CCEW Charity Commission profile

KD-UK, KENNEDY'S DISEASE UK

Registered charity 1160793 · organisation 5058208

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
9 March 2015
Removed
Not supplied
Financial period
1 March 2025 – 28 February 2026
Latest income
£39,799
Latest expenditure
£19,237
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: Suite RA01, 195- 197 Wood Street, LONDON, E17 3NU

Website recorded by the regulator: www.kd-uk.com (displayed as text)

02 Activities

What the charity does

1. To help find a cure for Kennedys Disease by providing grants to research organisations studying the disease.2. To raise awareness where ever possible of the disease, its symptoms and the struggles of its sufferers within the wider context of rare diseases.3. To help and signpost routes for sufferers to obtain help and advice

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 March 2025
Fin Period End Date
28 February 2026
Ar Cycle Reference
AR26
Reporting Due Date
28 December 2026
Date Annual Return Received
11 September 2026
Date Accounts Received
11 September 2026
Total Gross Income
£39,799
Total Gross Expenditure
£19,237
Fin Period Start Date
1 March 2024
Fin Period End Date
28 February 2025
Ar Cycle Reference
AR25
Reporting Due Date
28 December 2025
Date Annual Return Received
4 June 2025
Date Accounts Received
4 June 2025
Total Gross Income
£20,056
Total Gross Expenditure
£114,096
Fin Period Start Date
1 March 2023
Fin Period End Date
29 February 2024
Ar Cycle Reference
AR24
Reporting Due Date
29 December 2024
Date Annual Return Received
20 August 2024
Date Accounts Received
20 August 2024
Total Gross Income
£58,094
Total Gross Expenditure
£27,473
Fin Period Start Date
1 March 2022
Fin Period End Date
28 February 2023
Ar Cycle Reference
AR23
Reporting Due Date
28 December 2023
Date Annual Return Received
1 December 2023
Date Accounts Received
1 December 2023
Total Gross Income
£55,800
Total Gross Expenditure
£29,867
Fin Period Start Date
1 March 2021
Fin Period End Date
28 February 2022
Ar Cycle Reference
AR22
Reporting Due Date
28 December 2022
Date Annual Return Received
9 December 2022
Date Accounts Received
9 December 2022
Total Gross Income
£70,379
Total Gross Expenditure
£35,875

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR26
Fin Period Start Date
1 March 2025
Fin Period End Date
28 February 2026
Ar Due Date
28 December 2026
Ar Received Date
11 September 2026
Total Gross Income
£39,799
Total Gross Expenditure
£19,237
Grant Making Is Main Activity
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
10
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR25
Fin Period Start Date
1 March 2024
Fin Period End Date
28 February 2025
Ar Due Date
28 December 2025
Ar Received Date
4 June 2025
Total Gross Income
£20,056
Total Gross Expenditure
£114,096
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
5
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR24
Fin Period Start Date
1 March 2023
Fin Period End Date
29 February 2024
Ar Due Date
29 December 2024
Ar Received Date
20 August 2024
Total Gross Income
£58,094
Total Gross Expenditure
£27,473
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
3
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR23
Fin Period Start Date
1 March 2022
Fin Period End Date
28 February 2023
Ar Due Date
28 December 2023
Ar Received Date
1 December 2023
Total Gross Income
£55,800
Total Gross Expenditure
£29,867
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
4
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR22
Fin Period Start Date
1 March 2021
Fin Period End Date
28 February 2022
Ar Due Date
28 December 2022
Ar Received Date
9 December 2022
Total Gross Income
£70,379
Total Gross Expenditure
£35,875
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name
KD-UK, KENNEDY'S DISEASE UK
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2015-03-09T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - Foundation Registered 09 Mar 2015
Charitable Objects
1. TO RELIEVE AND PROMOTE THE RELIEF OF THOSE SUFFERING FROM KENNEDYS DISEASE AND TO PROVIDE SUPPORT BOTH FOR SUCH PERSONS AND THEIR FAMILIES.2. TO ADVANCE PUBLIC EDUCATION (INCLUDING SCIENTIFIC EDUCATION) AND AWARENESS IN MATTERS RELATING TO KENNEDYS DISEASE UK - KD-UK

09 Official extract

Charity Policy

Policy Name
Financial reserves policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Serious incident reporting policy and procedures