BritDB

CCEW Charity Commission profile

ALPHA-1 UK SUPPORT GROUP

Registered charity 1146330 · organisation 5023755

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Other
Registered
12 March 2012
Removed
Not supplied
Financial period
1 April 2024 – 31 March 2025
Latest income
£24,757
Latest expenditure
£5,985
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: 27 OLD GLOUCESTER STREET, HOLBORN, LONDON, WC1N 3AX

Website recorded by the regulator: www.alpha1.org.uk (displayed as text)

02 Activities

What the charity does

We provide a support group and website focusing on news, events, information and how better to cope with Alpha-1 aiming towards improving quality of life. Organise social gatherings to educate and unite the Alpha-1 community. Produce, publish and distribute information booklets to advance understanding and awareness. Support research and campaign for better access to treatment.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
25 January 2026
Total Gross Income
£24,757
Total Gross Expenditure
£5,985
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
20 December 2024
Date Accounts Received
20 December 2024
Total Gross Income
£38,685
Total Gross Expenditure
£13,395
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
29 December 2023
Total Gross Income
£19,356
Total Gross Expenditure
£3,092
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
28 December 2022
Total Gross Income
£12,038
Total Gross Expenditure
£4,700
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
20 December 2021
Total Gross Income
£10,464
Total Gross Expenditure
£3,252

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
25 January 2026
Total Gross Income
£24,757
Total Gross Expenditure
£5,985
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
3
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
20 December 2024
Total Gross Income
£38,685
Total Gross Expenditure
£13,395
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
3
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
29 December 2023
Total Gross Income
£19,356
Total Gross Expenditure
£3,092
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
3
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
28 December 2022
Total Gross Income
£12,038
Total Gross Expenditure
£4,700
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
5
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
20 December 2021
Total Gross Income
£10,464
Total Gross Expenditure
£3,252
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
5

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
102
Classification Type
What
Classification Description
Education/training

07 Official extract

Charity Event History

Charity Name
ALPHA-1 UK SUPPORT GROUP
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2012-03-12T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CONSTITUTION ADOPTED 16/02/2012 as amended on 24 Sep 2017
Charitable Objects
(1) TO RELIEVE THE NEEDS OF INDIVIDUALS SUFFERING FROM THE GENETIC CONDITION ALPHA-1 ANTITRYPSIN DEFICIENCY (AATD), THEIR FAMILIES, CARERS AND FRIENDS, IN PARTICULAR, BUT NOT EXCLUSIVELY BY:A) PROVIDING ADVICE, SUPPORT AND EQUIPMENT WITH A VIEW TO IMPROVE THE QUALITY OF LIFE OF THOSE SUFFERING WITH AATD, THEIR FAMILIES, CARERS AND FRIENDS;B) ADVANCING AWARENESS AND KNOWLEDGE OF AATD, IN PARTICULAR AMONG AFFECTED PATIENTS AND MEDICAL PROFESSIONS AND HEALTHCARE PROVIDER ORGANISATIONS;C) FOSTERING IMPROVEMENTS IN ACCESS AND EQUALITY OF ACCESS TO CLINICAL EXPERTISE AND OPTIMAL DISEASE MANAGEMENT AND TREATMENTS FOR AATD;D) SUPPORTING INITIATIVES AIMED AT DEVELOPMENT, INTRODUCTION AND WIDESPREAD ADOPTION OF NOVEL THERAPIES FOR AATD, INCLUDING RESEARCH.E) WORKING COLLABORATIVELY WITH OUR MEMBERS AND RELEVANT EXTERNAL INDIVIDUALS, GROUPS OF INDIVIDUALS, ORGANISATIONS AND INSTITUTIONS IN ORDER TO ACHIEVE A) - D).
Area Of Benefit
UNDEFINED, IN PRINCIPLE NATIONAL

09 Official extract

Charity Other Names

Charity Name Id
656911
Charity Name Type
Working name
Charity Name
Alpha-1 UK

10 Official extract

Charity Policy

Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Trustee expenses policy and procedures