CCEW Charity Commission profile

BRITISH SJOGRENS SYNDROME ASSOCIATION

Registered charity 1101571 · organisation 4003007

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
16 January 2004
Removed
Not supplied
Company number supplied
04771837
Financial period
1 April 2024 – 31 March 2025
Latest income
£603,964
Latest expenditure
£224,614
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Sjogren's UK, Hastingwood Industrial Park, Wood Lane, Erdington, Birmingham, B24 9QR

Website recorded by the regulator: www.sjogrensuk.org (displayed as text)

02 Activities

What the charity does

The British Sjogren's Syndrome Association supports patients and carers, educates the public and professionals and raises funds for research into this disabling condition.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
30 January 2026
Date Accounts Received
30 January 2026
Total Gross Income
£603,964
Total Gross Expenditure
£224,614
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
6 January 2025
Date Accounts Received
6 January 2025
Total Gross Income
£132,271
Total Gross Expenditure
£197,077
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
29 November 2023
Date Accounts Received
29 November 2023
Total Gross Income
£343,271
Total Gross Expenditure
£168,028
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
15 December 2022
Date Accounts Received
15 December 2022
Total Gross Income
£164,563
Total Gross Expenditure
£106,076
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
23 December 2021
Date Accounts Received
23 December 2021
Total Gross Income
£148,099
Total Gross Expenditure
£102,261

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
30 January 2026
Total Gross Income
£603,964
Total Gross Expenditure
£224,614
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
42
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
6 January 2025
Total Gross Income
£132,271
Total Gross Expenditure
£197,077
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
29
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
29 November 2023
Total Gross Income
£343,271
Total Gross Expenditure
£168,028
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
29
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
15 December 2022
Total Gross Income
£164,563
Total Gross Expenditure
£106,076
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
41
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
23 December 2021
Total Gross Income
£148,099
Total Gross Expenditure
£102,261
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
44

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
30 January 2026
Income Donations And Legacies
584746
Income Other Trading Activities
2295
Income Charitable Activities
3607
Income Investments
13316
Income Other
0
Income Total Income And Endowments
603964
Income Legacies
515766
Income Endowments
0
Expenditure Raising Funds
£4,900
Expenditure Charitable Expenditure
£219,714
Expenditure Other
0
Expenditure Total
224614
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
14840
Expenditure Support Costs
168119
Expenditure Depreciation
1525
Gain Loss Investment
4604
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£853,705
Assets Total Fixed
14927
Assets Own Use
10323
Assets Long Term Investment
4604
Defined Benefit Pension Scheme
0
Assets Other Assets
£871,112
Assets Total Liabilities
£32,334
Assets Current Investment
0
Assets Total Assets And Liabilities
£853,705
Creditors One Year Total Current
32334
Creditors Falling Due After One Year
0
Assets Cash
£849,763
Funds Endowment
0
Funds Unrestricted
853705
Funds Restricted
0
Funds Total
853705
Count Employees
4
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives

08 Official extract

Charity Event History

Charity Name
BRITISH SJOGRENS SYNDROME ASSOCIATION
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2015-03-31T00:00:00
Reason
Funds transferred (s.74)
Assoc Organisation Number
1043493
Assoc Registered Charity Number
1043493
Assoc Charity Name
JAQUINE LACHMAN ARNOLD CHARITABLE FOUNDATION
Charity Name
BRITISH SJOGRENS SYNDROME ASSOCIATION
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2004-01-16T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 20 MAY 2003AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 17 OCT 2019
Charitable Objects
THE OBJECTS OF THE CHARITY ARE:1.1 THE RELIEF OF PATIENTS SUFFERING FROM SJÖGREN’S SYNDROME OR OTHER DRY EYE AND/OR DRY MOUTH DISORDERS;1.2 THE PROVISION OF EDUCATION FOR PATIENTS, CARERS, HEALTH CARE PROFESSIONALS AND THE WIDER COMMUNITY IN RESPECT OF SJÖGREN'S SYNDROME OR OTHER DRY EYE AND/OR DRY MOUTH DISORDERS TO INCLUDE BUT NOT LIMITED TO:-1.2.1 THE PROMOTION OF RESEARCH INTO CAUSES AND TREATMENT OF SJÖGREN'S SYNDROME OR OTHER DRY EYE AND/OR DRY MOUTH DISORDERS ON TERMS THAT THE RESULTS OF SUCH RESEARCH ARE PUBLISHED; AND1.2.2 RAISING AWARENESS OF ALL ASPECTS OF SJÖGREN'S SYNDROME OR OTHER DRY EYE AND/OR DRY MOUTH DISORDERS AND THE WORK OF THE CHARITY.1.3 THE PROVISION IN THE INTEREST OF SOCIAL WELFARE OF RECREATIONAL FACILITIES FOR SUCH PATIENTS.?
Area Of Benefit
NATIONAL

10 Official extract

Charity Other Names

Charity Name Id
671385
Charity Name Type
Working name
Charity Name
Sjögren's UK

11 Official extract

Charity Policy

Policy Name
Safeguarding policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Complaints handling
Policy Name
Internal risk management policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Risk management
Policy Name
Paying staff