CCEW Charity Commission profile

Alex, The Leukodystrophy Charity

Registered charity 1106008 · organisation 4009282

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
23 September 2004
Removed
Not supplied
Company number supplied
05142341
Financial period
1 July 2024 – 30 June 2025
Latest income
£1,077,604
Latest expenditure
£1,026,242
Gift Aid
Yes
Owns or uses land
Yes
In administration
No
Insolvent
No
CIO
No

Public contact address: Alex, The Leukodystrophy Charity, 45 Peckham High Street, LONDON

Website recorded by the regulator: www.alextlc.org (displayed as text)

02 Activities

What the charity does

A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 July 2024
Fin Period End Date
30 June 2025
Ar Cycle Reference
AR25
Reporting Due Date
30 April 2026
Date Annual Return Received
25 February 2026
Date Accounts Received
25 February 2026
Total Gross Income
£1,077,604
Total Gross Expenditure
£1,026,242
Fin Period Start Date
1 July 2023
Fin Period End Date
30 June 2024
Ar Cycle Reference
AR24
Reporting Due Date
30 April 2025
Date Annual Return Received
4 February 2025
Date Accounts Received
4 February 2025
Total Gross Income
£965,218
Total Gross Expenditure
£972,157
Fin Period Start Date
1 July 2022
Fin Period End Date
30 June 2023
Ar Cycle Reference
AR23
Reporting Due Date
30 April 2024
Date Annual Return Received
20 April 2024
Date Accounts Received
20 April 2024
Total Gross Income
£949,226
Total Gross Expenditure
£981,812
Fin Period Start Date
1 July 2021
Fin Period End Date
30 June 2022
Ar Cycle Reference
AR22
Reporting Due Date
30 April 2023
Date Annual Return Received
26 April 2023
Date Accounts Received
26 April 2023
Total Gross Income
£892,298
Total Gross Expenditure
£871,856
Fin Period Start Date
1 July 2020
Fin Period End Date
30 June 2021
Ar Cycle Reference
AR21
Reporting Due Date
30 April 2022
Date Annual Return Received
30 April 2022
Date Accounts Received
30 April 2022
Total Gross Income
£731,979
Total Gross Expenditure
£707,107

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 July 2024
Fin Period End Date
30 June 2025
Ar Due Date
30 April 2026
Ar Received Date
25 February 2026
Total Gross Income
£1,077,604
Total Gross Expenditure
£1,026,242
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
55
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 July 2023
Fin Period End Date
30 June 2024
Ar Due Date
30 April 2025
Ar Received Date
4 February 2025
Total Gross Income
£965,218
Total Gross Expenditure
£972,157
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
55
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 July 2022
Fin Period End Date
30 June 2023
Ar Due Date
30 April 2024
Ar Received Date
20 April 2024
Total Gross Income
£949,226
Total Gross Expenditure
£981,812
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£2
Income From Government Grants
£2,585
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
55
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 July 2021
Fin Period End Date
30 June 2022
Ar Due Date
30 April 2023
Ar Received Date
26 April 2023
Total Gross Income
£892,298
Total Gross Expenditure
£871,856
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£61
Income From Government Grants
£56,289
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
55
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 July 2020
Fin Period End Date
30 June 2021
Ar Due Date
30 April 2022
Ar Received Date
30 April 2022
Total Gross Income
£731,979
Total Gross Expenditure
£707,107
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£33
Income From Government Grants
£147,243
Charity Has Trading Subsidiary
Yes
Trustee Also Director Of Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
55

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 July 2024
Fin Period End Date
30 June 2025
Ar Due Date
30 April 2026
Ar Received Date
25 February 2026
Income Donations And Legacies
356167
Income Other Trading Activities
711107
Income Charitable Activities
6739
Income Investments
3591
Income Other
0
Income Total Income And Endowments
1077604
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£723,996
Expenditure Charitable Expenditure
£302,246
Expenditure Other
0
Expenditure Total
1026242
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
13267
Expenditure Support Costs
36142
Expenditure Depreciation
9472
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£201,986
Assets Total Fixed
31631
Assets Own Use
31631
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£374,049
Assets Total Liabilities
£67,801
Assets Current Investment
0
Assets Total Assets And Liabilities
£337,879
Creditors One Year Total Current
63390
Creditors Falling Due After One Year
4411
Assets Cash
£218,270
Funds Endowment
0
Funds Unrestricted
201986
Funds Restricted
135893
Funds Total
337879
Count Employees
27
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 July 2023
Fin Period End Date
30 June 2024
Ar Due Date
30 April 2025
Ar Received Date
4 February 2025
Income Donations And Legacies
215000
Income Other Trading Activities
741849
Income Charitable Activities
4637
Income Investments
3632
Income Other
100
Income Total Income And Endowments
965218
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£698,956
Expenditure Charitable Expenditure
£273,201
Expenditure Other
0
Expenditure Total
972157
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
11460
Expenditure Support Costs
53067
Expenditure Depreciation
9642
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£204,096
Assets Total Fixed
32719
Assets Own Use
32719
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£397,247
Assets Total Liabilities
£143,449
Assets Current Investment
0
Assets Total Assets And Liabilities
£286,517
Creditors One Year Total Current
128643
Creditors Falling Due After One Year
14806
Assets Cash
£293,637
Funds Endowment
0
Funds Unrestricted
204096
Funds Restricted
82421
Funds Total
286517
Count Employees
27
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 July 2022
Fin Period End Date
30 June 2023
Ar Due Date
30 April 2024
Ar Received Date
20 April 2024
Income Donations And Legacies
247571
Income Other Trading Activities
697726
Income Charitable Activities
2292
Income Investments
1537
Income Other
100
Income Total Income And Endowments
949226
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£662,184
Expenditure Charitable Expenditure
£319,628
Expenditure Other
0
Expenditure Total
981812
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
10911
Expenditure Support Costs
52104
Expenditure Depreciation
9845
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£234,105
Assets Total Fixed
34819
Assets Own Use
34819
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£337,632
Assets Total Liabilities
£78,995
Assets Current Investment
0
Assets Total Assets And Liabilities
£293,456
Creditors One Year Total Current
54051
Creditors Falling Due After One Year
24944
Assets Cash
£288,452
Funds Endowment
0
Funds Unrestricted
234105
Funds Restricted
59351
Funds Total
293456
Count Employees
26
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 July 2021
Fin Period End Date
30 June 2022
Ar Due Date
30 April 2023
Ar Received Date
26 April 2023
Income Donations And Legacies
185724
Income Other Trading Activities
702602
Income Charitable Activities
0
Income Investments
57
Income Other
3915
Income Total Income And Endowments
892298
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£658,658
Expenditure Charitable Expenditure
£213,198
Expenditure Other
0
Expenditure Total
871856
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
3300
Expenditure Support Costs
45348
Expenditure Depreciation
5492
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£250,769
Assets Total Fixed
43398
Assets Own Use
43398
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£355,522
Assets Total Liabilities
£72,878
Assets Current Investment
0
Assets Total Assets And Liabilities
£326,042
Creditors One Year Total Current
38045
Creditors Falling Due After One Year
34833
Assets Cash
£285,634
Funds Endowment
0
Funds Unrestricted
250769
Funds Restricted
75273
Funds Total
326042
Count Employees
25
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 July 2020
Fin Period End Date
30 June 2021
Ar Due Date
30 April 2022
Ar Received Date
30 April 2022
Income Donations And Legacies
249718
Income Other Trading Activities
482238
Income Charitable Activities
0
Income Investments
23
Income Other
0
Income Total Income And Endowments
731979
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£515,164
Expenditure Charitable Expenditure
£191,943
Expenditure Other
0
Expenditure Total
707107
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
3103
Expenditure Support Costs
66950
Expenditure Depreciation
7498
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£182,130
Assets Total Fixed
18248
Assets Own Use
18248
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£363,218
Assets Total Liabilities
£75,866
Assets Current Investment
0
Assets Total Assets And Liabilities
£305,600
Creditors One Year Total Current
31383
Creditors Falling Due After One Year
44483
Assets Cash
£302,502
Funds Endowment
0
Funds Unrestricted
182130
Funds Restricted
123470
Funds Total
305600
Count Employees
24
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Sweden
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Montserrat
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Switzerland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Puerto Rico
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Marshall Islands
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Oceania
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Bangladesh
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Asia
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Hungary
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Nicaragua
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Afghanistan
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Asia
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Turks And Caicos Islands
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Barbados
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Saudi Arabia
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Asia
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Wallis And Futuna
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Oceania
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Comoros
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Africa
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Italy
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Yemen
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Asia
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Indonesia
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Asia
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Samoa
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Oceania
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Mexico
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Svalbard And Jan Mayen
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

Showing 20 of 225 supplied records in this dataset.