CCEW Charity Commission profile

CYSTINOSIS FAMILY SUPPORT NETWORK

Registered charity 1110631 · organisation 4017082

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Other
Registered
28 July 2005
Removed
Not supplied
Financial period
1 January 2025 – 31 December 2025
Latest income
£0
Latest expenditure
£0
Gift Aid
No
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Barrog, Water Street, Llanfairtalhaiarn, ABERGELE, LL22 8SB

02 Activities

What the charity does

N/A

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 October 2026
Date Annual Return Received
19 August 2026
Total Gross Income
£0
Total Gross Expenditure
£0
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
4 October 2025
Total Gross Income
£0
Total Gross Expenditure
£0
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
7 October 2024
Total Gross Income
£0
Total Gross Expenditure
£0
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
18 October 2023
Total Gross Income
£0
Total Gross Expenditure
£0
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 October 2022
Date Annual Return Received
10 August 2022
Total Gross Income
£0
Total Gross Expenditure
£0

04 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

05 Official extract

Charity Classification

Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
304
Classification Type
How
Classification Description
Provides Human Resources
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information

06 Official extract

Charity Event History

Charity Name
CYSTINOSIS FAMILY SUPPORT NETWORK
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2005-07-28T00:00:00

07 Official extract

Charity Governing Document

Governing Document Description
CONSTITUTION ADOPTED 19 MAY 2005
Charitable Objects
1. THE RELIEF OF PATIENTS DIAGNOSED WITH CYSTINOSIS;2. THE PROVISION OF NON MEDICAL ADVICE TO SUCH PATIENTS AND TO THEIR FAMILIES AND FRIENDS;3. THE PROVISION IN THE INTERESTS OF SOCIAL WELFARE OF RECREATIONAL FACILITIES AND EVENTS FOR SUCH PATIENTS;4. THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF CYSTINOSIS ON TERMS THAT THE RESULTS OF SUCH RESEARCH ARE PUBLISHED.
Area Of Benefit
NOT DEFINED

08 Official extract

Charity Other Names

Charity Name Id
471646
Charity Name Type
Working name
Charity Name
CSFN
Charity Name Id
471638
Charity Name Type
Working name
Charity Name
CFSN

09 Official extract

Charity Policy

Policy Name
Volunteer management
Policy Name
Complaints handling
Policy Name
Risk management
Policy Name
Safeguarding vulnerable beneficiaries