MLD SUPPORT ASSOCIATION UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 21 January 2013
Removed: Not supplied
Financial period: 25 July 2024 – 24 July 2025
Latest income: £53,341
Latest expenditure: £31,197
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Need More Time Ltd, 35 Marine Terrace, MARGATE, Kent, CT9 1XJ

Website recorded by the regulator: MLDSupportUK.org.uk (displayed as text)

02 Activities

What the charity does

We have prepared informative leaflets on Metachromatic Leukodystrophy (MLD), to spread awareness of the disease to medical establishments and raise awareness . We have established links with other charitable organisations who can provide complimentary services to families affected by MLD . We are advocates on behalf of affected families and have strong links to specialist centres.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 25 July 2024
Fin Period End Date: 24 July 2025
Ar Cycle Reference: AR25
Reporting Due Date: 24 May 2026
Date Annual Return Received: 21 April 2026
Date Accounts Received: 21 April 2026
Total Gross Income: £53,341
Total Gross Expenditure: £31,197

Fin Period Start Date: 25 July 2023
Fin Period End Date: 24 July 2024
Ar Cycle Reference: AR24
Reporting Due Date: 24 May 2025
Date Annual Return Received: 21 May 2025
Date Accounts Received: 21 May 2025
Total Gross Income: £35,495
Total Gross Expenditure: £25,681

Fin Period Start Date: 25 July 2022
Fin Period End Date: 24 July 2023
Ar Cycle Reference: AR23
Reporting Due Date: 24 May 2024
Date Annual Return Received: 1 May 2024
Date Accounts Received: 1 May 2024
Total Gross Income: £32,266
Total Gross Expenditure: £37,019

Fin Period Start Date: 25 July 2021
Fin Period End Date: 24 July 2022
Ar Cycle Reference: AR22
Reporting Due Date: 24 May 2023
Date Annual Return Received: 18 April 2023
Date Accounts Received: 18 April 2023
Total Gross Income: £26,573
Total Gross Expenditure: £16,680

Fin Period Start Date: 25 July 2020
Fin Period End Date: 24 July 2021
Ar Cycle Reference: AR21
Reporting Due Date: 24 May 2022
Date Annual Return Received: 5 May 2022
Date Accounts Received: 5 May 2022
Total Gross Income: £9,254
Total Gross Expenditure: £13,405

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 25 July 2024
Fin Period End Date: 24 July 2025
Ar Due Date: 24 May 2026
Ar Received Date: 21 April 2026
Total Gross Income: £53,341
Total Gross Expenditure: £31,197
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 7

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 25 July 2023
Fin Period End Date: 24 July 2024
Ar Due Date: 24 May 2025
Ar Received Date: 21 May 2025
Total Gross Income: £35,495
Total Gross Expenditure: £25,681
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 6

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 25 July 2022
Fin Period End Date: 24 July 2023
Ar Due Date: 24 May 2024
Ar Received Date: 1 May 2024
Total Gross Income: £32,266
Total Gross Expenditure: £37,019
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 25 July 2021
Fin Period End Date: 24 July 2022
Ar Due Date: 24 May 2023
Ar Received Date: 18 April 2023
Total Gross Income: £26,573
Total Gross Expenditure: £16,680
Charity Raises Funds From Public: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 25 July 2020
Fin Period End Date: 24 July 2021
Ar Due Date: 24 May 2022
Ar Received Date: 5 May 2022
Total Gross Income: £9,254
Total Gross Expenditure: £13,405
Charity Raises Funds From Public: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name: MLD SUPPORT ASSOCIATION UK
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2021-10-13T00:00:00
Reason: Removed by application
Assoc Organisation Number: 5081090
Assoc Registered Charity Number: 1167544
Assoc Charity Name: BUTTERFLY HUGS

Charity Name: MLD SUPPORT ASSOCIATION UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2013-01-21T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION REGISTERED ON 21/01/2013 as amended on 27 Feb 2026
Charitable Objects: 1.TO ADVANCE THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF THE DIAGNOSIS, PROGRESSION, AND TREATMENT FOR ALL FORMS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.).2. TO RELIEVE THE MENTAL AND PHYSICAL SICKNESS OF PERSONS RESIDENT IN THE UNITED KINGDOM, SUFFERING FROM BEREAVEMENT OR LOSS OF A FAMILY MEMBER THROUGH METACHROMATIC LEUKODYSTROPHY (M.L.D.) BY THE PROVISION OF COUNSELLING AND SUPPORT FOR SUCH PERSONS.3. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE TO THEIR FAMILIES; AND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE TO BONA FIDE CLINICIANS AND RESEARCH BODIES WHO ARE SEEKING THERAPEUTIC TREATMENT FOR THIS CONDITION.
Area Of Benefit: ENGLAND AND WALES

09 Official extract

Charity Other Names

Charity Name Id: 528996
Charity Name Type: Previous name
Charity Name: MLD SUPPORT ASSOCIATION UK1

Charity Name Id: 528997
Charity Name Type: Working name
Charity Name: MLD SUPPORT UK

10 Official extract

Charity Policy

Policy Name: Complaints handling

Policy Name: Complaints policy and procedures

Policy Name: Risk management

Policy Name: Conflicting interests

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Volunteer management

Policy Name: Trustee expenses policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Bullying and harassment policy and procedures