FANCONI HOPE — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Trust
Registered: 24 November 2008
Removed: Not supplied
Financial period: 1 May 2024 – 30 April 2025
Latest income: £54,779
Latest expenditure: £75,014
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: New Street Centre, New Street, Chesterfield, S40 2JZ

Website recorded by the regulator: www.fanconihope.org (displayed as text)

02 Activities

What the charity does

Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 May 2024
Fin Period End Date: 30 April 2025
Ar Cycle Reference: AR25
Reporting Due Date: 28 February 2026
Date Annual Return Received: 12 February 2026
Date Accounts Received: 12 February 2026
Total Gross Income: £54,779
Total Gross Expenditure: £75,014

Fin Period Start Date: 1 May 2023
Fin Period End Date: 30 April 2024
Ar Cycle Reference: AR24
Reporting Due Date: 28 February 2025
Date Annual Return Received: 19 February 2025
Date Accounts Received: 19 February 2025
Total Gross Income: £70,897
Total Gross Expenditure: £96,044

Fin Period Start Date: 1 May 2022
Fin Period End Date: 30 April 2023
Ar Cycle Reference: AR23
Reporting Due Date: 29 February 2024
Date Annual Return Received: 26 February 2024
Date Accounts Received: 26 February 2024
Total Gross Income: £38,751
Total Gross Expenditure: £59,480

Fin Period Start Date: 1 May 2021
Fin Period End Date: 30 April 2022
Ar Cycle Reference: AR22
Reporting Due Date: 28 February 2023
Date Annual Return Received: 26 February 2023
Date Accounts Received: 26 February 2023
Total Gross Income: £36,843
Total Gross Expenditure: £47,971

Fin Period Start Date: 1 May 2020
Fin Period End Date: 30 April 2021
Ar Cycle Reference: AR21
Reporting Due Date: 28 February 2022
Date Annual Return Received: 17 February 2022
Date Accounts Received: 17 February 2022
Total Gross Income: £27,065
Total Gross Expenditure: £20,206

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 May 2024
Fin Period End Date: 30 April 2025
Ar Due Date: 28 February 2026
Ar Received Date: 12 February 2026
Total Gross Income: £54,779
Total Gross Expenditure: £75,014
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 May 2023
Fin Period End Date: 30 April 2024
Ar Due Date: 28 February 2025
Ar Received Date: 19 February 2025
Total Gross Income: £70,897
Total Gross Expenditure: £96,044
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 May 2022
Fin Period End Date: 30 April 2023
Ar Due Date: 29 February 2024
Ar Received Date: 26 February 2024
Total Gross Income: £38,751
Total Gross Expenditure: £59,480
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 May 2021
Fin Period End Date: 30 April 2022
Ar Due Date: 28 February 2023
Ar Received Date: 26 February 2023
Total Gross Income: £36,843
Total Gross Expenditure: £47,971
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 6

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 May 2020
Fin Period End Date: 30 April 2021
Ar Due Date: 28 February 2022
Ar Received Date: 17 February 2022
Total Gross Income: £27,065
Total Gross Expenditure: £20,206
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 6

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

07 Official extract

Charity Event History

Charity Name: FANCONI HOPE
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2008-11-24T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: TRUST DEED 04 MAY 2008
Charitable Objects: 1. TO SUPPORT A UK FANCONI ANAEMIA NATIONAL REGISTRY SO AS TO ENSURE FANCONI ANAEMIA AFFECTED CHILDREN AND THEIR FAMILIES ARE KEPT TRACK OF AND PROVIDED WITH THE BEST CARE.2. TO PROMOTE AWARENESS AND UNDERSTANDING OF FANCONI ANAEMIA AMONG AFFECTED FAMILIES, THE MEDICAL PROFESSION AND THE GENERAL PUBLIC.3. TO ENCOURAGE TRANSLATIONAL RESEARCH THAT MIGHT DIRECTLY BENEFIT FANCONI ANAEMIA RELATED CHILDREN AND THEIR FAMILIES.4. TO ENCOURAGE RESEARCH IN THE AREA OF FANCONI ANAEMIA THAT MIGHT HAVE BEBEFIT FOR THE GENERAL PUBLIC, E.G. IN THE TREATMENT OF CANCERS IN GENERAL.
Area Of Benefit: UNDEFINED, IN PRACTICE

09 Official extract

Charity Policy

Policy Name: Internal risk management policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Trustee expenses policy and procedures