BritDB

CCEW Charity Commission profile

GENETIC ALLIANCE UK LTD

Registered charity 1114195 · organisation 4023416

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
15 May 2006
Removed
Not supplied
Company number supplied
05772999
Financial period
1 April 2024 – 31 March 2025
Latest income
£885,853
Latest expenditure
£705,015
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Genetic Alliance UK, The Clock Tower, 5 Farleigh Road, Old Weston Road, Flax Bourton, Bristol

Website recorded by the regulator: www.geneticalliance.org.uk (displayed as text)

02 Activities

What the charity does

Genetic Alliance UK is an alliance of over 230 charities and support groups. We have a 30-year track record of working together to improve the lives of people in the UK with lifelong and complex genetic and rare conditions. We run two long-standing projects, Rare Disease UK and SWAN UK.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
15 December 2025
Date Accounts Received
15 December 2025
Total Gross Income
£885,853
Total Gross Expenditure
£705,015
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
19 September 2024
Date Accounts Received
19 September 2024
Total Gross Income
£780,935
Total Gross Expenditure
£862,752
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
20 December 2023
Date Accounts Received
20 December 2023
Total Gross Income
£741,859
Total Gross Expenditure
£769,204
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
21 October 2022
Date Accounts Received
21 October 2022
Total Gross Income
£713,568
Total Gross Expenditure
£762,424
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
1 December 2021
Date Accounts Received
1 December 2021
Total Gross Income
£939,440
Total Gross Expenditure
£808,907

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
15 December 2025
Total Gross Income
£885,853
Total Gross Expenditure
£705,015
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£40,000
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
12
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
19 September 2024
Total Gross Income
£780,935
Total Gross Expenditure
£862,752
Grant Making Is Main Activity
No
Count Govt Contracts
2
Count Govt Grants
£2
Income From Government Contracts
77643
Income From Government Grants
£77,643
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
12
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
20 December 2023
Total Gross Income
£741,859
Total Gross Expenditure
£769,204
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£2
Income From Government Grants
£79,817
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Volunteers
25
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
21 October 2022
Total Gross Income
£713,568
Total Gross Expenditure
£762,424
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
Yes
Charity Agreement Professional Fundraiser
Yes
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£3
Income From Government Grants
£89,357
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
15
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
1 December 2021
Total Gross Income
£939,440
Total Gross Expenditure
£808,907
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
Yes
Charity Agreement Professional Fundraiser
Yes
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£2
Income From Government Grants
£29,847
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Volunteers
15

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
15 December 2025
Income Donations And Legacies
679790
Income Other Trading Activities
0
Income Charitable Activities
205179
Income Investments
884
Income Other
0
Income Total Income And Endowments
885853
Income Legacies
8227
Income Endowments
0
Expenditure Raising Funds
£81,691
Expenditure Charitable Expenditure
£623,324
Expenditure Other
0
Expenditure Total
705015
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
14400
Expenditure Support Costs
3202
Expenditure Depreciation
2723
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£190,306
Assets Total Fixed
2911
Assets Own Use
2911
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£411,977
Assets Total Liabilities
£192,204
Assets Current Investment
0
Assets Total Assets And Liabilities
£222,684
Creditors One Year Total Current
192204
Creditors Falling Due After One Year
0
Assets Cash
£395,134
Funds Endowment
0
Funds Unrestricted
190306
Funds Restricted
32378
Funds Total
222684
Count Employees
11
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
19 September 2024
Income Donations And Legacies
674843
Income Other Trading Activities
0
Income Charitable Activities
105953
Income Investments
139
Income Other
0
Income Total Income And Endowments
780935
Income Legacies
208
Income Endowments
0
Expenditure Raising Funds
£111,653
Expenditure Charitable Expenditure
£751,099
Expenditure Other
0
Expenditure Total
862752
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
14040
Expenditure Support Costs
356605
Expenditure Depreciation
2445
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£24,000
Assets Total Fixed
5634
Assets Own Use
5634
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£187,484
Assets Total Liabilities
£151,272
Assets Current Investment
0
Assets Total Assets And Liabilities
£41,846
Creditors One Year Total Current
151272
Creditors Falling Due After One Year
0
Assets Cash
£85,583
Funds Endowment
0
Funds Unrestricted
29712
Funds Restricted
12134
Funds Total
41846
Count Employees
17
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
20 December 2023
Income Donations And Legacies
690024
Income Other Trading Activities
0
Income Charitable Activities
51730
Income Investments
105
Income Other
0
Income Total Income And Endowments
741859
Income Legacies
8325
Income Endowments
0
Expenditure Raising Funds
£94,391
Expenditure Charitable Expenditure
£674,813
Expenditure Other
0
Expenditure Total
769204
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
12060
Expenditure Support Costs
323871
Expenditure Depreciation
662
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£92,974
Assets Total Fixed
4698
Assets Own Use
4698
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£194,825
Assets Total Liabilities
£75,860
Assets Current Investment
0
Assets Total Assets And Liabilities
£123,663
Creditors One Year Total Current
75860
Creditors Falling Due After One Year
0
Assets Cash
£141,457
Funds Endowment
0
Funds Unrestricted
92974
Funds Restricted
30689
Funds Total
123663
Count Employees
16
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
21 October 2022
Income Donations And Legacies
657454
Income Other Trading Activities
0
Income Charitable Activities
56114
Income Investments
0
Income Other
0
Income Total Income And Endowments
713568
Income Legacies
2000
Income Endowments
0
Expenditure Raising Funds
£95,416
Expenditure Charitable Expenditure
£667,008
Expenditure Other
0
Expenditure Total
762424
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
11100
Expenditure Support Costs
238511
Expenditure Depreciation
286
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£151,008
Assets Total Fixed
992
Assets Own Use
992
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£265,431
Assets Total Liabilities
£115,415
Assets Current Investment
0
Assets Total Assets And Liabilities
£151,008
Creditors One Year Total Current
115415
Creditors Falling Due After One Year
0
Assets Cash
£199,282
Funds Endowment
0
Funds Unrestricted
134657
Funds Restricted
16351
Funds Total
151008
Count Employees
17
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
1 December 2021
Income Donations And Legacies
933883
Income Other Trading Activities
0
Income Charitable Activities
5557
Income Investments
0
Income Other
0
Income Total Income And Endowments
939440
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£105,444
Expenditure Charitable Expenditure
£703,463
Expenditure Other
0
Expenditure Total
808907
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
10200
Expenditure Support Costs
438922
Expenditure Depreciation
0
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£160,730
Assets Total Fixed
0
Assets Own Use
0
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£366,269
Assets Total Liabilities
£166,405
Assets Current Investment
0
Assets Total Assets And Liabilities
£199,864
Creditors One Year Total Current
166405
Creditors Falling Due After One Year
0
Assets Cash
£239,896
Funds Endowment
0
Funds Unrestricted
160730
Funds Restricted
39134
Funds Total
199864
Count Employees
17
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
309
Classification Type
How
Classification Description
Acts As An Umbrella Or Resource Body
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
205
Classification Type
Who
Classification Description
Other Charities Or Voluntary Bodies
Classification Code
101
Classification Type
What
Classification Description
General Charitable Purposes

08 Official extract

Charity Event History

Charity Name
GENETIC ALLIANCE UK LTD
Charity Event Order
3
Event Type
Asset transfer in
Date Of Event
2026-06-05T00:00:00
Reason
Transfer of funds
Assoc Organisation Number
1036425
Assoc Registered Charity Number
1036425
Assoc Charity Name
THE ROTARY CLUB OF STREATHAM TRUST FUND
Charity Name
GENETIC ALLIANCE UK LTD
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2026-06-05T00:00:00
Reason
Transfer of funds
Assoc Organisation Number
1036425
Assoc Registered Charity Number
1036425
Assoc Charity Name
THE ROTARY CLUB OF STREATHAM TRUST FUND
Charity Name
GENETIC ALLIANCE UK LTD
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2006-05-15T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 6 APRIL 2006 AS AMENDED BY CERTIFICATE OF INCORPORATION ON CHANGE OF NAME DATED 18 MAY 2010AS AMENDED BY SPECIAL RESOLUTION(S) DATED 27 SEP 2016 as amended on 25 Sep 2018 as amended on 17 Oct 2018
Charitable Objects
THE OBJECTS FOR THE PUBLIC BENEFIT ARE:-A) TO RELIEVE PERSONS AFFECTED BY A GENETIC CONDITIONS;B) TO ADVANCE THE EDUCATION OF THE PUBLIC CONCERNING GENETIC CONDITIONS IN SUCH WAYS AS THE TRUSTEES OF THE CHARITY THINK FIT.
Area Of Benefit
NOT DEFINED.

10 Official extract

Charity Other Names

Charity Name Id
395967
Charity Name Type
Previous name
Charity Name
GENETIC INTEREST GROUP LIMITED
Charity Name Id
395963
Charity Name Type
Previous name
Charity Name
GENETIC INTEREST GROUP
Charity Name Id
561912
Charity Name Type
Working name
Charity Name
RDUK
Charity Name Id
561513
Charity Name Type
Working name
Charity Name
RARE DISEASE UK
Charity Name Id
567366
Charity Name Type
Working name
Charity Name
SWAN UK

11 Official extract

Charity Policy

Policy Name
Internal risk management policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Risk management
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Paying staff
Policy Name
Trustee expenses policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Complaints handling
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Conflicting interests
Policy Name
Volunteer management