CCEW Charity Commission profile

ACTION FOR PULMONARY FIBROSIS

Registered charity 1152399 · organisation 5035745

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
12 June 2013
Removed
Not supplied
Financial period
1 July 2024 – 30 June 2025
Latest income
£1,991,368
Latest expenditure
£1,784,066
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: Action for Pulmonary Fibrosis, Studio 8, Stuart House, St John's Street, Peterborough, PE1 5DD

Website recorded by the regulator: www.actionpf.org (displayed as text)

02 Activities

What the charity does

APF raises awareness and understanding of pulmonary fibrosis with patients, families, the general public and the medical profession. We advocate for patients nationally to improve treatment and care. We support patients by assisting in setting up patient support groups, hold information events and by personal contact. We offer study sessions for health professionals and offer research grants.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 July 2024
Fin Period End Date
30 June 2025
Ar Cycle Reference
AR25
Reporting Due Date
30 April 2026
Date Annual Return Received
28 April 2026
Date Accounts Received
28 April 2026
Total Gross Income
£1,991,368
Total Gross Expenditure
£1,784,066
Fin Period Start Date
1 July 2023
Fin Period End Date
30 June 2024
Ar Cycle Reference
AR24
Reporting Due Date
30 April 2025
Date Annual Return Received
24 March 2025
Date Accounts Received
24 March 2025
Total Gross Income
£1,485,083
Total Gross Expenditure
£2,191,881
Fin Period Start Date
1 July 2022
Fin Period End Date
30 June 2023
Ar Cycle Reference
AR23
Reporting Due Date
30 April 2024
Date Annual Return Received
12 March 2024
Date Accounts Received
12 March 2024
Total Gross Income
£1,446,900
Total Gross Expenditure
£1,204,155
Fin Period Start Date
1 July 2021
Fin Period End Date
30 June 2022
Ar Cycle Reference
AR22
Reporting Due Date
30 April 2023
Date Annual Return Received
24 March 2023
Date Accounts Received
24 March 2023
Total Gross Income
£974,578
Total Gross Expenditure
£795,238
Fin Period Start Date
1 July 2020
Fin Period End Date
30 June 2021
Ar Cycle Reference
AR21
Reporting Due Date
30 April 2022
Date Annual Return Received
7 April 2022
Date Accounts Received
7 April 2022
Total Gross Income
£651,809
Total Gross Expenditure
£601,408

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 July 2024
Fin Period End Date
30 June 2025
Ar Due Date
30 April 2026
Ar Received Date
28 April 2026
Total Gross Income
£1,991,368
Total Gross Expenditure
£1,784,066
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£10,500
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
2
Count Volunteers
62
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 July 2023
Fin Period End Date
30 June 2024
Ar Due Date
30 April 2025
Ar Received Date
24 March 2025
Total Gross Income
£1,485,083
Total Gross Expenditure
£2,191,881
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£1
Income From Government Grants
£168,118
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Volunteers
30
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 July 2022
Fin Period End Date
30 June 2023
Ar Due Date
30 April 2024
Ar Received Date
12 March 2024
Total Gross Income
£1,446,900
Total Gross Expenditure
£1,204,155
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
100
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 July 2021
Fin Period End Date
30 June 2022
Ar Due Date
30 April 2023
Ar Received Date
24 March 2023
Total Gross Income
£974,578
Total Gross Expenditure
£795,238
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
0
Count Salary Band 70001 80000
1
Count Salary Band 80001 90000
0
Count Salary Band 90001 100000
0
Count Salary Band 100001 110000
0
Count Salary Band 110001 120000
0
Count Salary Band 120001 130000
0
Count Salary Band 130001 140000
0
Count Salary Band 140001 150000
0
Count Salary Band 150001 200000
0
Count Salary Band 200001 250000
0
Count Salary Band 250001 300000
0
Count Salary Band 300001 350000
0
Count Salary Band 350001 400000
0
Count Salary Band 400001 450000
0
Count Salary Band 450001 500000
0
Count Salary Band Over 500000
0
Count Volunteers
87
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 July 2020
Fin Period End Date
30 June 2021
Ar Due Date
30 April 2022
Ar Received Date
7 April 2022
Total Gross Income
£651,809
Total Gross Expenditure
£601,408
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
19

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 July 2024
Fin Period End Date
30 June 2025
Ar Due Date
30 April 2026
Ar Received Date
28 April 2026
Income Donations And Legacies
1628335
Income Other Trading Activities
120
Income Charitable Activities
345783
Income Investments
17130
Income Other
0
Income Total Income And Endowments
1991368
Income Legacies
447984
Income Endowments
0
Expenditure Raising Funds
£431,621
Expenditure Charitable Expenditure
£1,352,445
Expenditure Other
0
Expenditure Total
1784066
Expenditure Investment Management
0
Expenditure Grants Institution
29580
Expenditure Governance
24136
Expenditure Support Costs
388996
Expenditure Depreciation
7037
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£539,560
Assets Total Fixed
7984
Assets Own Use
7984
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,649,266
Assets Total Liabilities
£644,252
Assets Current Investment
928420
Assets Total Assets And Liabilities
£1,012,998
Creditors One Year Total Current
288795
Creditors Falling Due After One Year
355457
Assets Cash
£615,387
Funds Endowment
0
Funds Unrestricted
898990
Funds Restricted
114008
Funds Total
1012998
Count Employees
34
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 July 2023
Fin Period End Date
30 June 2024
Ar Due Date
30 April 2025
Ar Received Date
24 March 2025
Income Donations And Legacies
1077952
Income Other Trading Activities
950
Income Charitable Activities
381138
Income Investments
25043
Income Other
0
Income Total Income And Endowments
1485083
Income Legacies
25687
Income Endowments
0
Expenditure Raising Funds
£388,202
Expenditure Charitable Expenditure
£1,803,679
Expenditure Other
0
Expenditure Total
2191881
Expenditure Investment Management
0
Expenditure Grants Institution
608621
Expenditure Governance
10650
Expenditure Support Costs
399031
Expenditure Depreciation
4457
Gain Loss Investment
12994
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
654
Gain Loss Other
0
Reserves
£328,257
Assets Total Fixed
10448
Assets Own Use
10448
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,471,185
Assets Total Liabilities
£675,937
Assets Current Investment
1251369
Assets Total Assets And Liabilities
£805,696
Creditors One Year Total Current
260139
Creditors Falling Due After One Year
415798
Assets Cash
£122,075
Funds Endowment
0
Funds Unrestricted
679187
Funds Restricted
126509
Funds Total
805696
Count Employees
32
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 July 2022
Fin Period End Date
30 June 2023
Ar Due Date
30 April 2024
Ar Received Date
12 March 2024
Income Donations And Legacies
1131442
Income Other Trading Activities
2499
Income Charitable Activities
300910
Income Investments
12049
Income Other
0
Income Total Income And Endowments
1446900
Income Legacies
221778
Income Endowments
0
Expenditure Raising Funds
£248,560
Expenditure Charitable Expenditure
£955,595
Expenditure Other
0
Expenditure Total
1204155
Expenditure Investment Management
0
Expenditure Grants Institution
850
Expenditure Governance
9780
Expenditure Support Costs
292407
Expenditure Depreciation
1633
Gain Loss Investment
12049
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
-11427
Gain Loss Other
0
Reserves
£336,000
Assets Total Fixed
9794
Assets Own Use
9794
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,706,928
Assets Total Liabilities
£204,228
Assets Current Investment
1494961
Assets Total Assets And Liabilities
£1,512,494
Creditors One Year Total Current
204228
Creditors Falling Due After One Year
0
Assets Cash
£149,666
Funds Endowment
0
Funds Unrestricted
1468474
Funds Restricted
44020
Funds Total
1512494
Count Employees
21
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 July 2021
Fin Period End Date
30 June 2022
Ar Due Date
30 April 2023
Ar Received Date
24 March 2023
Income Donations And Legacies
733751
Income Other Trading Activities
12112
Income Charitable Activities
222402
Income Investments
6313
Income Other
0
Income Total Income And Endowments
974578
Income Legacies
36200
Income Endowments
0
Expenditure Raising Funds
£168,909
Expenditure Charitable Expenditure
£626,329
Expenditure Other
0
Expenditure Total
795238
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
6023
Expenditure Support Costs
177210
Expenditure Depreciation
0
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£336,000
Assets Total Fixed
0
Assets Own Use
0
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,356,347
Assets Total Liabilities
£86,598
Assets Current Investment
1069851
Assets Total Assets And Liabilities
£1,269,749
Creditors One Year Total Current
86598
Creditors Falling Due After One Year
0
Assets Cash
£264,095
Funds Endowment
0
Funds Unrestricted
1205001
Funds Restricted
64748
Funds Total
1269749
Count Employees
16
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 July 2020
Fin Period End Date
30 June 2021
Ar Due Date
30 April 2022
Ar Received Date
7 April 2022
Income Donations And Legacies
518882
Income Other Trading Activities
0
Income Charitable Activities
127832
Income Investments
5095
Income Other
0
Income Total Income And Endowments
651809
Income Legacies
5000
Income Endowments
0
Expenditure Raising Funds
£109,856
Expenditure Charitable Expenditure
£491,552
Expenditure Other
0
Expenditure Total
601408
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
8820
Expenditure Support Costs
143681
Expenditure Depreciation
0
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£278,725
Assets Total Fixed
0
Assets Own Use
0
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£1,247,414
Assets Total Liabilities
£157,005
Assets Current Investment
1071858
Assets Total Assets And Liabilities
£1,090,409
Creditors One Year Total Current
127040
Creditors Falling Due After One Year
29965
Assets Cash
£156,054
Funds Endowment
0
Funds Unrestricted
1025209
Funds Restricted
65200
Funds Total
1090409
Count Employees
11
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
310
Classification Type
How
Classification Description
Other Charitable Activities
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations

08 Official extract

Charity Event History

Charity Name
ACTION FOR PULMONARY FIBROSIS
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2013-06-12T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
CIO - Foundation Registered 12 Jun 2013
Charitable Objects
THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH IN PARTICULAR BY:A) ADVANCING EDUCATION AND RAISING AWARENESS OF PULMONARY FIBROSIS, THE SYMPTOMS ASSOCIATED WITH IT AND ENCOURAGING EARLIER DIAGNOSIS OF THE CONDITION.B) PROMOTING RESEARCH INTO THE UNDERSTANDING, DIAGNOSIS, CAUSES AND TREATMENTS OF PULMONARY FIBROSIS THROUGH DONATIONS AND GRANTS TO RELATED RESEARCH PROJECTS IN ORDER THAT THE USEFUL RESULTS OF RESEARCH ARE DISSEMINATED FOR PUBLIC BENEFIT.C) PROVIDING SUPPORT TO PATIENTS AND FAMILIES SUFFERING FROM PULMONARY FIBROSIS IN ANY OTHER WAY THE TRUSTEES SEE FIT.

10 Official extract

Charity Other Names

Charity Name Id
532616
Charity Name Type
Previous name
Charity Name
PULMONARY FIBROSIS UK

11 Official extract

Charity Policy

Policy Name
Bullying and harassment policy and procedures
Policy Name
Paying staff
Policy Name
Serious incident reporting policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Risk management
Policy Name
Financial reserves policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Complaints handling
Policy Name
Complaints policy and procedures
Policy Name
Conflicting interests
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Internal charity financial controls policy and procedures