NOONAN SYNDROME ASSOCIATION — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Other
Registered: 3 March 2011
Removed: Not supplied
Financial period: 1 April 2024 – 31 March 2025
Latest income: £48,067
Latest expenditure: £81,393
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: The Marshal Room, 23-25 Old Row, Whalley Road, Barrow, Clitheroe, Lancashire, BB7 9AZ

Website recorded by the regulator: www.noonansyndrome.org.uk (displayed as text)

02 Activities

What the charity does

The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 January 2026
Date Annual Return Received: 28 January 2026
Date Accounts Received: 28 January 2026
Total Gross Income: £48,067
Total Gross Expenditure: £81,393

Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 January 2025
Date Annual Return Received: 30 January 2025
Date Accounts Received: 30 January 2025
Total Gross Income: £30,427
Total Gross Expenditure: £48,332

Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 January 2024
Date Annual Return Received: 31 January 2024
Date Accounts Received: 31 January 2024
Total Gross Income: £59,898
Total Gross Expenditure: £80,474

Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 January 2023
Date Annual Return Received: 27 January 2023
Date Accounts Received: 27 January 2023
Total Gross Income: £63,260
Total Gross Expenditure: £39,070

Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 January 2022
Date Annual Return Received: 27 January 2022
Date Accounts Received: 27 January 2022
Total Gross Income: £66,296
Total Gross Expenditure: £32,321

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 28 January 2026
Total Gross Income: £48,067
Total Gross Expenditure: £81,393
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 30 January 2025
Total Gross Income: £30,427
Total Gross Expenditure: £48,332
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Due Date: 31 January 2024
Ar Received Date: 31 January 2024
Total Gross Income: £59,898
Total Gross Expenditure: £80,474
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Due Date: 31 January 2023
Ar Received Date: 27 January 2023
Total Gross Income: £63,260
Total Gross Expenditure: £39,070
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Due Date: 31 January 2022
Ar Received Date: 27 January 2022
Total Gross Income: £66,296
Total Gross Expenditure: £32,321
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 26

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name: NOONAN SYNDROME ASSOCIATION
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2011-03-03T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CONSTITUTION 07 JAN 2011 AS AMENDED 1 MARCH 2011 as amended on 27 Apr 2021
Charitable Objects: THE RELIEF OF ALL PERSONS AFFECTED BY NOONAN SYNDROME BY ALL OR ANY OF THE FOLLOWING MEANS:-1) THE FACILITATION AND PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, DIAGNOSIS, TREATMENT AND RELIEF OF NOONAN SYNDROME WITH THE USEFUL RESULTS OF THE RESEARCH BEING DISSEMINATED FOR THE BENEFIT OF THE PUBLIC;2) THE PROVISION OF FACILITIES, FINANCIAL AID, ADVICE AND SUPPORT SERVICES FOR PERSONS SUFFERING FROM NOONAN SYNDROME, THEIR FAMILIES, DEPENDANTS AND CARERS, INCLUDING THE FAMILIES AND DEPENDANTS OF THOSE WHO HAVE DIED FROM NOONAN SYNDROME AND PREGNANT MOTHERS WHERE IT IS BELIEVED THAT THEIR CHILD IS IN DANGER OF BEING BORN WITH NOONAN SYNDROME; AND3) BY ADVANCING THE EDUCATION OF THE PUBLIC IN RELATION TO THE EFFECTS OF NOONAN SYNDROME BY COMMUNICATING REPORTS AND DISSEMINATING INFORMATION BY ANY MEANS OR MEDIA CONCERNING RESEARCH WORK AND STUDIES UNDERTAKEN BY OR ON BEHALF OF THE CHARITY.

09 Official extract

Charity Other Names

Charity Name Id: 443801
Charity Name Type: Working name
Charity Name: NSA

10 Official extract

Charity Policy

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Investment

Policy Name: Internal risk management policy and procedures

Policy Name: Risk management

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Complaints handling

Policy Name: Conflicting interests

Policy Name: Social media policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Paying staff

Policy Name: Volunteer management

Policy Name: Serious incident reporting policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Complaints policy and procedures