DRAVET SYNDROME UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Trust
Registered: 26 February 2009
Removed: Not supplied
Financial period: 1 February 2025 – 31 January 2026
Latest income: £640,286
Latest expenditure: £735,372
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: PO Box 756, CHESTERFIELD, S43 9EB

Website recorded by the regulator: www.dravet.org.uk (displayed as text)

02 Activities

What the charity does

Support for children and adults suffering from Dravet syndrome and their families

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 February 2025
Fin Period End Date: 31 January 2026
Ar Cycle Reference: AR26
Reporting Due Date: 30 November 2026
Date Annual Return Received: 27 August 2026
Date Accounts Received: 27 August 2026
Total Gross Income: £640,286
Total Gross Expenditure: £735,372

Fin Period Start Date: 1 February 2024
Fin Period End Date: 31 January 2025
Ar Cycle Reference: AR25
Reporting Due Date: 30 November 2025
Date Annual Return Received: 25 July 2025
Date Accounts Received: 25 July 2025
Total Gross Income: £561,982
Total Gross Expenditure: £796,545

Fin Period Start Date: 1 February 2023
Fin Period End Date: 31 January 2024
Ar Cycle Reference: AR24
Reporting Due Date: 30 November 2024
Date Annual Return Received: 27 November 2024
Date Accounts Received: 27 November 2024
Total Gross Income: £487,892
Total Gross Expenditure: £436,435

Fin Period Start Date: 1 February 2022
Fin Period End Date: 31 January 2023
Ar Cycle Reference: AR23
Reporting Due Date: 30 November 2023
Date Annual Return Received: 5 October 2023
Date Accounts Received: 5 October 2023
Total Gross Income: £456,074
Total Gross Expenditure: £371,118

Fin Period Start Date: 1 February 2021
Fin Period End Date: 31 January 2022
Ar Cycle Reference: AR22
Reporting Due Date: 30 November 2022
Date Annual Return Received: 31 October 2022
Date Accounts Received: 31 October 2022
Total Gross Income: £342,790
Total Gross Expenditure: £364,519

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR26
Fin Period Start Date: 1 February 2025
Fin Period End Date: 31 January 2026
Ar Due Date: 30 November 2026
Ar Received Date: 27 August 2026
Total Gross Income: £640,286
Total Gross Expenditure: £735,372
Grant Making Is Main Activity: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR25
Fin Period Start Date: 1 February 2024
Fin Period End Date: 31 January 2025
Ar Due Date: 30 November 2025
Ar Received Date: 25 July 2025
Total Gross Income: £561,982
Total Gross Expenditure: £796,545
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 14

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR24
Fin Period Start Date: 1 February 2023
Fin Period End Date: 31 January 2024
Ar Due Date: 30 November 2024
Ar Received Date: 27 November 2024
Total Gross Income: £487,892
Total Gross Expenditure: £436,435
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR23
Fin Period Start Date: 1 February 2022
Fin Period End Date: 31 January 2023
Ar Due Date: 30 November 2023
Ar Received Date: 5 October 2023
Total Gross Income: £456,074
Total Gross Expenditure: £371,118
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 6

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR22
Fin Period Start Date: 1 February 2021
Fin Period End Date: 31 January 2022
Ar Due Date: 30 November 2022
Ar Received Date: 31 October 2022
Total Gross Income: £342,790
Total Gross Expenditure: £364,519
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 12

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR26
Fin Period Start Date: 1 February 2025
Fin Period End Date: 31 January 2026
Ar Due Date: 30 November 2026
Ar Received Date: 27 August 2026
Income Donations And Legacies: 616761
Income Other Trading Activities: 7683
Income Charitable Activities: 5910
Income Investments: 4013
Income Other: 5919
Income Total Income And Endowments: 640286
Income Legacies: 1000
Income Endowments: 0
Expenditure Raising Funds: £50,026
Expenditure Charitable Expenditure: £681,678
Expenditure Other: 3668
Expenditure Total: 735372
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 56252
Expenditure Support Costs: 93544
Expenditure Depreciation: 1874
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £207,460
Assets Total Fixed: 3832
Assets Own Use: 3832
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £410,146
Assets Total Liabilities: £202,186
Assets Current Investment: 0
Assets Total Assets And Liabilities: £211,792
Creditors One Year Total Current: 202186
Creditors Falling Due After One Year: 0
Assets Cash: £326,682
Funds Endowment: 0
Funds Unrestricted: 211292
Funds Restricted: 500
Funds Total: 211792
Count Employees: 9
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR25
Fin Period Start Date: 1 February 2024
Fin Period End Date: 31 January 2025
Ar Due Date: 30 November 2025
Ar Received Date: 25 July 2025
Income Donations And Legacies: 544486
Income Other Trading Activities: 5755
Income Charitable Activities: 0
Income Investments: 2303
Income Other: 9438
Income Total Income And Endowments: 561982
Income Legacies: 0
Income Endowments: 0
Expenditure Raising Funds: £67,693
Expenditure Charitable Expenditure: £728,852
Expenditure Other: 0
Expenditure Total: 796545
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 65943
Expenditure Support Costs: 210221
Expenditure Depreciation: 1120
Gain Loss Investment: 2303
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £305,878
Assets Total Fixed: 1271
Assets Own Use: 1271
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £520,502
Assets Total Liabilities: £214,895
Assets Current Investment: 7741
Assets Total Assets And Liabilities: £306,878
Creditors One Year Total Current: 214895
Creditors Falling Due After One Year: 0
Assets Cash: £446,425
Funds Endowment: 0
Funds Unrestricted: 305878
Funds Restricted: 1000
Funds Total: 306878
Count Employees: 7
Charity Only Accounts: Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England
Welsh Ind: No

07 Official extract

Charity Classification

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 301
Classification Type: How
Classification Description: Makes Grants To Individuals

08 Official extract

Charity Event History

Charity Name: DRAVET SYNDROME UK
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2009-02-26T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description: TRUST DEED DATED 31 JANUARY 2009 AS AMENDED BY SUPPLEMENTAL DEED DATED 6 NOVEMBER 2010
Charitable Objects: 1) TO FUND RESEARCH INTO DRAVET SYNDROME AND OTHER RELATED GENETIC SODIUM CHANNEL EPILEPSY'S TO BENEFIT SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.2) TO ADVANCE THE EDUCATION OF THE MEDICAL COMMUNITY IN THE SUBJECT OF DRAVET SYNDROME, THEREFORE PROMPTING ACCURATE AND EARLY DIAGNOSIS AND BENEFITING SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.3) TO PROMOTE THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE.
Area Of Benefit: UNDEFINED. IN PRACTICE, NATIONAL

10 Official extract

Charity Other Names

Charity Name Id: 403688
Charity Name Type: Previous name
Charity Name: THE IDEA LEAGUE UK

11 Official extract

Charity Policy

Policy Name: Internal risk management policy and procedures

Policy Name: Volunteer management

Policy Name: Serious incident reporting policy and procedures

Policy Name: Investment

Policy Name: Paying staff

Policy Name: Safeguarding policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Risk management

Policy Name: Conflicting interests

Policy Name: Complaints handling

Policy Name: Complaints policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Engaging external speakers at charity events policy and procedures