CCEW Charity Commission profile

EPILEPSY RESEARCH INSTITUTE UK

Registered charity 1100394 · organisation 4003274

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
30 October 2003
Removed
Not supplied
Company number supplied
04873718
Financial period
1 April 2024 – 31 March 2025
Latest income
£1,700,383
Latest expenditure
£2,855,052
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: 82 Tanner Street, London, SE1 3GN

Website recorded by the regulator: www.epilepsy-institute.org.uk (displayed as text)

02 Activities

What the charity does

The Epilepsy Research Institute serves as the central hub for the epilepsy research community. The Institute aims to strengthen the epilepsy research ecosystem . Prior to becoming the Institute in 2023, it was Epilepsy Research UK which was formed by the merger of the Epilepsy Research Foundation and the Fund for Epilepsy in April 2007.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
6 January 2026
Date Accounts Received
6 January 2026
Total Gross Income
£1,700,383
Total Gross Expenditure
£2,855,052
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
6 November 2024
Date Accounts Received
6 November 2024
Total Gross Income
£3,595,109
Total Gross Expenditure
£3,091,263
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
2 December 2024
Date Accounts Received
2 December 2024
Total Gross Income
£3,605,370
Total Gross Expenditure
£2,658,426
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
26 September 2022
Date Accounts Received
26 September 2022
Total Gross Income
£2,393,677
Total Gross Expenditure
£2,266,738
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
17 November 2021
Date Accounts Received
17 November 2021
Total Gross Income
£1,226,279
Total Gross Expenditure
£1,998,649

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
6 January 2026
Total Gross Income
£1,700,383
Total Gross Expenditure
£2,855,052
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
Yes
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 120001 130000
1
Count Volunteers
42
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
6 November 2024
Total Gross Income
£3,595,109
Total Gross Expenditure
£3,091,263
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£1,478,851
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Salary Band 90001 100000
1
Count Volunteers
42
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
2 December 2024
Total Gross Income
£3,605,370
Total Gross Expenditure
£2,658,426
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£1,451,840
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 80001 90000
1
Count Volunteers
25
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
26 September 2022
Total Gross Income
£2,393,677
Total Gross Expenditure
£2,266,738
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
Yes
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£1
Income From Government Grants
£485,000
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Volunteers
30
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
17 November 2021
Total Gross Income
£1,226,279
Total Gross Expenditure
£1,998,649
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
Yes
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 80001 90000
1
Count Volunteers
80

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
6 January 2026
Income Donations And Legacies
1324802
Income Other Trading Activities
11110
Income Charitable Activities
0
Income Investments
364471
Income Other
0
Income Total Income And Endowments
1700383
Income Legacies
260306
Income Endowments
0
Expenditure Raising Funds
£269,065
Expenditure Charitable Expenditure
£2,585,987
Expenditure Other
0
Expenditure Total
2855052
Expenditure Investment Management
35808
Expenditure Grants Institution
1715228
Expenditure Governance
127914
Expenditure Support Costs
166733
Expenditure Depreciation
0
Gain Loss Investment
44269
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£3,067,872
Assets Total Fixed
7608127
Assets Own Use
0
Assets Long Term Investment
7608127
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,607,280
Assets Total Liabilities
£6,147,535
Assets Current Investment
0
Assets Total Assets And Liabilities
£3,067,872
Creditors One Year Total Current
3088750
Creditors Falling Due After One Year
3058785
Assets Cash
£678,631
Funds Endowment
0
Funds Unrestricted
3067872
Funds Restricted
0
Funds Total
3067872
Count Employees
14
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
6 November 2024
Income Donations And Legacies
1886154
Income Other Trading Activities
3608
Income Charitable Activities
1478851
Income Investments
226496
Income Other
0
Income Total Income And Endowments
3595109
Income Legacies
997334
Income Endowments
0
Expenditure Raising Funds
£177,658
Expenditure Charitable Expenditure
£2,913,605
Expenditure Other
0
Expenditure Total
3091263
Expenditure Investment Management
25623
Expenditure Grants Institution
2028835
Expenditure Governance
79799
Expenditure Support Costs
104032
Expenditure Depreciation
0
Gain Loss Investment
278842
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£4,178,272
Assets Total Fixed
7552532
Assets Own Use
0
Assets Long Term Investment
7552532
Defined Benefit Pension Scheme
0
Assets Other Assets
£3,043,452
Assets Total Liabilities
£6,417,712
Assets Current Investment
0
Assets Total Assets And Liabilities
£4,178,272
Creditors One Year Total Current
3417158
Creditors Falling Due After One Year
3000554
Assets Cash
£2,197,361
Funds Endowment
0
Funds Unrestricted
4178272
Funds Restricted
0
Funds Total
4178272
Count Employees
10
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
2 December 2024
Income Donations And Legacies
1967065
Income Other Trading Activities
18193
Income Charitable Activities
1451840
Income Investments
168272
Income Other
0
Income Total Income And Endowments
3605370
Income Legacies
928728
Income Endowments
0
Expenditure Raising Funds
£173,303
Expenditure Charitable Expenditure
£2,485,123
Expenditure Other
0
Expenditure Total
2658426
Expenditure Investment Management
39197
Expenditure Grants Institution
1705986
Expenditure Governance
104032
Expenditure Support Costs
108736
Expenditure Depreciation
0
Gain Loss Investment
-263090
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£3,394,171
Assets Total Fixed
3740842
Assets Own Use
0
Assets Long Term Investment
3740842
Defined Benefit Pension Scheme
0
Assets Other Assets
£5,425,150
Assets Total Liabilities
£5,770,408
Assets Current Investment
0
Assets Total Assets And Liabilities
£3,395,584
Creditors One Year Total Current
2926568
Creditors Falling Due After One Year
2843840
Assets Cash
£3,557,081
Funds Endowment
0
Funds Unrestricted
3394171
Funds Restricted
1413
Funds Total
3395584
Count Employees
10
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
26 September 2022
Income Donations And Legacies
2741712
Income Other Trading Activities
25592
Income Charitable Activities
133585
Income Investments
86119
Income Other
0
Income Total Income And Endowments
2987008
Income Legacies
1522836
Income Endowments
0
Expenditure Raising Funds
£174,650
Expenditure Charitable Expenditure
£2,092,088
Expenditure Other
0
Expenditure Total
2266738
Expenditure Investment Management
18367
Expenditure Grants Institution
1572849
Expenditure Governance
27976
Expenditure Support Costs
70883
Expenditure Depreciation
0
Gain Loss Investment
20557
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£2,638,488
Assets Total Fixed
3897165
Assets Own Use
0
Assets Long Term Investment
3897165
Defined Benefit Pension Scheme
0
Assets Other Assets
£3,766,110
Assets Total Liabilities
£4,951,545
Assets Current Investment
3026035
Assets Total Assets And Liabilities
£2,711,730
Creditors One Year Total Current
2007029
Creditors Falling Due After One Year
2944516
Assets Cash
£190,360
Funds Endowment
0
Funds Unrestricted
2638488
Funds Restricted
73242
Funds Total
2711730
Count Employees
8
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
17 November 2021
Income Donations And Legacies
1112408
Income Other Trading Activities
16495
Income Charitable Activities
0
Income Investments
64741
Income Other
32635
Income Total Income And Endowments
1226279
Income Legacies
423737
Income Endowments
0
Expenditure Raising Funds
£158,935
Expenditure Charitable Expenditure
£1,839,714
Expenditure Other
0
Expenditure Total
1998649
Expenditure Investment Management
18924
Expenditure Grants Institution
1320966
Expenditure Governance
0
Expenditure Support Costs
117677
Expenditure Depreciation
0
Gain Loss Investment
253089
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£1,943,543
Assets Total Fixed
2311606
Assets Own Use
0
Assets Long Term Investment
2311606
Defined Benefit Pension Scheme
0
Assets Other Assets
£4,008,169
Assets Total Liabilities
£4,348,872
Assets Current Investment
0
Assets Total Assets And Liabilities
£1,970,903
Creditors One Year Total Current
1956691
Creditors Falling Due After One Year
2392181
Assets Cash
£3,399,537
Funds Endowment
0
Funds Unrestricted
1943543
Funds Restricted
27360
Funds Total
1970903
Count Employees
8
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities

08 Official extract

Charity Event History

Charity Name
EPILEPSY RESEARCH INSTITUTE UK
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2003-10-30T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 21 AUGUST 2003 AS AMENDED BY SPECIAL RESOLUTION DATED 22 MARCH 2007 as amended on 08 Jun 2023 as amended on 01 Oct 2024
Charitable Objects
1. TO PROMOTE, ENCOURAGE AND FINANCE RESEARCH INTO EPILEPSY AND ASSOCIATE DISEASES AND THEIR UNDERLYING CAUSES;2. TO PROMOTE AND IMPROVE THE TREATMENT CARE AND WELFARE OF PERSONS AFFECTED FROM EPILEPSY AND ASSOCIATED DISEASES; AND 3. TO ADVANCE THE GENERAL EDUCATION AND UNDERSTANDING OF THE PUBLIC CONCERNING THE NATURE AND CAUSES OF EPILEPSY AND ASSOCIATED DISEASES AND THE TREATMENT THEREOF.
Area Of Benefit
NOT DEFINED. IN PRACTICE EUROPE

10 Official extract

Charity Other Names

Charity Name Id
339063
Charity Name Type
Previous name
Charity Name
FUND FOR EPILEPSY
Charity Name Id
339025
Charity Name Type
Previous name
Charity Name
EPILEPSY RESEARCH FOUNDATION
Charity Name Id
339045
Charity Name Type
Previous name
Charity Name
EPILEPSY RESEARCH UK

11 Official extract

Charity Policy

Policy Name
Bullying and harassment policy and procedures
Policy Name
Paying staff
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Volunteer management
Policy Name
Conflicting interests
Policy Name
Complaints handling
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Investment
Policy Name
Complaints policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Risk management
Policy Name
Financial reserves policy and procedures
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Serious incident reporting policy and procedures