01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Trust
- Registered
- 15 June 2012
- Removed
- Not supplied
- Financial period
- 2 March 2024 – 31 December 2024
- Latest income
- £142,840
- Latest expenditure
- £182,893
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: 1 Cumberland Road, Sale, M33 3FR
Website recorded by the regulator: www.fopfriends.com (displayed as text)
02 Activities
What the charity does
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 2 March 2024
- Fin Period End Date
- 31 December 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 31 October 2025
- Date Annual Return Received
- 27 October 2025
- Date Accounts Received
- 27 October 2025
- Total Gross Income
- £142,840
- Total Gross Expenditure
- £182,893
- Fin Period Start Date
- 2 March 2023
- Fin Period End Date
- 1 March 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 1 January 2025
- Date Annual Return Received
- 9 December 2024
- Date Accounts Received
- 9 December 2024
- Total Gross Income
- £83,617
- Total Gross Expenditure
- £58,322
- Fin Period Start Date
- 2 March 2022
- Fin Period End Date
- 1 March 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 1 January 2024
- Date Annual Return Received
- 1 December 2023
- Date Accounts Received
- 1 December 2023
- Total Gross Income
- £231,413
- Total Gross Expenditure
- £141,357
- Fin Period Start Date
- 2 March 2021
- Fin Period End Date
- 1 March 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 1 January 2023
- Date Annual Return Received
- 16 December 2022
- Date Accounts Received
- 16 December 2022
- Total Gross Income
- £245,252
- Total Gross Expenditure
- £162,748
- Fin Period Start Date
- 2 March 2020
- Fin Period End Date
- 1 March 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 1 January 2022
- Date Annual Return Received
- 20 December 2021
- Date Accounts Received
- 20 December 2021
- Total Gross Income
- £179,763
- Total Gross Expenditure
- £136,207
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 2 March 2024
- Fin Period End Date
- 31 December 2024
- Ar Due Date
- 31 October 2025
- Ar Received Date
- 27 October 2025
- Total Gross Income
- £142,840
- Total Gross Expenditure
- £182,893
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- Yes
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 2 March 2023
- Fin Period End Date
- 1 March 2024
- Ar Due Date
- 1 January 2025
- Ar Received Date
- 9 December 2024
- Total Gross Income
- £83,617
- Total Gross Expenditure
- £58,322
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- Yes
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 2 March 2022
- Fin Period End Date
- 1 March 2023
- Ar Due Date
- 1 January 2024
- Ar Received Date
- 1 December 2023
- Total Gross Income
- £231,413
- Total Gross Expenditure
- £141,357
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- Yes
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 2 March 2021
- Fin Period End Date
- 1 March 2022
- Ar Due Date
- 1 January 2023
- Ar Received Date
- 16 December 2022
- Total Gross Income
- £245,252
- Total Gross Expenditure
- £162,748
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- Yes
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- Yes
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 2 March 2020
- Fin Period End Date
- 1 March 2021
- Ar Due Date
- 1 January 2022
- Ar Received Date
- 20 December 2021
- Total Gross Income
- £179,763
- Total Gross Expenditure
- £136,207
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- Yes
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- Yes
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- United States
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 206
- Classification Type
- Who
- Classification Description
- Other Defined Groups
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 205
- Classification Type
- Who
- Classification Description
- Other Charities Or Voluntary Bodies
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 303
- Classification Type
- How
- Classification Description
- Provides Other Finance
07 Official extract
Charity Event History
- Charity Name
- FOP FRIENDS
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 2012-06-15T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- TRUST DEED DATED 01 MAR 2012
- Charitable Objects
- THE RELIEF OF DISTRESS AND SICKNESS FOR THOSE AFFECTED BY FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) A TRAGIC, DEGENERATIVE AND DEBILITATING CONDITION AND TO IMPROVE THE LIVES OF SUFFERERS AND THEIR FAMILIES.TO RAISE PUBLIC AWARENESS AND UNDERSTANDING OF FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) AND TO PROMOTE EDUCATION AND RESEARCH INTO THE STUDY AND CURE OF FOP AND RELATED CONDITIONS.TO SUPPORT CHARITIES AND ORGANISATIONS UNDERTAKING CHARITABLE ACTIVITIES IN BOTH THE UK AND ABROAD WHO FUND RESEARCH, PROVIDE HELP, SUPPORT, CARE AND TREATMENT FOR PEOPLE AFFECTED BY FOP AND RELATED CONDITIONS.TO SUPPORT ORGANISATIONS RESEARCHING TREATMENTS AND A CURE FOR FOP AND RELATED CONDITIONS.
09 Official extract
Charity Other Names
- Charity Name Id
- 522593
- Charity Name Type
- Previous name
- Charity Name
- FOP FRIENDS OF OLIVER
- Charity Name Id
- 539299
- Charity Name Type
- Previous name
- Charity Name
- FRIENDS OF OLIVER
- Charity Name Id
- 539300
- Charity Name Type
- Working name
- Charity Name
- FOP ACTION
- Charity Name Id
- 539298
- Charity Name Type
- Previous name
- Charity Name
- FOP ACTION
- Charity Name Id
- 522594
- Charity Name Type
- Previous name
- Charity Name
- FRIENDS OF OLIVER
- Charity Name Id
- 548446
- Charity Name Type
- Working name
- Charity Name
- FOP FRIENDS OF OLIVER
10 Official extract
Charity Policy
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Complaints handling
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Social media policy and procedures
- Policy Name
- Paying staff
- Policy Name
- Complaints policy and procedures
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Conflicting interests
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Safeguarding vulnerable beneficiaries