
310
Classification Type
How
Classification Description
Other Charitable Activities

06 Official extract

Charity Event History

Charity Name
HHUGS-UK HYPOTHALAMIC HAMARTOMA UNCONTROLLED GELASTIC SEIZURES UNITED KINGDOM
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2003-07-22T00:00:00

07 Official extract

Charity Governing Document

Governing Document Description
CONSTITUTION ADOPTED 20 JUNE 2003
Charitable Objects
THE RELIEF OF PERSONS SUFFERING FROM HYPOTHALAMIC HAMARTOMA PARTICULARLY BY;A) THE PROVISION OF INFORMATION, SUPPORT AND ADVICE TO THESE PEOPLE;B) RAISING AWARENESS OF THE PUBLIC AND THE MEDICAL PROFESSION OF THE EFFECTS AND CONDITIONS OF EFFECTIVE TREATMENT;C) PROMPTING RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENT OF HH AND DISSEMINATING THE USEFUL RESULTS THEREOF AND ASSIST IN THE PROVISION OF SUCH FACILITIES OR ITEMS FOR EDUCATION AT THE SCHOOL (NOT PROVIDED FROM STATUTORY FUNDS) AS THE COMMITTEE IN CONSULTATION WITH THE GOVERNING BODY SHALL FROM TIME TO TIME DETERMINE
Area Of Benefit
NOT DEFINED

08 Official extract

Charity Policy

Policy Name
Complaints handling
Policy Name
Conflicting interests
Policy Name
Risk management
Policy Name
Safeguarding vulnerable beneficiaries