CCEW Charity Commission profile

POTS UK

Registered charity 1159813 · organisation 5053393

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
6 January 2015
Removed
Not supplied
Financial period
6 April 2024 – 5 April 2025
Latest income
£67,460
Latest expenditure
£72,428
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: Oakfield Cottage, Stratford Road, Wootton Wawen, Henley-in-Arden, B95 6DF

Website recorded by the regulator: www.potsuk.org (displayed as text)

02 Activities

What the charity does

Providing evidenced based information in the form of a website and information leaflets suitable for patient and medical professionals.Run educational and support meetings Encourage journal publications Support researchProduce a newsletter for membersSupport Fundraising activitiesLobby for improved services for patientsSupport clinicians in service development

03 Official extract

Charity Annual Return History

Fin Period Start Date
6 April 2024
Fin Period End Date
5 April 2025
Ar Cycle Reference
AR25
Reporting Due Date
5 February 2026
Date Annual Return Received
22 October 2025
Date Accounts Received
22 October 2025
Total Gross Income
£67,460
Total Gross Expenditure
£72,428
Fin Period Start Date
6 April 2023
Fin Period End Date
5 April 2024
Ar Cycle Reference
AR24
Reporting Due Date
5 February 2025
Date Annual Return Received
20 December 2024
Date Accounts Received
20 December 2024
Total Gross Income
£77,164
Total Gross Expenditure
£47,864
Fin Period Start Date
6 April 2022
Fin Period End Date
5 April 2023
Ar Cycle Reference
AR23
Reporting Due Date
5 February 2024
Date Annual Return Received
10 February 2024
Date Accounts Received
10 February 2024
Total Gross Income
£71,360
Total Gross Expenditure
£57,036
Fin Period Start Date
6 April 2021
Fin Period End Date
5 April 2022
Ar Cycle Reference
AR22
Reporting Due Date
5 February 2023
Date Annual Return Received
31 January 2023
Date Accounts Received
31 January 2023
Total Gross Income
£70,837
Total Gross Expenditure
£93,578
Fin Period Start Date
6 April 2020
Fin Period End Date
5 April 2021
Ar Cycle Reference
AR21
Reporting Due Date
5 February 2022
Date Annual Return Received
3 January 2022
Date Accounts Received
3 January 2022
Total Gross Income
£46,782
Total Gross Expenditure
£34,945

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
6 April 2024
Fin Period End Date
5 April 2025
Ar Due Date
5 February 2026
Ar Received Date
22 October 2025
Total Gross Income
£67,460
Total Gross Expenditure
£72,428
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
45
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
6 April 2023
Fin Period End Date
5 April 2024
Ar Due Date
5 February 2025
Ar Received Date
20 December 2024
Total Gross Income
£77,164
Total Gross Expenditure
£47,864
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
40
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
6 April 2022
Fin Period End Date
5 April 2023
Ar Due Date
5 February 2024
Ar Received Date
10 February 2024
Total Gross Income
£71,360
Total Gross Expenditure
£57,036
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
30
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
6 April 2021
Fin Period End Date
5 April 2022
Ar Due Date
5 February 2023
Ar Received Date
31 January 2023
Total Gross Income
£70,837
Total Gross Expenditure
£93,578
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
25
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
6 April 2020
Fin Period End Date
5 April 2021
Ar Due Date
5 February 2022
Ar Received Date
3 January 2022
Total Gross Income
£46,782
Total Gross Expenditure
£34,945
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
6

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information

07 Official extract

Charity Event History

Charity Name
POTS UK
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2015-01-06T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - Foundation Registered 06 Jan 2015 as amended on 24 May 2021
Charitable Objects
THE OBJECTS OF THE CIO ARE:1) FOR THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH OF THOSE SUFFERING FROM POSTURAL TACHYCARDIA SYNDROME (POTS);2) TO ADVANCE THE EDUCATION OF THE PUBLIC IN ALL ASPECTS OF THE SYNDROME, IN PARTICULAR THOSE INVOLVED IN THE DIAGNOSIS, TREATMENT AND CARE OF THOSE SUFFERING FROM POTS; AND3) TO CARRY OUT, OR TO PROVIDE FUNDS TO SUPPORT RESEARCH INTO POTS, ITS CAUSES, TREATMENT AND CURE AND PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH.

09 Official extract

Charity Other Names

Charity Name Id
551898
Charity Name Type
Working name
Charity Name
POSTURAL TACHYCARDIA SYNDROM UNITED KINGDOM

10 Official extract

Charity Policy

Policy Name
Financial reserves policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Complaints handling
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Volunteer management
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Complaints policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Conflicting interests