RETINA UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 18 September 2013
Removed: Not supplied
Financial period: 1 January 2025 – 31 December 2025
Latest income: £1,749,159
Latest expenditure: £2,092,362
Gift Aid: Yes
Owns or uses land: Yes
In administration: No
Insolvent: No
CIO: Yes

Public contact address: PO Box 350, Buckingham, MK18 1GZ

Website recorded by the regulator: www.RetinaUK.org.uk (displayed as text)

02 Activities

What the charity does

We support people affected by inherited progressive sight loss and invest in medical research to ensure that people can lead a fulfilling life.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026
Date Annual Return Received: 5 October 2026
Date Accounts Received: 5 October 2026
Total Gross Income: £1,749,159
Total Gross Expenditure: £2,092,362

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 1 August 2025
Date Accounts Received: 1 August 2025
Total Gross Income: £2,170,849
Total Gross Expenditure: £1,656,344

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 15 October 2024
Date Accounts Received: 15 October 2024
Total Gross Income: £1,287,014
Total Gross Expenditure: £1,793,801

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 29 June 2023
Date Accounts Received: 29 June 2023
Total Gross Income: £1,562,632
Total Gross Expenditure: £1,535,942

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 5 October 2022
Date Accounts Received: 5 October 2022
Total Gross Income: £1,239,135
Total Gross Expenditure: £887,016

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 5 October 2026
Total Gross Income: £1,749,159
Total Gross Expenditure: £2,092,362
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Salary Band 90001 100000: 1
Count Volunteers: 120

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 1 August 2025
Total Gross Income: £2,170,849
Total Gross Expenditure: £1,656,344
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £1
Income From Government Grants: £51,527
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Salary Band 90001 100000: 1
Count Volunteers: 100

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 15 October 2024
Total Gross Income: £1,287,014
Total Gross Expenditure: £1,793,801
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Salary Band 90001 100000: 1
Count Volunteers: 120

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 29 June 2023
Total Gross Income: £1,562,632
Total Gross Expenditure: £1,535,942
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 80001 90000: 1
Count Volunteers: 120

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 5 October 2022
Total Gross Income: £1,239,135
Total Gross Expenditure: £887,016
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: Yes
Count Govt Grants: £2
Income From Government Grants: £144,228
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 80001 90000: 1
Count Volunteers: 120

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 5 October 2026
Income Donations And Legacies: 1622308
Income Other Trading Activities: 0
Income Charitable Activities: 0
Income Investments: 37118
Income Other: 0
Income Total Income And Endowments: 1659426
Income Legacies: 750239
Income Endowments: 0
Expenditure Raising Funds: £410,285
Expenditure Charitable Expenditure: £1,682,077
Expenditure Other: 0
Expenditure Total: 2092362
Expenditure Investment Management: 0
Expenditure Grants Institution: 525048
Expenditure Governance: 49284
Expenditure Support Costs: 1218928
Expenditure Depreciation: 6226
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 9227
Gain Loss Other: 0
Reserves: £629,539
Assets Total Fixed: 9502
Assets Own Use: 9227
Assets Long Term Investment: 275
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,509,121
Assets Total Liabilities: £819,362
Assets Current Investment: 275
Assets Total Assets And Liabilities: £1,699,261
Creditors One Year Total Current: 819362
Creditors Falling Due After One Year: 0
Assets Cash: £1,764,112
Funds Endowment: 0
Funds Unrestricted: 507217
Funds Restricted: 1192044
Funds Total: 1699261
Count Employees: 23
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 1 August 2025
Income Donations And Legacies: 2032524
Income Other Trading Activities: 0
Income Charitable Activities: 86376
Income Investments: 51949
Income Other: 0
Income Total Income And Endowments: 2170849
Income Legacies: 367947
Income Endowments: 0
Expenditure Raising Funds: £364,726
Expenditure Charitable Expenditure: £1,291,618
Expenditure Other: 0
Expenditure Total: 1656344
Expenditure Investment Management: 0
Expenditure Grants Institution: 716144
Expenditure Governance: 57675
Expenditure Support Costs: 1067795
Expenditure Depreciation: 5290
Gain Loss Investment: 275
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 9411
Gain Loss Other: 0
Reserves: £629,539
Assets Total Fixed: 9686
Assets Own Use: 0
Assets Long Term Investment: 9686
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,846,928
Assets Total Liabilities: £814,150
Assets Current Investment: 600000
Assets Total Assets And Liabilities: £2,042,464
Creditors One Year Total Current: 814150
Creditors Falling Due After One Year: 0
Assets Cash: £1,887,763
Funds Endowment: 0
Funds Unrestricted: 629539
Funds Restricted: 1412925
Funds Total: 2042464
Count Employees: 23
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 15 October 2024
Income Donations And Legacies: 1179615
Income Other Trading Activities: 0
Income Charitable Activities: 60000
Income Investments: 47399
Income Other: 0
Income Total Income And Endowments: 1287014
Income Legacies: 542476
Income Endowments: 0
Expenditure Raising Funds: £299,690
Expenditure Charitable Expenditure: £1,494,111
Expenditure Other: 0
Expenditure Total: 1793801
Expenditure Investment Management: 0
Expenditure Grants Institution: 906043
Expenditure Governance: 264314
Expenditure Support Costs: 193387
Expenditure Depreciation: 4237
Gain Loss Investment: -1180
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 258411
Gain Loss Other: 0
Reserves: £1,005,442
Assets Total Fixed: 8661
Assets Own Use: 8386
Assets Long Term Investment: 275
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,410,387
Assets Total Liabilities: £891,089
Assets Current Investment: 600000
Assets Total Assets And Liabilities: £1,527,959
Creditors One Year Total Current: 891089
Creditors Falling Due After One Year: 0
Assets Cash: £1,457,460
Funds Endowment: 0
Funds Unrestricted: 1005442
Funds Restricted: 522517
Funds Total: 1527959
Count Employees: 24
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 29 June 2023
Income Donations And Legacies: 1350667
Income Other Trading Activities: 0
Income Charitable Activities: 205309
Income Investments: 6656
Income Other: 0
Income Total Income And Endowments: 1562632
Income Legacies: 535255
Income Endowments: 0
Expenditure Raising Funds: £295,948
Expenditure Charitable Expenditure: £1,239,994
Expenditure Other: 0
Expenditure Total: 1535942
Expenditure Investment Management: 0
Expenditure Grants Institution: 624853
Expenditure Governance: 46347
Expenditure Support Costs: 788153
Expenditure Depreciation: 3678
Gain Loss Investment: 13406
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 4736
Gain Loss Other: 0
Reserves: £280,000
Assets Total Fixed: 267072
Assets Own Use: 4736
Assets Long Term Investment: 262336
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,163,870
Assets Total Liabilities: £394,316
Assets Current Investment: 600000
Assets Total Assets And Liabilities: £2,036,626
Creditors One Year Total Current: 394316
Creditors Falling Due After One Year: 0
Assets Cash: £931,940
Funds Endowment: 0
Funds Unrestricted: 1331703
Funds Restricted: 704923
Funds Total: 2036626
Count Employees: 26
Charity Only Accounts: Yes

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 5 October 2022
Income Donations And Legacies: 1050797
Income Other Trading Activities: 0
Income Charitable Activities: 185328
Income Investments: 3010
Income Other: 0
Income Total Income And Endowments: 1239135
Income Legacies: 99042
Income Endowments: 0
Expenditure Raising Funds: £253,118
Expenditure Charitable Expenditure: £633,898
Expenditure Other: 0
Expenditure Total: 887016
Expenditure Investment Management: 0
Expenditure Grants Institution: 163051
Expenditure Governance: 42613
Expenditure Support Costs: 674824
Expenditure Depreciation: 3677
Gain Loss Investment: 31734
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: -1314
Gain Loss Other: 0
Reserves: £280,000
Assets Total Fixed: 282078
Assets Own Use: 6336
Assets Long Term Investment: 275742
Defined Benefit Pension Scheme: 0
Assets Other Assets: £2,247,203
Assets Total Liabilities: £505,939
Assets Current Investment: 0
Assets Total Assets And Liabilities: £2,023,342
Creditors One Year Total Current: 505939
Creditors Falling Due After One Year: 0
Assets Cash: £1,322,144
Funds Endowment: 0
Funds Unrestricted: 1499561
Funds Restricted: 523781
Funds Total: 2023342
Count Employees: 25
Charity Only Accounts: Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

07 Official extract

Charity Classification

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 303
Classification Type: How
Classification Description: Provides Other Finance

Classification Code: 117
Classification Type: What
Classification Description: Other Charitable Purposes

Classification Code: 310
Classification Type: How
Classification Description: Other Charitable Activities

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 113
Classification Type: What
Classification Description: Economic/community Development/employment

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 309
Classification Type: How
Classification Description: Acts As An Umbrella Or Resource Body

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 204
Classification Type: Who
Classification Description: People Of A Particular Ethnic Or Racial Origin

08 Official extract

Charity Event History

Charity Name: RETINA UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2013-09-18T00:00:00

Charity Name: RETINA UK
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2014-01-08T00:00:00
Assoc Organisation Number: 271729
Assoc Registered Charity Number: 271729
Assoc Charity Name: BRITISH RETINITIS PIGMENTOSA SOCIETY

09 Official extract

Charity Governing Document

Governing Document Description: CIO - ASSOCIATION REGISTERED 18 SEP 2013AMENDED ON 19 JUN 2018
Charitable Objects: THE OBJECTS OF THE CIO ARE THE RELIEF OF PERSONS SUFFERING FROM ALL FORMS OF RETINITIS PIGMENTOSA, ITS SYNDROMES AND SIMILAR HEREDITARY RETINAL DYSTROPHIES, IN PARTICULAR BUT NOT EXCLUSIVELY, BY PURSUING MEASURES TOWARDS FINDING THE CAUSE, TREATMENT AND CURE OF ALL FORMS OF RETINITIS PIGMENTOSA, ITS SYNDROMES AND SIMILAR HEREDITARY RETINAL DYSTROPHIES AND PROVIDING INFORMATION AND SUPPORT FOR PEOPLE WITH THESE CONDITIONS.

10 Official extract

Charity Other Names

Charity Name Id: 536786
Charity Name Type: Previous name
Charity Name: BRPS

Charity Name Id: 536785
Charity Name Type: Previous name
Charity Name: RP FIGHTING BLINDNESS

Charity Name Id: 604215
Charity Name Type: Working name
Charity Name: RP FIGHTING BLINDNESS.

11 Official extract

Charity Policy

Policy Name: Complaints handling

Policy Name: Investing charity funds policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Conflicting interests

Policy Name: Social media policy and procedures

Policy Name: Campaigns and political activity policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Paying staff

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Investment

Policy Name: Volunteer management

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Risk management

Policy Name: Safeguarding vulnerable beneficiaries