CCEW Charity Commission profile

Inflammatory Neuropathies UK

Registered charity 1154843 · organisation 5039469

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
3 December 2013
Removed
Not supplied
Financial period
1 April 2025 – 31 March 2026
Latest income
£510,498
Latest expenditure
£286,760
Gift Aid
Yes
Owns or uses land
Yes
In administration
No
Insolvent
No
CIO
Yes

Public contact address: 3 Mill House, Carre Street, Sleaford, Lincolnshire, NG34 7TW

Website recorded by the regulator: https://www.inflammatoryneuropathies.uk (displayed as text)

02 Activities

What the charity does

Support & advice for those affected by GBS, CIDP and associated inflammatory neuropathies.Furthering the education of medical and health care professionals and members of the public Funding research into the illnesses

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Cycle Reference
AR26
Reporting Due Date
31 January 2027
Date Annual Return Received
13 October 2026
Date Accounts Received
13 October 2026
Total Gross Income
£510,498
Total Gross Expenditure
£286,760
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
27 October 2025
Date Accounts Received
27 October 2025
Total Gross Income
£196,112
Total Gross Expenditure
£203,228
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
7 November 2024
Date Accounts Received
7 November 2024
Total Gross Income
£303,906
Total Gross Expenditure
£216,979
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
26 October 2023
Date Accounts Received
26 October 2023
Total Gross Income
£450,582
Total Gross Expenditure
£224,221
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
10 October 2022
Date Accounts Received
10 October 2022
Total Gross Income
£220,387
Total Gross Expenditure
£212,899

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR26
Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Due Date
31 January 2027
Ar Received Date
13 October 2026
Total Gross Income
£510,498
Total Gross Expenditure
£286,760
Grant Making Is Main Activity
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
40
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
27 October 2025
Total Gross Income
£196,112
Total Gross Expenditure
£203,228
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
30
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
7 November 2024
Total Gross Income
£303,906
Total Gross Expenditure
£216,979
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
15
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
26 October 2023
Total Gross Income
£450,582
Total Gross Expenditure
£224,221
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
6
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
10 October 2022
Total Gross Income
£220,387
Total Gross Expenditure
£212,899
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
35

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR26
Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Due Date
31 January 2027
Ar Received Date
13 October 2026
Income Donations And Legacies
490369
Income Other Trading Activities
6337
Income Charitable Activities
0
Income Investments
13792
Income Other
0
Income Total Income And Endowments
510498
Income Legacies
352379
Income Endowments
0
Expenditure Raising Funds
£4,253
Expenditure Charitable Expenditure
£282,507
Expenditure Other
0
Expenditure Total
286760
Expenditure Investment Management
0
Expenditure Grants Institution
25000
Expenditure Governance
65
Expenditure Support Costs
195752
Expenditure Depreciation
17711
Gain Loss Investment
5093
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
21650
Gain Loss Other
0
Reserves
£918,864
Assets Total Fixed
445868
Assets Own Use
24196
Assets Long Term Investment
421672
Defined Benefit Pension Scheme
0
Assets Other Assets
£833,035
Assets Total Liabilities
£35,843
Assets Current Investment
0
Assets Total Assets And Liabilities
£1,243,060
Creditors One Year Total Current
35843
Creditors Falling Due After One Year
0
Assets Cash
£825,744
Funds Endowment
0
Funds Unrestricted
1243060
Funds Restricted
0
Funds Total
1243060
Count Employees
3
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Jersey
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Isle Of Man
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Guernsey
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
102
Classification Type
What
Classification Description
Education/training

08 Official extract

Charity Event History

Charity Name
Inflammatory Neuropathies UK
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2013-12-03T00:00:00
Charity Name
Inflammatory Neuropathies UK
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2014-11-11T00:00:00
Assoc Organisation Number
327314
Assoc Registered Charity Number
327314
Assoc Charity Name
THE GUILLAIN-BARRE SYNDROME SUPPORT GROUP
Charity Name
Inflammatory Neuropathies UK
Charity Event Order
3
Event Type
Asset transfer in
Date Of Event
2023-04-25T00:00:00
Reason
Does not operate
Assoc Organisation Number
3938473
Assoc Registered Charity Number
1062453
Assoc Charity Name
THE BUSENHART - MORGAN - EVANS FOUNDATION

09 Official extract

Charity Governing Document

Governing Document Description
CIO - ASSOCIATION REGISTERED ONAMENDED ON 17 MAY 2017AMENDED ON 28 OCT 2017 as amended on 14 Oct 2019 as amended on 10 Apr 2025 as amended on 10 Apr 2025 as amended on 04 Oct 2025
Charitable Objects
To relieve the needs of people impacted by Inflammatory Neuropathies, their families and carers in particular but not exclusively by: A) The provision of information, support, non-medical advice, and other assistance; B) The promotion of research into the causes, impacts, prevention, and treatment of Inflammatory Neuropathies; C) Advancing the awareness of the public and of the medical professions concerning Inflammatory Neuropathies, their causes, impacts, prevention, and treatment

10 Official extract

Charity Other Names

Charity Name Id
539290
Charity Name Type
Previous name
Charity Name
GUILLAIN-BARR? & ASSOCIATED INFLAMMATORY NEUROPATHIES
Charity Name Id
539291
Charity Name Type
Previous name
Charity Name
GAIN
Charity Name Id
540918
Charity Name Type
Previous name
Charity Name
GUILLAIN-BARRE & ASSOCIATED INFLAMMATORY NEUROPATHIES ("GAIN")

11 Official extract

Charity Policy

Policy Name
Financial reserves policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Investment
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Conflicting interests
Policy Name
Safeguarding policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Serious incident reporting policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Volunteer management
Policy Name
Risk management
Policy Name
Complaints policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Complaints handling
Policy Name
Social media policy and procedures