ALPORT UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received Late
Charity type: CIO
Registered: 27 November 2013
Removed: Not supplied
Financial period: 2 August 2024 – 1 August 2025
Latest income: £178,592
Latest expenditure: £166,679
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: PO Box 329, Cirencester, GL7 9JA

Website recorded by the regulator: alportuk.org (displayed as text)

02 Activities

What the charity does

Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 2 August 2024
Fin Period End Date: 1 August 2025
Ar Cycle Reference: AR25
Reporting Due Date: 1 June 2026
Date Annual Return Received: 1 July 2026
Date Accounts Received: 2 July 2026
Total Gross Income: £178,592
Total Gross Expenditure: £166,679

Fin Period Start Date: 2 August 2023
Fin Period End Date: 1 August 2024
Ar Cycle Reference: AR24
Reporting Due Date: 1 June 2025
Date Annual Return Received: 24 December 2024
Date Accounts Received: 24 December 2024
Total Gross Income: £154,267
Total Gross Expenditure: £155,496

Fin Period Start Date: 2 August 2022
Fin Period End Date: 1 August 2023
Ar Cycle Reference: AR23
Reporting Due Date: 1 June 2024
Date Annual Return Received: 11 September 2024
Date Accounts Received: 11 September 2024
Total Gross Income: £92,190
Total Gross Expenditure: £93,858

Fin Period Start Date: 2 August 2021
Fin Period End Date: 1 August 2022
Ar Cycle Reference: AR22
Reporting Due Date: 1 June 2023
Date Annual Return Received: 17 October 2022
Date Accounts Received: 17 October 2022
Total Gross Income: £37,443
Total Gross Expenditure: £47,756

Fin Period Start Date: 2 August 2020
Fin Period End Date: 1 August 2021
Ar Cycle Reference: AR21
Reporting Due Date: 1 June 2022
Date Annual Return Received: 21 August 2021
Date Accounts Received: 21 August 2021
Total Gross Income: £60,067
Total Gross Expenditure: £28,327

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 2 August 2024
Fin Period End Date: 1 August 2025
Ar Due Date: 1 June 2026
Ar Received Date: 1 July 2026
Total Gross Income: £178,592
Total Gross Expenditure: £166,679
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 2 August 2023
Fin Period End Date: 1 August 2024
Ar Due Date: 1 June 2025
Ar Received Date: 24 December 2024
Total Gross Income: £154,267
Total Gross Expenditure: £155,496
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 2 August 2022
Fin Period End Date: 1 August 2023
Ar Due Date: 1 June 2024
Ar Received Date: 11 September 2024
Total Gross Income: £92,190
Total Gross Expenditure: £93,858
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 78

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 2 August 2021
Fin Period End Date: 1 August 2022
Ar Due Date: 1 June 2023
Ar Received Date: 17 October 2022
Total Gross Income: £37,443
Total Gross Expenditure: £47,756
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: Yes
Count Govt Grants: £2
Income From Government Grants: £19,242
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 2 August 2020
Fin Period End Date: 1 August 2021
Ar Due Date: 1 June 2022
Ar Received Date: 21 August 2021
Total Gross Income: £60,067
Total Gross Expenditure: £28,327
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

07 Official extract

Charity Event History

Charity Name: ALPORT UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2013-11-27T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - Foundation Registered 27 Nov 2013
Charitable Objects: THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.

09 Official extract

Charity Policy

Policy Name: Safeguarding policy and procedures

Policy Name: Conflicting interests

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Volunteer management

Policy Name: Financial reserves policy and procedures

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Social media policy and procedures

Policy Name: Risk management

Policy Name: Complaints policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Complaints handling

Policy Name: Internal risk management policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Bullying and harassment policy and procedures