BEACON: FOR RARE DISEASES LTD — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Charitable company
Registered: 7 November 2012
Removed: Not supplied
Company number supplied: 08174973
Financial period: 1 February 2024 – 31 January 2025
Latest income: £691,035
Latest expenditure: £661,717
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: 66 DEVONSHIRE ROAD, CAMBRIDGE, CB1 2BL

Website recorded by the regulator: www.rarebeacon.org (displayed as text)

02 Activities

What the charity does

Findacure works to:Empower patient groups to build their patient community, develop as a charity, and drive treatment research and development.Promote collaboration between rare disease stakeholders to facilitate treatment development for all.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 February 2024
Fin Period End Date: 31 January 2025
Ar Cycle Reference: AR25
Reporting Due Date: 30 November 2025
Date Annual Return Received: 14 November 2025
Date Accounts Received: 14 November 2025
Total Gross Income: £691,035
Total Gross Expenditure: £661,717

Fin Period Start Date: 1 February 2023
Fin Period End Date: 31 January 2024
Ar Cycle Reference: AR24
Reporting Due Date: 30 November 2024
Date Annual Return Received: 20 November 2024
Date Accounts Received: 20 November 2024
Total Gross Income: £523,301
Total Gross Expenditure: £478,828

Fin Period Start Date: 1 February 2022
Fin Period End Date: 31 January 2023
Ar Cycle Reference: AR23
Reporting Due Date: 30 November 2023
Date Annual Return Received: 28 November 2023
Date Accounts Received: 28 November 2023
Total Gross Income: £324,211
Total Gross Expenditure: £389,510

Fin Period Start Date: 1 February 2021
Fin Period End Date: 31 January 2022
Ar Cycle Reference: AR22
Reporting Due Date: 30 November 2022
Date Annual Return Received: 10 November 2022
Date Accounts Received: 10 November 2022
Total Gross Income: £269,865
Total Gross Expenditure: £318,343

Fin Period Start Date: 1 February 2020
Fin Period End Date: 31 January 2021
Ar Cycle Reference: AR21
Reporting Due Date: 30 November 2021
Date Annual Return Received: 22 November 2021
Date Accounts Received: 22 November 2021
Total Gross Income: £324,970
Total Gross Expenditure: £196,149

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 February 2024
Fin Period End Date: 31 January 2025
Ar Due Date: 30 November 2025
Ar Received Date: 14 November 2025
Total Gross Income: £691,035
Total Gross Expenditure: £661,717
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £1
Income From Government Grants: £157,351
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 February 2023
Fin Period End Date: 31 January 2024
Ar Due Date: 30 November 2024
Ar Received Date: 20 November 2024
Total Gross Income: £523,301
Total Gross Expenditure: £478,828
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £1
Income From Government Grants: £181,330
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 February 2021
Fin Period End Date: 31 January 2022
Ar Due Date: 30 November 2022
Ar Received Date: 10 November 2022
Total Gross Income: £269,865
Total Gross Expenditure: £318,343
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 February 2020
Fin Period End Date: 31 January 2021
Ar Due Date: 30 November 2021
Ar Received Date: 22 November 2021
Total Gross Income: £324,970
Total Gross Expenditure: £196,149
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 February 2024
Fin Period End Date: 31 January 2025
Ar Due Date: 30 November 2025
Ar Received Date: 14 November 2025
Income Donations And Legacies: 209815
Income Other Trading Activities: 53935
Income Charitable Activities: 427285
Income Investments: 0
Income Other: 0
Income Total Income And Endowments: 691035
Income Legacies: 0
Income Endowments: 0
Expenditure Raising Funds: £52,264
Expenditure Charitable Expenditure: £609,453
Expenditure Other: 0
Expenditure Total: 661717
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 4799
Expenditure Support Costs: 780
Expenditure Depreciation: 4202
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: -4202
Gain Loss Other: 0
Reserves: £64,225
Assets Total Fixed: 3741
Assets Own Use: 3741
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £221,902
Assets Total Liabilities: £4,841
Assets Current Investment: 0
Assets Total Assets And Liabilities: £220,802
Creditors One Year Total Current: 4841
Creditors Falling Due After One Year: 0
Assets Cash: £221,902
Funds Endowment: 0
Funds Unrestricted: 67966
Funds Restricted: 152836
Funds Total: 220802
Count Employees: 11
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 February 2023
Fin Period End Date: 31 January 2024
Ar Due Date: 30 November 2024
Ar Received Date: 20 November 2024
Income Donations And Legacies: 65213
Income Other Trading Activities: 55964
Income Charitable Activities: 402124
Income Investments: 0
Income Other: 0
Income Total Income And Endowments: 523301
Income Legacies: 0
Income Endowments: 0
Expenditure Raising Funds: £41,052
Expenditure Charitable Expenditure: £437,776
Expenditure Other: 0
Expenditure Total: 478828
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 4200
Expenditure Support Costs: 5375
Expenditure Depreciation: 3524
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: -3524
Gain Loss Other: 0
Reserves: £74,613
Assets Total Fixed: 4012
Assets Own Use: 4012
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £192,272
Assets Total Liabilities: £4,800
Assets Current Investment: 0
Assets Total Assets And Liabilities: £191,484
Creditors One Year Total Current: 4800
Creditors Falling Due After One Year: 0
Assets Cash: £192,272
Funds Endowment: 0
Funds Unrestricted: 74613
Funds Restricted: 116871
Funds Total: 191484
Count Employees: 10
Charity Only Accounts: Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

07 Official extract

Charity Classification

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 205
Classification Type: Who
Classification Description: Other Charities Or Voluntary Bodies

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 309
Classification Type: How
Classification Description: Acts As An Umbrella Or Resource Body

08 Official extract

Charity Event History

Charity Name: BEACON: FOR RARE DISEASES LTD
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2012-11-07T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description: MEMORANDUM AND ARTICLES INCORPORATED 10/08/2012 as amended on 14 Jan 2022
Charitable Objects: (1) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO FUNDAMENTAL DISEASES AND THEIR CAUSES, EFFECTS AND TREATMENTS; (2) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF FUNDAMENTAL DISEASES AND THEIR CARERS THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE; (3) TO SUPPORT RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF FUNDAMENTAL DISEASES AND THEIR APPLICATION TO COMMON DISEASES, AND DISSEMINATE THE USEFUL RESULTS THEREOF.
Area Of Benefit: NATIONAL

10 Official extract

Charity Other Names

Charity Name Id: 526475
Charity Name Type: Previous name
Charity Name: FINDACURE FOUNDATION

11 Official extract

Charity Policy

Policy Name: Internal risk management policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Conflicting interests

Policy Name: Risk management

Policy Name: Trustee expenses policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Paying staff

Policy Name: Volunteer management

Policy Name: Social media policy and procedures

Policy Name: Safeguarding policy and procedures