PRADER-WILLI SYNDROME ASSOCIATION UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 19 February 2014
Removed: Not supplied
Financial period: 1 April 2025 – 31 March 2026
Latest income: £478,080
Latest expenditure: £521,550
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: PWSA UK, c/o Metcalf Commercial Decorators, 3 Deer Park Road, Moulton Park Industrial Estate, NORTHAMPTON

Website recorded by the regulator: www.pwsa.co.uk (displayed as text)

02 Activities

What the charity does

To relieve the Charitable needs of people with Prader Willi Syndrome and their families and carers by the provision of services, advice and support as the Trustee's shall determine.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 April 2025
Fin Period End Date: 31 March 2026
Ar Cycle Reference: AR26
Reporting Due Date: 31 January 2027
Date Annual Return Received: 2 November 2026
Date Accounts Received: 2 November 2026
Total Gross Income: £478,080
Total Gross Expenditure: £521,550

Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 January 2026
Date Annual Return Received: 30 October 2025
Date Accounts Received: 30 October 2025
Total Gross Income: £657,800
Total Gross Expenditure: £507,975

Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 January 2025
Date Annual Return Received: 29 October 2024
Date Accounts Received: 29 October 2024
Total Gross Income: £497,574
Total Gross Expenditure: £501,101

Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 January 2024
Date Annual Return Received: 28 November 2023
Date Accounts Received: 28 November 2023
Total Gross Income: £383,383
Total Gross Expenditure: £518,900

Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 January 2023
Date Annual Return Received: 22 December 2022
Date Accounts Received: 22 December 2022
Total Gross Income: £361,569
Total Gross Expenditure: £364,343

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR26
Fin Period Start Date: 1 April 2025
Fin Period End Date: 31 March 2026
Ar Due Date: 31 January 2027
Ar Received Date: 2 November 2026
Total Gross Income: £478,080
Total Gross Expenditure: £521,550
Grant Making Is Main Activity: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 70001 80000: 1
Count Volunteers: 25

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 30 October 2025
Total Gross Income: £657,800
Total Gross Expenditure: £507,975
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: Yes
Employees Salary Over 60k: Yes
Count Salary Band 80001 90000: 1
Count Volunteers: 37

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 29 October 2024
Total Gross Income: £497,574
Total Gross Expenditure: £501,101
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 80001 90000: 1
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR23
Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Due Date: 31 January 2024
Ar Received Date: 28 November 2023
Total Gross Income: £383,383
Total Gross Expenditure: £518,900
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 18

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR22
Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Due Date: 31 January 2023
Ar Received Date: 22 December 2022
Total Gross Income: £361,569
Total Gross Expenditure: £364,343
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 22

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 30 October 2025
Income Donations And Legacies: 533338
Income Other Trading Activities: 5519
Income Charitable Activities: 102206
Income Investments: 16737
Income Other: 0
Income Total Income And Endowments: 657800
Income Legacies: 184102
Income Endowments: 0
Expenditure Raising Funds: £17,169
Expenditure Charitable Expenditure: £487,845
Expenditure Other: 2961
Expenditure Total: 507975
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 4169
Expenditure Support Costs: 7130
Expenditure Depreciation: 2103
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 146
Gain Loss Other: 0
Reserves: £533,376
Assets Total Fixed: 3744
Assets Own Use: 3744
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £583,686
Assets Total Liabilities: £7,332
Assets Current Investment: 0
Assets Total Assets And Liabilities: £580,098
Creditors One Year Total Current: 7332
Creditors Falling Due After One Year: 0
Assets Cash: £560,237
Funds Endowment: 0
Funds Unrestricted: 533376
Funds Restricted: 46722
Funds Total: 580098
Count Employees: 10
Charity Only Accounts: Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

07 Official extract

Charity Classification

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

08 Official extract

Charity Event History

Charity Name: PRADER-WILLI SYNDROME ASSOCIATION UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2014-02-19T00:00:00

Charity Name: PRADER-WILLI SYNDROME ASSOCIATION UK
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2015-01-09T00:00:00
Reason: Funds transferred (incor)
Assoc Organisation Number: 284583
Assoc Registered Charity Number: 284583
Assoc Charity Name: PRADER-WILLI SYNDROME ASSOCIATION (UK)

09 Official extract

Charity Governing Document

Governing Document Description: CIO - Association Registered 19 Feb 2014
Charitable Objects: TO RELIEVE THE CHARITABLE NEEDS OF PEOPLE WITH PRADER-WILLI SYNDROME AND THEIR FAMILIES AND CARERS BY THE PROVISION OF SERVICES, ADVICE AND SUPPORT AS THE TRUSTEES SHALL DETERMINE.

10 Official extract

Charity Other Names

Charity Name Id: 542674
Charity Name Type: Working name
Charity Name: PWSA UK

11 Official extract

Charity Policy

Policy Name: Serious incident reporting policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Complaints handling

Policy Name: Investing charity funds policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Conflicting interests

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Risk management

Policy Name: Investment

Policy Name: Paying staff

Policy Name: Volunteer management

Policy Name: Bullying and harassment policy and procedures