CCEW Charity Commission profile

CILIOPATHY ALLIANCE

Registered charity 1148034 · organisation 5025546

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
10 July 2012
Removed
Not supplied
Company number supplied
07842342
Financial period
1 April 2024 – 31 March 2025
Latest income
£1,689
Latest expenditure
£10,352
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: INSTITUTE OF CHILD HEALTH, 30 GUILDFORD STREET, LONDON, WC1N 1EH

Website recorded by the regulator: www.ciliopathyalliance.org (displayed as text)

02 Activities

What the charity does

Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
3 November 2025
Total Gross Income
£1,689
Total Gross Expenditure
£10,352
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
21 November 2024
Total Gross Income
£1,201
Total Gross Expenditure
£2,147
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
16 February 2024
Total Gross Income
£398
Total Gross Expenditure
£1,950
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
3 December 2022
Total Gross Income
£6,134
Total Gross Expenditure
£401
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
5 December 2021
Total Gross Income
£24,148
Total Gross Expenditure
£357

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
5 December 2021
Total Gross Income
£24,148
Total Gross Expenditure
£357
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
3

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
309
Classification Type
How
Classification Description
Acts As An Umbrella Or Resource Body
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
205
Classification Type
Who
Classification Description
Other Charities Or Voluntary Bodies
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name
CILIOPATHY ALLIANCE
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2012-07-10T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES INCORPORATED 10/11/2011AS REGISTERED AT COMPANIES HOUSE ON 28/06/2012
Charitable Objects
TO RELIEVE SICKNESS AND PROMOTE AND PROTECT GOOD HEALTH OF CHILDREN AND ADULTS LIVING WITH CILIOPATHIES, WITH A VIEW TO IMPROVING THEIR CONDITIONS OF LIFE.

09 Official extract

Charity Policy

Policy Name
Conflicting interests