01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Charitable company
- Registered
- 9 February 2004
- Removed
- Not supplied
- Company number supplied
- 04899036
- Financial period
- 1 April 2024 – 31 March 2025
- Latest income
- £590,523
- Latest expenditure
- £673,765
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: 2nd Floor, South, One Castlepark, Tower Hill, BRISTOL, BS2 0JA
Website recorded by the regulator: www.actionduchenne.org (displayed as text)
02 Activities
What the charity does
Action Duchenne supports, empowers and equips every Duchenne & Becker Muscular Dystrophy community in their journey from diagnosis & beyond. We journey alongside communities to support, empower & advocate for them. We believe that every individual affected by Duchenne & Becker should be able to enjoy the best quality of life possible, and be supported to make informed decisions about their lives.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 April 2024
- Fin Period End Date
- 31 March 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 31 January 2026
- Date Annual Return Received
- 12 December 2025
- Date Accounts Received
- 12 December 2025
- Total Gross Income
- £590,523
- Total Gross Expenditure
- £673,765
- Fin Period Start Date
- 1 April 2023
- Fin Period End Date
- 31 March 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 31 January 2025
- Date Annual Return Received
- 5 December 2024
- Date Accounts Received
- 5 December 2024
- Total Gross Income
- £612,379
- Total Gross Expenditure
- £642,358
- Fin Period Start Date
- 1 April 2022
- Fin Period End Date
- 31 March 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 31 January 2024
- Date Annual Return Received
- 9 January 2024
- Date Accounts Received
- 9 January 2024
- Total Gross Income
- £711,864
- Total Gross Expenditure
- £580,845
- Fin Period Start Date
- 1 April 2021
- Fin Period End Date
- 31 March 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 31 January 2023
- Date Annual Return Received
- 11 January 2023
- Date Accounts Received
- 11 January 2023
- Total Gross Income
- £562,186
- Total Gross Expenditure
- £359,863
- Fin Period Start Date
- 1 April 2020
- Fin Period End Date
- 31 March 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 31 January 2022
- Date Annual Return Received
- 17 January 2022
- Date Accounts Received
- 17 January 2022
- Total Gross Income
- £494,338
- Total Gross Expenditure
- £367,861
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 1 April 2024
- Fin Period End Date
- 31 March 2025
- Ar Due Date
- 31 January 2026
- Ar Received Date
- 12 December 2025
- Total Gross Income
- £590,523
- Total Gross Expenditure
- £673,765
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 70001 80000
- 1
- Count Volunteers
- 10
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 1 April 2023
- Fin Period End Date
- 31 March 2024
- Ar Due Date
- 31 January 2025
- Ar Received Date
- 5 December 2024
- Total Gross Income
- £612,379
- Total Gross Expenditure
- £642,358
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 60001 70000
- 1
- Count Volunteers
- 14
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 1 April 2022
- Fin Period End Date
- 31 March 2023
- Ar Due Date
- 31 January 2024
- Ar Received Date
- 9 January 2024
- Total Gross Income
- £711,864
- Total Gross Expenditure
- £580,845
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 60001 70000
- 1
- Count Volunteers
- 18
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 1 April 2021
- Fin Period End Date
- 31 March 2022
- Ar Due Date
- 31 January 2023
- Ar Received Date
- 11 January 2023
- Total Gross Income
- £562,186
- Total Gross Expenditure
- £359,863
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- Yes
- Charity Agreement Professional Fundraiser
- Yes
- Charity Commercial Participator
- Yes
- Charity Agreement Commerical Participator
- Yes
- Grant Making Is Main Activity
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 125
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 1 April 2020
- Fin Period End Date
- 31 March 2021
- Ar Due Date
- 31 January 2022
- Ar Received Date
- 17 January 2022
- Total Gross Income
- £494,338
- Total Gross Expenditure
- £367,861
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- Yes
- Charity Agreement Professional Fundraiser
- Yes
- Charity Commercial Participator
- Yes
- Charity Agreement Commerical Participator
- Yes
- Grant Making Is Main Activity
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 122
05 Official extract
Charity Annual Return Partb
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 1 April 2024
- Fin Period End Date
- 31 March 2025
- Ar Due Date
- 31 January 2026
- Ar Received Date
- 12 December 2025
- Income Donations And Legacies
- 174359
- Income Other Trading Activities
- 4080
- Income Charitable Activities
- 402518
- Income Investments
- 9566
- Income Other
- 0
- Income Total Income And Endowments
- 590523
- Income Legacies
- 0
- Income Endowments
- 0
- Expenditure Raising Funds
- £139,346
- Expenditure Charitable Expenditure
- £534,419
- Expenditure Other
- 0
- Expenditure Total
- 673765
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 0
- Expenditure Governance
- 70277
- Expenditure Support Costs
- 70277
- Expenditure Depreciation
- 1080
- Gain Loss Investment
- 142062
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £340,154
- Assets Total Fixed
- 17557
- Assets Own Use
- 2901
- Assets Long Term Investment
- 14656
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £592,409
- Assets Total Liabilities
- £157,118
- Assets Current Investment
- 0
- Assets Total Assets And Liabilities
- £452,848
- Creditors One Year Total Current
- 157118
- Creditors Falling Due After One Year
- 0
- Assets Cash
- £469,731
- Funds Endowment
- 0
- Funds Unrestricted
- 340154
- Funds Restricted
- 112694
- Funds Total
- 452848
- Count Employees
- 12
- Charity Only Accounts
- Yes
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 1 April 2023
- Fin Period End Date
- 31 March 2024
- Ar Due Date
- 31 January 2025
- Ar Received Date
- 5 December 2024
- Income Donations And Legacies
- 257546
- Income Other Trading Activities
- 209235
- Income Charitable Activities
- 135819
- Income Investments
- 9779
- Income Other
- 0
- Income Total Income And Endowments
- 612379
- Income Legacies
- 0
- Income Endowments
- 0
- Expenditure Raising Funds
- £60,446
- Expenditure Charitable Expenditure
- £581,912
- Expenditure Other
- 0
- Expenditure Total
- 642358
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 21180
- Expenditure Governance
- 54378
- Expenditure Support Costs
- 463492
- Expenditure Depreciation
- 823
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £207,700
- Assets Total Fixed
- 1622
- Assets Own Use
- 1620
- Assets Long Term Investment
- 2
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £597,346
- Assets Total Liabilities
- £77,532
- Assets Current Investment
- 0
- Assets Total Assets And Liabilities
- £521,436
- Creditors One Year Total Current
- 77532
- Creditors Falling Due After One Year
- 0
- Assets Cash
- £534,978
- Funds Endowment
- 0
- Funds Unrestricted
- 521436
- Funds Restricted
- 0
- Funds Total
- 521436
- Count Employees
- 10
- Charity Only Accounts
- Yes
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 1 April 2022
- Fin Period End Date
- 31 March 2023
- Ar Due Date
- 31 January 2024
- Ar Received Date
- 9 January 2024
- Income Donations And Legacies
- 293483
- Income Other Trading Activities
- 160911
- Income Charitable Activities
- 257442
- Income Investments
- 28
- Income Other
- 0
- Income Total Income And Endowments
- 711864
- Income Legacies
- 0
- Income Endowments
- 0
- Expenditure Raising Funds
- £35,725
- Expenditure Charitable Expenditure
- £545,120
- Expenditure Other
- 0
- Expenditure Total
- 580845
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 10590
- Expenditure Governance
- 36259
- Expenditure Support Costs
- 414845
- Expenditure Depreciation
- 1213
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £145,200
- Assets Total Fixed
- 2163
- Assets Own Use
- 2161
- Assets Long Term Investment
- 2
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £631,987
- Assets Total Liabilities
- £82,735
- Assets Current Investment
- 0
- Assets Total Assets And Liabilities
- £551,415
- Creditors One Year Total Current
- 82735
- Creditors Falling Due After One Year
- 0
- Assets Cash
- £631,039
- Funds Endowment
- 0
- Funds Unrestricted
- 480195
- Funds Restricted
- 71220
- Funds Total
- 551415
- Count Employees
- 9
- Charity Only Accounts
- Yes
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 1 April 2021
- Fin Period End Date
- 31 March 2022
- Ar Due Date
- 31 January 2023
- Ar Received Date
- 11 January 2023
- Income Donations And Legacies
- 347160
- Income Other Trading Activities
- 114797
- Income Charitable Activities
- 98960
- Income Investments
- 19
- Income Other
- 1250
- Income Total Income And Endowments
- 562186
- Income Legacies
- 347160
- Income Endowments
- 0
- Expenditure Raising Funds
- £75,320
- Expenditure Charitable Expenditure
- £284,543
- Expenditure Other
- 0
- Expenditure Total
- 359863
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 46746
- Expenditure Governance
- 31616
- Expenditure Support Costs
- 316159
- Expenditure Depreciation
- 1316
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £420,156
- Assets Total Fixed
- 2883
- Assets Own Use
- 2881
- Assets Long Term Investment
- 2
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £486,977
- Assets Total Liabilities
- £69,464
- Assets Current Investment
- 11049
- Assets Total Assets And Liabilities
- £420,396
- Creditors One Year Total Current
- 35222
- Creditors Falling Due After One Year
- 34242
- Assets Cash
- £475,928
- Funds Endowment
- 0
- Funds Unrestricted
- 420156
- Funds Restricted
- 240
- Funds Total
- 420396
- Count Employees
- 8
- Charity Only Accounts
- Yes
06 Official extract
Charity Area Of Operation
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
07 Official extract
Charity Classification
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 101
- Classification Type
- What
- Classification Description
- General Charitable Purposes
- Classification Code
- 102
- Classification Type
- What
- Classification Description
- Education/training
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
08 Official extract
Charity Event History
- Charity Name
- ACTION DUCHENNE LIMITED
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 2004-02-09T00:00:00
09 Official extract
Charity Governing Document
- Governing Document Description
- MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 15 SEPTEMBER 2003 AS AMENDED BY CERTIFICATE OF INCORPORATION CHANGE NAME DATED 1 OCTOBER 2007. as amended on 03 Feb 2020 as amended on 14 Nov 2025 as amended on 14 Nov 2025 as amended on 14 Nov 2025
- Charitable Objects
- THE RELIEF OF PERSONS WITH DUCHENNES AND BECKER MUSCULAR DYSTROPHY THROUGH SUCH MEANS AS ARE CHARITABLE BY LAW.
- Area Of Benefit
- NOT DEFINED.
10 Official extract
Charity Other Names
- Charity Name Id
- 356062
- Charity Name Type
- Previous name
- Charity Name
- PARENT PROJECT UK LIMITED
11 Official extract
Charity Policy
- Policy Name
- Safeguarding vulnerable beneficiaries
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Volunteer management
- Policy Name
- Risk management
- Policy Name
- Conflicting interests
- Policy Name
- Social media policy and procedures
- Policy Name
- Paying staff
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Complaints handling
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Complaints policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Trustee expenses policy and procedures