ACTION FOR A-T — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Trust
Registered: 6 January 2012
Removed: Not supplied
Financial period: 1 January 2025 – 31 December 2025
Latest income: £905,048
Latest expenditure: £444,162
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: ACTION FOR A-T, ARUNA HOUSE, 2 KINGS ROAD, HASLEMERE, SURREY, GU27 2QA

Website recorded by the regulator: www.actionforAT.org (displayed as text)

02 Activities

What the charity does

The chairty's main aim is the identification and funding of high quality peer-reviewed medical research into finding a cure or treatment that will delay or prevent the disabling effects of Ataxia-Telangiectasia ("A-T"). Additionally the charity works to raise public awareness of A-T and to build collaborative partnerships with other organisations to help advance the understanding of A-T.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026
Date Annual Return Received: 1 June 2026
Date Accounts Received: 1 June 2026
Total Gross Income: £905,048
Total Gross Expenditure: £444,162

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 27 May 2025
Date Accounts Received: 27 May 2025
Total Gross Income: £1,168,113
Total Gross Expenditure: £1,846,493

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 9 May 2024
Date Accounts Received: 9 May 2024
Total Gross Income: £1,092,490
Total Gross Expenditure: £384,330

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 9 May 2023
Date Accounts Received: 9 May 2023
Total Gross Income: £949,804
Total Gross Expenditure: £1,106,145

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 30 May 2022
Date Accounts Received: 30 May 2022
Total Gross Income: £593,451
Total Gross Expenditure: £440,191

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 1 June 2026
Total Gross Income: £905,048
Total Gross Expenditure: £444,162
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 70001 80000: 1
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 27 May 2025
Total Gross Income: £1,168,113
Total Gross Expenditure: £1,846,493
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 70001 80000: 1
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 9 May 2024
Total Gross Income: £1,092,490
Total Gross Expenditure: £384,330
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 70001 80000: 1
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 9 May 2023
Total Gross Income: £949,804
Total Gross Expenditure: £1,106,145
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 70001 80000: 1
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 30 May 2022
Total Gross Income: £593,451
Total Gross Expenditure: £440,191
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: Yes
Count Govt Grants: £3
Income From Government Grants: £13,950
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 3

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 1 June 2026
Income Donations And Legacies: 350356
Income Other Trading Activities: 481627
Income Charitable Activities: 0
Income Investments: 73065
Income Other: 0
Income Total Income And Endowments: 905048
Income Legacies: 0
Income Endowments: 0
Expenditure Raising Funds: £237,010
Expenditure Charitable Expenditure: £207,152
Expenditure Other: 0
Expenditure Total: 444162
Expenditure Investment Management: 0
Expenditure Grants Institution: 116441
Expenditure Governance: 20637
Expenditure Support Costs: 132531
Expenditure Depreciation: 0
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £150,000
Assets Total Fixed: 216
Assets Own Use: 216
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,489,210
Assets Total Liabilities: £1,792,195
Assets Current Investment: 0
Assets Total Assets And Liabilities: £697,231
Creditors One Year Total Current: 519943
Creditors Falling Due After One Year: 1272252
Assets Cash: £2,467,480
Funds Endowment: 0
Funds Unrestricted: 688461
Funds Restricted: 8770
Funds Total: 697231
Count Employees: 2
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 27 May 2025
Income Donations And Legacies: 593000
Income Other Trading Activities: 480466
Income Charitable Activities: 0
Income Investments: 94647
Income Other: 0
Income Total Income And Endowments: 1168113
Income Legacies: 0
Income Endowments: 0
Expenditure Raising Funds: £241,387
Expenditure Charitable Expenditure: £1,605,106
Expenditure Other: 0
Expenditure Total: 1846493
Expenditure Investment Management: 0
Expenditure Grants Institution: 1584289
Expenditure Governance: 20817
Expenditure Support Costs: 126205
Expenditure Depreciation: 2142
Gain Loss Investment: 94647
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £141,318
Assets Total Fixed: 216
Assets Own Use: 216
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,396,141
Assets Total Liabilities: £2,160,012
Assets Current Investment: 0
Assets Total Assets And Liabilities: £236,345
Creditors One Year Total Current: 815714
Creditors Falling Due After One Year: 1344298
Assets Cash: £2,316,849
Funds Endowment: 0
Funds Unrestricted: 139484
Funds Restricted: 96861
Funds Total: 236345
Count Employees: 2
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 9 May 2024
Income Donations And Legacies: 514985
Income Other Trading Activities: 0
Income Charitable Activities: 549677
Income Investments: 27828
Income Other: 0
Income Total Income And Endowments: 1092490
Income Legacies: 0
Income Endowments: 0
Expenditure Raising Funds: £244,903
Expenditure Charitable Expenditure: £139,427
Expenditure Other: 0
Expenditure Total: 384330
Expenditure Investment Management: 0
Expenditure Grants Institution: 74683
Expenditure Governance: 20239
Expenditure Support Costs: 122818
Expenditure Depreciation: 0
Gain Loss Investment: 27828
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £914,725
Assets Total Fixed: 216
Assets Own Use: 216
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £1,990,644
Assets Total Liabilities: £1,076,135
Assets Current Investment: 0
Assets Total Assets And Liabilities: £914,725
Creditors One Year Total Current: 422367
Creditors Falling Due After One Year: 653768
Assets Cash: £1,929,861
Funds Endowment: 0
Funds Unrestricted: 876704
Funds Restricted: 38021
Funds Total: 914725
Count Employees: 3
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 9 May 2023
Income Donations And Legacies: 377170
Income Other Trading Activities: 0
Income Charitable Activities: 559411
Income Investments: 10043
Income Other: 3180
Income Total Income And Endowments: 949804
Income Legacies: 30000
Income Endowments: 0
Expenditure Raising Funds: £282,301
Expenditure Charitable Expenditure: £823,844
Expenditure Other: 0
Expenditure Total: 1106145
Expenditure Investment Management: 0
Expenditure Grants Institution: 804239
Expenditure Governance: 19605
Expenditure Support Costs: 120518
Expenditure Depreciation: 108
Gain Loss Investment: 10043
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £226,804
Assets Total Fixed: 216
Assets Own Use: 216
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £1,653,186
Assets Total Liabilities: £1,426,598
Assets Current Investment: 0
Assets Total Assets And Liabilities: £226,804
Creditors One Year Total Current: 491139
Creditors Falling Due After One Year: 935459
Assets Cash: £1,626,967
Funds Endowment: 0
Funds Unrestricted: 141318
Funds Restricted: 85486
Funds Total: 226804
Count Employees: 2
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 30 May 2022
Income Donations And Legacies: 234149
Income Other Trading Activities: 0
Income Charitable Activities: 305409
Income Investments: 11452
Income Other: 42441
Income Total Income And Endowments: 593451
Income Legacies: 0
Income Endowments: 0
Expenditure Raising Funds: £82,281
Expenditure Charitable Expenditure: £357,910
Expenditure Other: 0
Expenditure Total: 440191
Expenditure Investment Management: 0
Expenditure Grants Institution: 262572
Expenditure Governance: 19281
Expenditure Support Costs: 116211
Expenditure Depreciation: 2034
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: -2034
Gain Loss Other: 0
Reserves: £317,819
Assets Total Fixed: 324
Assets Own Use: 324
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £1,418,411
Assets Total Liabilities: £1,035,590
Assets Current Investment: 37139
Assets Total Assets And Liabilities: £383,145
Creditors One Year Total Current: 448986
Creditors Falling Due After One Year: 586604
Assets Cash: £1,371,740
Funds Endowment: 0
Funds Unrestricted: 317819
Funds Restricted: 65326
Funds Total: 383145
Count Employees: 2
Charity Only Accounts: Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

07 Official extract

Charity Classification

Classification Code: 301
Classification Type: How
Classification Description: Makes Grants To Individuals

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

08 Official extract

Charity Event History

Charity Name: ACTION FOR A-T
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2012-01-06T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description: TRUST DEED DATED 06/01/2012AS AMENDED ON 02/02/2012
Charitable Objects: THE OBJECTS OF THE CHARITY (THE OBJECTS) ARE THE RELIEF OF SICKNESS AND THE PROMOTION AND PRESERVATION OF GOOD HEALTH IN THE UNITED KINGDOM, IN PARTICULAR BUT NOT EXCLUSIVELY, BY:A) THE FUNDING AND PROMOTION OF MEDICAL AND/OR SCIENTIFIC RESEARCH INTO ATAXIA TELANGIECTASIA (A-T) WITH THE AIM OF DEVELOPING A CURE FOR THE CONDITION AND TO IDENTIFY LINKS BETWEEN A-T AND OTHER GENETIC DISEASES OR CONDITIONS AND TO PUBLISH THE USEFUL RESULTS ARISING FROM SUCH RESEARCH;B) PREVENTING A-T, INCLUDING THROUGH, BUT NOT LIMITED TO, ANTENATAL SCREENING FOR A-T;C) THE PROVISION OF INFORMATION, ADVICE, SUPPORT AND WHERE, APPROPRIATE, FINANCIAL ASSISTANCE TO ANYONE IN THE UK AFFECTED BY A-T (INCLUDING, WHERE APPROPRIATE, THE FUNDING OF EQUIPMENT WHICH CAN BE USED FOR THE DIAGNOSIS OR DETECTION OF A-T OR FOR TREATING, MITIGATING OR RELIEVING THE SYMPTOMS OF A-T); AND D) ADVANCING THE EDUCATION OF THE PUBLIC ABOUT A-T.
Area Of Benefit: NATIONAL

10 Official extract

Charity Other Names

Charity Name Id: 514037
Charity Name Type: Previous name
Charity Name: THE EVIE READ CHARITABLE TRUST - ACTION FOR A-T

Charity Name Id: 514038
Charity Name Type: Previous name
Charity Name: ACTION FOR A-T

11 Official extract

Charity Policy

Policy Name: Bullying and harassment policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Investment

Policy Name: Conflicting interests

Policy Name: Complaints policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Complaints handling

Policy Name: Risk management

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Internal charity financial controls policy and procedures