CCEW Charity Commission profile

ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS

Registered charity 1133182 · organisation 4047526

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
8 December 2009
Removed
Not supplied
Company number supplied
07000073
Financial period
1 September 2024 – 31 August 2025
Latest income
£70,666
Latest expenditure
£47,275
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Flat 39, Coleherne Court, The Little Boltons, LONDON, SW5 0DN

Website recorded by the regulator: www.naadvocacy.org (displayed as text)

02 Activities

What the charity does

Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 September 2024
Fin Period End Date
31 August 2025
Ar Cycle Reference
AR25
Reporting Due Date
30 June 2026
Date Annual Return Received
5 June 2026
Date Accounts Received
5 June 2026
Total Gross Income
£70,666
Total Gross Expenditure
£47,275
Fin Period Start Date
1 September 2023
Fin Period End Date
31 August 2024
Ar Cycle Reference
AR24
Reporting Due Date
30 June 2025
Date Annual Return Received
26 June 2025
Date Accounts Received
26 June 2025
Total Gross Income
£50,244
Total Gross Expenditure
£52,008
Fin Period Start Date
1 September 2022
Fin Period End Date
31 August 2023
Ar Cycle Reference
AR23
Reporting Due Date
30 June 2024
Date Annual Return Received
4 July 2024
Total Gross Income
£8,847
Total Gross Expenditure
£33,936
Fin Period Start Date
1 September 2021
Fin Period End Date
31 August 2022
Ar Cycle Reference
AR22
Reporting Due Date
30 June 2023
Date Annual Return Received
29 May 2023
Date Accounts Received
29 May 2023
Total Gross Income
£90,098
Total Gross Expenditure
£16,790
Fin Period Start Date
1 September 2020
Fin Period End Date
31 August 2021
Ar Cycle Reference
AR21
Reporting Due Date
30 June 2022
Date Annual Return Received
7 June 2022
Total Gross Income
£15,082
Total Gross Expenditure
£89,196

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 September 2024
Fin Period End Date
31 August 2025
Ar Due Date
30 June 2026
Ar Received Date
5 June 2026
Total Gross Income
£70,666
Total Gross Expenditure
£47,275
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 September 2023
Fin Period End Date
31 August 2024
Ar Due Date
30 June 2025
Ar Received Date
26 June 2025
Total Gross Income
£50,244
Total Gross Expenditure
£52,008
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 September 2021
Fin Period End Date
31 August 2022
Ar Due Date
30 June 2023
Ar Received Date
29 May 2023
Total Gross Income
£90,098
Total Gross Expenditure
£16,790
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
1
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 September 2020
Fin Period End Date
31 August 2021
Ar Due Date
30 June 2022
Ar Received Date
7 June 2022
Total Gross Income
£15,082
Total Gross Expenditure
£89,196
Charity Raises Funds From Public
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
1

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Spain
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
United States
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Switzerland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Japan
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Asia
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Netherlands
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
France
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Italy
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Portugal
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Local Authority
Geographic Area Description
Oxfordshire
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Germany
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name
ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2009-12-08T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 25 AUGUST 2009
Charitable Objects
1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF NEUROACANTHOCYTOSIS DISEASES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE2 TO ADVANCE THE EDUCATION OF HEALTH PROFESSIONALS AND THE GENERAL PUBLIC IN AL AREAS RELATING TO NEUROACANTHOCYTOSIS DISEASES
Area Of Benefit
UNDEFINED. IN PRACTICE, NATIONAL AND OVERSEAS.

09 Official extract

Charity Other Names

Charity Name Id
542414
Charity Name Type
Working name
Charity Name
N A FUND

10 Official extract

Charity Policy

Policy Name
Internal charity financial controls policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Risk management
Policy Name
Complaints policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Volunteer management
Policy Name
Conflicting interests
Policy Name
Paying staff
Policy Name
Financial reserves policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Investing charity funds policy and procedures