CCEW Charity Commission profile

DUCHENNE UK

Registered charity 1147094 · organisation 5027931

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
2 May 2012
Removed
Not supplied
Company number supplied
08030768
Financial period
31 December 2023 – 30 December 2024
Latest income
£3,102,031
Latest expenditure
£3,473,904
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Unit G.24, Shepherd's Building, Charecroft Way, Hammersmith, London

Website recorded by the regulator: www.duchenneuk.org (displayed as text)

02 Activities

What the charity does

Duchenne UK's mission is to find a cure for Duchenne Muscular Dystrophy (DMD). Duchenne UK also lobbies government and regulators in support of it's goal and raises public awareness through the media and through events. Duchenne UK provide services and promote opportunities to enable individuals suffering with DMD and their families to live as independently as possible.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
15 July 2025
Date Accounts Received
15 July 2025
Total Gross Income
£3,102,031
Total Gross Expenditure
£3,473,904
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
8 October 2024
Date Accounts Received
8 October 2024
Total Gross Income
£3,940,704
Total Gross Expenditure
£2,994,201
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
31 October 2023
Date Accounts Received
31 October 2023
Total Gross Income
£3,757,736
Total Gross Expenditure
£2,352,988
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 October 2022
Date Annual Return Received
30 October 2022
Date Accounts Received
2 November 2022
Total Gross Income
£1,619,240
Total Gross Expenditure
£2,071,228
Fin Period Start Date
1 May 2020
Fin Period End Date
31 December 2020
Ar Cycle Reference
AR20
Reporting Due Date
31 October 2021
Date Annual Return Received
27 October 2021
Date Accounts Received
27 October 2021
Total Gross Income
£1,637,377
Total Gross Expenditure
£1,881,893

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
15 July 2025
Total Gross Income
£3,102,031
Total Gross Expenditure
£3,473,904
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£2
Income From Government Grants
£204,012
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 70001 80000
3
Count Salary Band 80001 90000
0
Count Salary Band 90001 100000
0
Count Salary Band 100001 110000
0
Count Salary Band 110001 120000
0
Count Salary Band 120001 130000
0
Count Salary Band 130001 140000
0
Count Salary Band 140001 150000
0
Count Salary Band 150001 200000
0
Count Salary Band 200001 250000
0
Count Salary Band 250001 300000
0
Count Salary Band 300001 350000
0
Count Salary Band 350001 400000
0
Count Salary Band 400001 450000
0
Count Salary Band 450001 500000
0
Count Salary Band Over 500000
0
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
8 October 2024
Total Gross Income
£3,940,704
Total Gross Expenditure
£2,994,201
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£5,011
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 70001 80000
0
Count Salary Band 80001 90000
1
Count Salary Band 90001 100000
0
Count Salary Band 100001 110000
0
Count Salary Band 110001 120000
0
Count Salary Band 120001 130000
0
Count Salary Band 130001 140000
0
Count Salary Band 140001 150000
0
Count Salary Band 150001 200000
0
Count Salary Band 200001 250000
0
Count Salary Band 250001 300000
0
Count Salary Band 300001 350000
0
Count Salary Band 350001 400000
0
Count Salary Band 400001 450000
0
Count Salary Band 450001 500000
0
Count Salary Band Over 500000
0
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR22
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
31 October 2023
Total Gross Income
£3,757,736
Total Gross Expenditure
£2,352,988
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
Yes
Count Govt Grants
£1
Income From Government Grants
£104,895
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 80001 90000
1
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR21
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Due Date
31 October 2022
Ar Received Date
30 October 2022
Total Gross Income
£1,619,240
Total Gross Expenditure
£2,071,228
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR20
Fin Period Start Date
1 May 2020
Fin Period End Date
31 December 2020
Ar Due Date
31 October 2021
Ar Received Date
27 October 2021
Total Gross Income
£1,637,377
Total Gross Expenditure
£1,881,893
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
15 July 2025
Income Donations And Legacies
2704595
Income Other Trading Activities
199500
Income Charitable Activities
0
Income Investments
197936
Income Other
0
Income Total Income And Endowments
3102031
Income Legacies
34875
Income Endowments
0
Expenditure Raising Funds
£417,525
Expenditure Charitable Expenditure
£3,056,379
Expenditure Other
0
Expenditure Total
3473904
Expenditure Investment Management
3745
Expenditure Grants Institution
0
Expenditure Governance
10200
Expenditure Support Costs
338075
Expenditure Depreciation
2302
Gain Loss Investment
28454
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£836,997
Assets Total Fixed
38836
Assets Own Use
2017
Assets Long Term Investment
36819
Defined Benefit Pension Scheme
0
Assets Other Assets
£6,449,137
Assets Total Liabilities
£2,496,487
Assets Current Investment
3159340
Assets Total Assets And Liabilities
£3,991,486
Creditors One Year Total Current
1456887
Creditors Falling Due After One Year
1039600
Assets Cash
£2,873,349
Funds Endowment
0
Funds Unrestricted
1276702
Funds Restricted
2714784
Funds Total
3991486
Count Employees
17
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
8 October 2024
Income Donations And Legacies
1569455
Income Other Trading Activities
0
Income Charitable Activities
2196847
Income Investments
174402
Income Other
0
Income Total Income And Endowments
3940704
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£388,075
Expenditure Charitable Expenditure
£2,606,126
Expenditure Other
0
Expenditure Total
2994201
Expenditure Investment Management
3495
Expenditure Grants Institution
0
Expenditure Governance
7200
Expenditure Support Costs
284632
Expenditure Depreciation
2781
Gain Loss Investment
-71973
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£1,078,419
Assets Total Fixed
58670
Assets Own Use
2886
Assets Long Term Investment
55784
Defined Benefit Pension Scheme
0
Assets Other Assets
£6,098,929
Assets Total Liabilities
£1,803,728
Assets Current Investment
3067532
Assets Total Assets And Liabilities
£4,353,871
Creditors One Year Total Current
1342013
Creditors Falling Due After One Year
461715
Assets Cash
£2,558,199
Funds Endowment
0
Funds Unrestricted
1137089
Funds Restricted
3216782
Funds Total
4353871
Count Employees
15
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR22
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
31 October 2023
Income Donations And Legacies
1589191
Income Other Trading Activities
0
Income Charitable Activities
2090886
Income Investments
77659
Income Other
0
Income Total Income And Endowments
3757736
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£366,423
Expenditure Charitable Expenditure
£1,986,565
Expenditure Other
0
Expenditure Total
2352988
Expenditure Investment Management
3527
Expenditure Grants Institution
0
Expenditure Governance
6000
Expenditure Support Costs
125560
Expenditure Depreciation
2261
Gain Loss Investment
-214911
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£665,628
Assets Total Fixed
55300
Assets Own Use
3864
Assets Long Term Investment
51436
Defined Benefit Pension Scheme
0
Assets Other Assets
£5,821,243
Assets Total Liabilities
£3,357,530
Assets Current Investment
3079754
Assets Total Assets And Liabilities
£2,519,013
Creditors One Year Total Current
2687124
Creditors Falling Due After One Year
670406
Assets Cash
£1,886,523
Funds Endowment
0
Funds Unrestricted
717064
Funds Restricted
1801949
Funds Total
2519013
Count Employees
12
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR21
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Due Date
31 October 2022
Ar Received Date
30 October 2022
Income Donations And Legacies
1221800
Income Other Trading Activities
0
Income Charitable Activities
379824
Income Investments
17616
Income Other
0
Income Total Income And Endowments
1619240
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£245,417
Expenditure Charitable Expenditure
£1,825,811
Expenditure Other
0
Expenditure Total
2071228
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
4200
Expenditure Support Costs
137613
Expenditure Depreciation
1377
Gain Loss Investment
-517841
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£128,372
Assets Total Fixed
227100
Assets Own Use
2755
Assets Long Term Investment
224345
Defined Benefit Pension Scheme
0
Assets Other Assets
£4,376,274
Assets Total Liabilities
£3,274,198
Assets Current Investment
3069267
Assets Total Assets And Liabilities
£1,329,176
Creditors One Year Total Current
2786523
Creditors Falling Due After One Year
487675
Assets Cash
£1,257,545
Funds Endowment
0
Funds Unrestricted
352718
Funds Restricted
976458
Funds Total
1329176
Count Employees
6
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR20
Fin Period Start Date
1 May 2020
Fin Period End Date
31 December 2020
Ar Due Date
31 October 2021
Ar Received Date
27 October 2021
Income Donations And Legacies
1537073
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
100304
Income Other
0
Income Total Income And Endowments
1637377
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£89,197
Expenditure Charitable Expenditure
£1,792,696
Expenditure Other
0
Expenditure Total
1881893
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
4200
Expenditure Support Costs
91878
Expenditure Depreciation
0
Gain Loss Investment
498003
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£145,764
Assets Total Fixed
813612
Assets Own Use
2159
Assets Long Term Investment
811453
Defined Benefit Pension Scheme
0
Assets Other Assets
£5,505,965
Assets Total Liabilities
£4,020,572
Assets Current Investment
3554997
Assets Total Assets And Liabilities
£2,299,005
Creditors One Year Total Current
2686981
Creditors Falling Due After One Year
1333591
Assets Cash
£1,307,609
Funds Endowment
0
Funds Unrestricted
957217
Funds Restricted
1341788
Funds Total
2299005
Count Employees
7
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations

08 Official extract

Charity Event History

Charity Name
DUCHENNE UK
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2012-05-02T00:00:00
Charity Name
DUCHENNE UK
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2018-11-09T00:00:00
Reason
Removed by application
Assoc Organisation Number
5082515
Assoc Registered Charity Number
1170531
Assoc Charity Name
HOPE FOR GABRIEL

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES INCORPORATED 14 APR 2012AS AMENDED BY CERTIFICATE OF INCORPORATION ON CHANGE OF NAME DATED 25 APR 2016
Charitable Objects
TO PRESERVE AND PROTECT THE HEALTH OF CHILDREN AND ADULTS WITH DUCHENNE MUSCULAR DYSTROPHY, BY PROVIDING FUNDING FOR SUPPORT AND RESEARCH INTO TREATMENTS AND CURES.TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO DUCHENNE MUSCULAR DYSTROPHY BY DISSEMINATING INFORMATION ON THE DISEASE AND ITS TREATMENTS AND CURES.

10 Official extract

Charity Other Names

Charity Name Id
521147
Charity Name Type
Previous name
Charity Name
THE DUCHENNE CHILDREN'S TRUST

11 Official extract

Charity Policy

Policy Name
Social media policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Complaints handling
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Complaints policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Conflicting interests
Policy Name
Investment
Policy Name
Trustee expenses policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Risk management
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Paying staff
Policy Name
Safeguarding policy and procedures
Policy Name
Serious incident reporting policy and procedures