ASSOCIATION FOR MULTIPLE ENDOCRINE NEOPLASIA DISORDERS — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 20 September 2013
Removed: Not supplied
Financial period: 1 January 2025 – 31 December 2025
Latest income: £82,239
Latest expenditure: £91,202
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: AMEND, Tyler House, 58-66 Morley Road, Tonbridge, Kent, TN9 1RA

Website recorded by the regulator: www.amend.org.uk (displayed as text)

02 Activities

What the charity does

AMEND PROVIDES SUPPORT AND INFORMATION TO PATIENTS FAMILIES AND CARERS AFFECTED BY THE RARE GENETIC DISORDERS MULTIPLE ENDOCRINE NEOPLASIA, AS WELL AS TO THOSE WITH ASSOCIATED FAMILIAL AND SPORADIC TUMOURS. AMEND AIMS TO PROMOTE GREATER KNOWLEDGE OF THE BEST CARE AND MANAGEMENT OF MEN AND ASSOCIATED TUMOUR PATIENTS AMONGST THE MEDICAL PROFESSION.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026
Date Annual Return Received: 1 September 2026
Date Accounts Received: 1 September 2026
Total Gross Income: £82,239
Total Gross Expenditure: £91,202

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 22 September 2025
Date Accounts Received: 22 September 2025
Total Gross Income: £95,173
Total Gross Expenditure: £106,016

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 15 August 2024
Date Accounts Received: 15 August 2024
Total Gross Income: £80,668
Total Gross Expenditure: £112,292

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 29 September 2023
Date Accounts Received: 29 September 2023
Total Gross Income: £130,264
Total Gross Expenditure: £139,397

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 29 October 2022
Date Accounts Received: 29 October 2022
Total Gross Income: £93,239
Total Gross Expenditure: £129,637

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 1 September 2026
Total Gross Income: £82,239
Total Gross Expenditure: £91,202
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 18

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 22 September 2025
Total Gross Income: £95,173
Total Gross Expenditure: £106,016
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 29

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 15 August 2024
Total Gross Income: £80,668
Total Gross Expenditure: £112,292
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 30

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 29 September 2023
Total Gross Income: £130,264
Total Gross Expenditure: £139,397
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 17

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 29 October 2022
Total Gross Income: £93,239
Total Gross Expenditure: £129,637
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 17

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name: ASSOCIATION FOR MULTIPLE ENDOCRINE NEOPLASIA DISORDERS
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2013-09-20T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - ASSOCIATION REGISTERED 20 SEP 2013AMENDED ON 09 MAY 2016
Charitable Objects: TO RELIEVE PEOPLE WHO SUFFER FROM MULTIPLE ENDOCRINE NEOPLASIA (M.E.N.) OF ALL TYPES, THEIR FAMILIES, FRIENDS AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS:(1) ACTING AS A RELIABLE AND ACCURATE SOURCE OF INFORMATION FOR THE PUBLIC CONCERNING M.E.N. AND ITS ASSOCIATED SPORADIC GROWTHS, BY:(A) WORKING WITHIN THE APPROVAL OF MEMBERS OF THE MEDICAL PROFESSION WHO ARE DIRECTLY INVOLVED IN THE TREATMENT OF AND RESEARCH INTO M.E.N.(B) COLLECTING, COLLATING AND DISTRIBUTING APPROPRIATE AND APPROVED INFORMATION.(C) PRODUCING THE CHARITY’S OWN PATIENT-AIMED APPROVED INFORMATION.(2) PROMOTING A WIDER KNOWLEDGE OF THE ILLNESS AMONG THE MEDICAL PROFESSION TO ASSIST IN EARLY AND ACCURATE DIAGNOSIS.(3) PROVIDING RELIABLE AND ACCURATE INFORMATION WITH REGARD TO GENETIC TESTING FOR PEOPLE WITH M.E.N. AND ITS ASSOCIATED FAMILIAL GROWTHS, THEIR FAMILIES, FRIENDS AND CARERS.(4) PROVIDING EMOTIONAL SUPPORT TO PATIENTS, THEIR FAMILIES, FRIENDS AND CARERS IN THE FORM OF CONTACT WITH OTHERS IN SIMILAR SITUATIONS IN ORDER TO FACILITATE THE SHARING OF EXPERIENCES.

09 Official extract

Charity Other Names

Charity Name Id: 538260
Charity Name Type: Working name
Charity Name: AMEND

10 Official extract

Charity Policy

Policy Name: Social media policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Complaints handling

Policy Name: Financial reserves policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Risk management

Policy Name: Safeguarding vulnerable beneficiaries