LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 28 May 2014
Removed: Not supplied
Financial period: 1 June 2024 – 31 May 2025
Latest income: £2,265
Latest expenditure: £15,724
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Community Base, 133 Queens Road, Brighton, East Sussex, BN1 3XG

Website recorded by the regulator: http://www.LHONSociety.org/ (displayed as text)

02 Activities

What the charity does

We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 June 2024
Fin Period End Date: 31 May 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 March 2026
Date Annual Return Received: 30 March 2026
Date Accounts Received: 30 March 2026
Total Gross Income: £2,265
Total Gross Expenditure: £15,724

Fin Period Start Date: 1 June 2023
Fin Period End Date: 31 May 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 March 2025
Date Annual Return Received: 25 March 2025
Date Accounts Received: 25 March 2025
Total Gross Income: £11,062
Total Gross Expenditure: £2,916

Fin Period Start Date: 1 June 2022
Fin Period End Date: 31 May 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 March 2024
Date Annual Return Received: 29 March 2024
Date Accounts Received: 29 March 2024
Total Gross Income: £4,247
Total Gross Expenditure: £13,827

Fin Period Start Date: 1 June 2021
Fin Period End Date: 31 May 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 March 2023
Date Annual Return Received: 28 March 2023
Date Accounts Received: 28 March 2023
Total Gross Income: £21,448
Total Gross Expenditure: £152

Fin Period Start Date: 1 June 2020
Fin Period End Date: 31 May 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 March 2022
Date Annual Return Received: 19 March 2022
Date Accounts Received: 19 March 2022
Total Gross Income: £1,108
Total Gross Expenditure: £123

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 June 2024
Fin Period End Date: 31 May 2025
Ar Due Date: 31 March 2026
Ar Received Date: 30 March 2026
Total Gross Income: £2,265
Total Gross Expenditure: £15,724
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 6

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 June 2023
Fin Period End Date: 31 May 2024
Ar Due Date: 31 March 2025
Ar Received Date: 25 March 2025
Total Gross Income: £11,062
Total Gross Expenditure: £2,916
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 1

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 June 2022
Fin Period End Date: 31 May 2023
Ar Due Date: 31 March 2024
Ar Received Date: 29 March 2024
Total Gross Income: £4,247
Total Gross Expenditure: £13,827
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 June 2021
Fin Period End Date: 31 May 2022
Ar Due Date: 31 March 2023
Ar Received Date: 28 March 2023
Total Gross Income: £21,448
Total Gross Expenditure: £152
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 June 2020
Fin Period End Date: 31 May 2021
Ar Due Date: 31 March 2022
Ar Received Date: 19 March 2022
Total Gross Income: £1,108
Total Gross Expenditure: £123
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 4

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Isle Of Man
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name: LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2014-05-28T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - ASSOCIATION REGISTERED 28 MAY 2014AMENDED ON 07 JAN 2017
Charitable Objects: 1. TO RELIEVE THE CHARITABLE NEEDS OF PEOPLE AFFECTED BY LEBER’S HEREDITARY OPTIC NEUROPATHY (“LHON)”, THEIR FAMILIES AND CARES BY THE PROVISION OF SUPPORT, ADVOCACY, ADVICE AND INFORMATION. 2. TO CARRY OUT, OR TO PROVIDE FUNDS TO SUPPORT RESEARCH IN ALL ASPECTS OF LHON, ITS CAUSES, TREATMENT AND CURE AND PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH.

09 Official extract

Charity Other Names

Charity Name Id: 546430
Charity Name Type: Working name
Charity Name: LHON SOCIETY

10 Official extract

Charity Policy

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures