RETT UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Charitable company
Registered: 6 September 2010
Removed: Not supplied
Company number supplied: 07339522
Financial period: 1 April 2025 – 31 March 2026
Latest income: £558,170
Latest expenditure: £361,759
Gift Aid: Yes
Owns or uses land: Yes
In administration: No
Insolvent: No
CIO: No

Public contact address: VICTORY HOUSE, CHOBHAM STREET, LUTON, LU1 3BS

Website recorded by the regulator: www.rettuk.org (displayed as text)

02 Activities

What the charity does

Rett syndrome is the most common cause of profound and multiple disability in females. A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected. We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 April 2025
Fin Period End Date: 31 March 2026
Ar Cycle Reference: AR26
Reporting Due Date: 31 January 2027
Date Annual Return Received: 13 October 2026
Date Accounts Received: 13 October 2026
Total Gross Income: £558,170
Total Gross Expenditure: £361,759

Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 January 2026
Date Annual Return Received: 24 December 2025
Date Accounts Received: 24 December 2025
Total Gross Income: £341,168
Total Gross Expenditure: £416,710

Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 January 2025
Date Annual Return Received: 5 December 2024
Date Accounts Received: 5 December 2024
Total Gross Income: £305,881
Total Gross Expenditure: £318,560

Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 January 2024
Date Annual Return Received: 30 November 2023
Date Accounts Received: 30 November 2023
Total Gross Income: £365,072
Total Gross Expenditure: £353,849

Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 January 2023
Date Annual Return Received: 15 November 2022
Date Accounts Received: 15 November 2022
Total Gross Income: £319,758
Total Gross Expenditure: £311,442

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR26
Fin Period Start Date: 1 April 2025
Fin Period End Date: 31 March 2026
Ar Due Date: 31 January 2027
Ar Received Date: 13 October 2026
Total Gross Income: £558,170
Total Gross Expenditure: £361,759
Grant Making Is Main Activity: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 24 December 2025
Total Gross Income: £341,168
Total Gross Expenditure: £416,710
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 5 December 2024
Total Gross Income: £305,881
Total Gross Expenditure: £318,560
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR23
Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Due Date: 31 January 2024
Ar Received Date: 30 November 2023
Total Gross Income: £365,072
Total Gross Expenditure: £353,849
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 11

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR22
Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Due Date: 31 January 2023
Ar Received Date: 15 November 2022
Total Gross Income: £319,758
Total Gross Expenditure: £311,442
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 3

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR26
Fin Period Start Date: 1 April 2025
Fin Period End Date: 31 March 2026
Ar Due Date: 31 January 2027
Ar Received Date: 13 October 2026
Income Donations And Legacies: 553636
Income Other Trading Activities: 3823
Income Charitable Activities: 0
Income Investments: 711
Income Other: 0
Income Total Income And Endowments: 558170
Income Legacies: 285710
Income Endowments: 115078
Expenditure Raising Funds: £96,222
Expenditure Charitable Expenditure: £265,537
Expenditure Other: 0
Expenditure Total: 361759
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 1680
Expenditure Support Costs: 0
Expenditure Depreciation: 0
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £316,736
Assets Total Fixed: 0
Assets Own Use: 0
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £318,416
Assets Total Liabilities: £1,680
Assets Current Investment: 0
Assets Total Assets And Liabilities: £316,736
Creditors One Year Total Current: 1680
Creditors Falling Due After One Year: 0
Assets Cash: £303,298
Funds Endowment: 0
Funds Unrestricted: 316736
Funds Restricted: 0
Funds Total: 316736
Count Employees: 5
Charity Only Accounts: Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

07 Official extract

Charity Classification

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

08 Official extract

Charity Event History

Charity Name: RETT UK
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2011-05-03T00:00:00
Assoc Organisation Number: 327309
Assoc Registered Charity Number: 327309
Assoc Charity Name: RETT SYNDROME ASSOCIATION UK

Charity Name: RETT UK
Charity Event Order: 3
Event Type: Asset transfer in
Date Of Event: 2017-04-19T00:00:00
Reason: Transfer of funds
Assoc Organisation Number: 1000212
Assoc Registered Charity Number: 1000212
Assoc Charity Name: MARLAIS TRUST FUND FOR THE RELIEF OF RETT SYNDROME AND SPINA BIFIDA AND HYDROCEPHALYS

Charity Name: RETT UK
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2010-09-06T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 9 AUGUST 2010.AS AMENDED BY SPECIAL RESOLUTION(S) DATED 15 OCT 2016 as amended on 07 Jun 2025 as amended on 15 Oct 2016 as amended on 13 Oct 2018 as amended on 25 Sept 2025
Charitable Objects: TO PROMOTE THE CARE, WELFARE, TREATMENT AND ADVANCEMENT OF PEOPLE WITH RETT SYNDROME.TO SUPPORT, SUSTAIN AND ASSIST THOSE CARING FOR PEOPLE WITH RETT SYNDROME.TO PROMOTE GREATER UNDERSTANDING OF RETT SYNDROME.TO PROMOTE RESEARCH INTO THE CAUSES, EFFECTS AND METHODS OF PREVENTING RETT SYNDROME, AND TO DISSEMINATE OR PUBLISH THE RESULTS OF SUCH RESEARCH.
Area Of Benefit: UNDEFINED.

10 Official extract

Charity Policy

Policy Name: Bullying and harassment policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Paying staff

Policy Name: Complaints handling

Policy Name: Trustee expenses policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Volunteer management

Policy Name: Internal risk management policy and procedures

Policy Name: Conflicting interests

Policy Name: Investment

Policy Name: Risk management

Policy Name: Complaints policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Serious incident reporting policy and procedures