ALSTROM SYNDROME EUROPE — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: Charitable company
Registered: 5 February 2015
Removed: Not supplied
Company number supplied: 09113143
Financial period: 6 April 2024 – 5 April 2025
Latest income: £0
Latest expenditure: £0
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: No

Public contact address: 4 St. Kitts Close, TORQUAY, TQ2 7GD

Website recorded by the regulator: www.alstrom.org.uk (displayed as text)

02 Activities

What the charity does

Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 6 April 2024
Fin Period End Date: 5 April 2025
Ar Cycle Reference: AR25
Reporting Due Date: 5 February 2026
Date Annual Return Received: 3 February 2026
Total Gross Income: £0
Total Gross Expenditure: £0

Fin Period Start Date: 6 April 2023
Fin Period End Date: 5 April 2024
Ar Cycle Reference: AR24
Reporting Due Date: 5 February 2025
Date Annual Return Received: 5 February 2025
Total Gross Income: £0
Total Gross Expenditure: £732

Fin Period Start Date: 6 April 2022
Fin Period End Date: 5 April 2023
Ar Cycle Reference: AR23
Reporting Due Date: 5 February 2024
Date Annual Return Received: 14 May 2024
Total Gross Income: £0
Total Gross Expenditure: £732

Fin Period Start Date: 6 April 2021
Fin Period End Date: 5 April 2022
Ar Cycle Reference: AR22
Reporting Due Date: 5 February 2023
Date Annual Return Received: 26 January 2023
Total Gross Income: £0
Total Gross Expenditure: £63

Fin Period Start Date: 6 April 2020
Fin Period End Date: 5 April 2021
Ar Cycle Reference: AR21
Reporting Due Date: 5 February 2022
Date Annual Return Received: 27 January 2022
Total Gross Income: £0
Total Gross Expenditure: £645

04 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Denmark
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Spain
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Cyprus
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Belgium
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Germany
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Switzerland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Portugal
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Hungary
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Sweden
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Austria
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Italy
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Greece
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Finland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: France
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Netherlands
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Norway
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

05 Official extract

Charity Classification

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 204
Classification Type: Who
Classification Description: People Of A Particular Ethnic Or Racial Origin

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 116
Classification Type: What
Classification Description: Recreation

Classification Code: 309
Classification Type: How
Classification Description: Acts As An Umbrella Or Resource Body

Classification Code: 104
Classification Type: What
Classification Description: Disability

06 Official extract

Charity Event History

Charity Name: ALSTROM SYNDROME EUROPE
Charity Event Order: 1
Event Type: Standard registration
Date Of Event: 2015-02-05T00:00:00

07 Official extract

Charity Governing Document

Governing Document Description: MEMORANDUM AND ARTICLES INCORPORATED 02 JUL 2014AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 29/12/2014
Charitable Objects: TO RELIEVE SICKNESS AND TO PROMOTE AND PROTECT THE HEALTH OF PEOPLE AFFECTED BY ALSTRÖM SYNDROME FOR THE PUBLIC BENEFIT BY ADVANCING EDUCATION, RAISING AWARENES AND PROMOTING RESEARCH INTO ALSTRÖM SYNDROME.
Area Of Benefit: NOT DEFINED

08 Official extract

Charity Other Names

Charity Name Id: 549884
Charity Name Type: Working name
Charity Name: AS EU