RESTLESS LEGS SYNDROME-UK/EKBOM SYNDROME ASSOCIATION — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Other
Registered: 9 March 2011
Removed: Not supplied
Financial period: 6 April 2025 – 5 April 2026
Latest income: £28,645
Latest expenditure: £7,613
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: PO BOX BOX 11084, GRANTHAM, NG31 0LN

Website recorded by the regulator: www.rls-uk.org (displayed as text)

02 Activities

What the charity does

Our primary focus is to raise awareness of RLS, to provide information and support to those living with RLS and to improve the quality of RLS care. Our website has up to date information for people with RLS and for professionals. Small research grants are offered and where possible training information for clinicians.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 6 April 2025
Fin Period End Date: 5 April 2026
Ar Cycle Reference: AR26
Reporting Due Date: 5 February 2027
Date Annual Return Received: 26 October 2026
Date Accounts Received: 26 October 2026
Total Gross Income: £28,645
Total Gross Expenditure: £7,613

Fin Period Start Date: 6 April 2024
Fin Period End Date: 5 April 2025
Ar Cycle Reference: AR25
Reporting Due Date: 5 February 2026
Date Annual Return Received: 20 October 2025
Total Gross Income: £23,427
Total Gross Expenditure: £9,961

Fin Period Start Date: 6 April 2023
Fin Period End Date: 5 April 2024
Ar Cycle Reference: AR24
Reporting Due Date: 5 February 2025
Date Annual Return Received: 13 October 2024
Total Gross Income: £21,622
Total Gross Expenditure: £19,852

Fin Period Start Date: 6 April 2022
Fin Period End Date: 5 April 2023
Ar Cycle Reference: AR23
Reporting Due Date: 5 February 2024
Date Annual Return Received: 25 October 2023
Total Gross Income: £16,653
Total Gross Expenditure: £17,019

Fin Period Start Date: 6 April 2021
Fin Period End Date: 5 April 2022
Ar Cycle Reference: AR22
Reporting Due Date: 5 February 2023
Date Annual Return Received: 9 March 2023
Total Gross Income: £10,057
Total Gross Expenditure: £5,208

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR26
Fin Period Start Date: 6 April 2025
Fin Period End Date: 5 April 2026
Ar Due Date: 5 February 2027
Ar Received Date: 26 October 2026
Total Gross Income: £28,645
Total Gross Expenditure: £7,613
Grant Making Is Main Activity: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR25
Fin Period Start Date: 6 April 2024
Fin Period End Date: 5 April 2025
Ar Due Date: 5 February 2026
Ar Received Date: 20 October 2025
Total Gross Income: £23,427
Total Gross Expenditure: £9,961
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR24
Fin Period Start Date: 6 April 2023
Fin Period End Date: 5 April 2024
Ar Due Date: 5 February 2025
Ar Received Date: 13 October 2024
Total Gross Income: £21,622
Total Gross Expenditure: £19,852
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR23
Fin Period Start Date: 6 April 2022
Fin Period End Date: 5 April 2023
Ar Due Date: 5 February 2024
Ar Received Date: 25 October 2023
Total Gross Income: £16,653
Total Gross Expenditure: £17,019
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR22
Fin Period Start Date: 6 April 2021
Fin Period End Date: 5 April 2022
Ar Due Date: 5 February 2023
Ar Received Date: 9 March 2023
Total Gross Income: £10,057
Total Gross Expenditure: £5,208
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

07 Official extract

Charity Event History

Charity Name: RESTLESS LEGS SYNDROME-UK/EKBOM SYNDROME ASSOCIATION
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2011-03-09T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CONSTITUTION ADOPTED 30 AUGUST 2008 AS AMENDED 15 JANUARY 2011 as amended on 09 Oct 2021
Charitable Objects: THE CHARITY'S OBJECTS ARE TO PROMOTE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH OF PERSONS SUFFERING FROM RESTLESS LEGS/EKBOM SYNDROME, THEIR CARERS AND FAMILIES, FOR THE BENEFIT OF THE PUBLIC, PARTICULARLY BY NOT EXCLUSIVELY BY:1) PROVIDING RESPONSIBLE AND USEFUL INFORMATION AND SUPPORT ON THE ILLNESS AND RELATED AREAS;2) INCREASING AWARENESS OF THE CONDITION AND ITS EFFECTS WITHIN THE GENERAL PUBLIC AND AMONG THE MEDICAL PROFESSION;3) PROMOTING USEFUL RESEARCH INTO RESTLESS LEGS SYNDROME AND THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH
Area Of Benefit: NOT DEFINED

09 Official extract

Charity Other Names

Charity Name Id: 376849
Charity Name Type: Working name
Charity Name: RLS-UK/ESA

10 Official extract

Charity Policy

Policy Name: Financial reserves policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Conflicting interests

Policy Name: Risk management

Policy Name: Complaints policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Complaints handling

Policy Name: Social media policy and procedures