CCEW Charity Commission profile

CYSTIC FIBROSIS CARE

Registered charity 1162445 · organisation 5062366

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
29 June 2015
Removed
Not supplied
Company number supplied
09518316
Financial period
1 December 2024 – 31 December 2025
Latest income
£269,012
Latest expenditure
£178,708
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: Westgarth, Snape, BEDALE, DL8 2TJ

Website recorded by the regulator: www.cysticfibrosiscare.org.uk (displayed as text)

02 Activities

What the charity does

We exist to improve the quality of life for those with Cystic Fibrosis through nationwide fundraising.We provide grants to enable:Emotional Support.Provide food and energy vouchers.Fund hospital travel costs.Provide vital medical and exercise equipment.Fund education and vocational fees for CF adults. Training fees for CF nurses. See us @cf_care and www.cysticfibrosiscare.org.uk

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 December 2024
Fin Period End Date
31 December 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 October 2026
Date Annual Return Received
3 August 2026
Date Accounts Received
3 August 2026
Total Gross Income
£269,012
Total Gross Expenditure
£178,708
Fin Period Start Date
1 December 2023
Fin Period End Date
30 November 2024
Ar Cycle Reference
AR24
Reporting Due Date
30 September 2025
Date Annual Return Received
1 September 2025
Date Accounts Received
1 September 2025
Total Gross Income
£230,043
Total Gross Expenditure
£202,635
Fin Period Start Date
1 December 2022
Fin Period End Date
30 November 2023
Ar Cycle Reference
AR23
Reporting Due Date
30 September 2024
Date Annual Return Received
31 May 2024
Date Accounts Received
31 May 2024
Total Gross Income
£177,420
Total Gross Expenditure
£144,226
Fin Period Start Date
1 December 2021
Fin Period End Date
30 November 2022
Ar Cycle Reference
AR22
Reporting Due Date
30 September 2023
Date Annual Return Received
31 May 2023
Date Accounts Received
31 May 2023
Total Gross Income
£121,436
Total Gross Expenditure
£78,227
Fin Period Start Date
1 December 2020
Fin Period End Date
30 November 2021
Ar Cycle Reference
AR21
Reporting Due Date
30 September 2022
Date Annual Return Received
31 May 2022
Date Accounts Received
31 May 2022
Total Gross Income
£164,923
Total Gross Expenditure
£50,436

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 December 2024
Fin Period End Date
31 December 2025
Ar Due Date
31 October 2026
Ar Received Date
3 August 2026
Total Gross Income
£269,012
Total Gross Expenditure
£178,708
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
10
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 December 2023
Fin Period End Date
30 November 2024
Ar Due Date
30 September 2025
Ar Received Date
1 September 2025
Total Gross Income
£230,043
Total Gross Expenditure
£202,635
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
10
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 December 2022
Fin Period End Date
30 November 2023
Ar Due Date
30 September 2024
Ar Received Date
31 May 2024
Total Gross Income
£177,420
Total Gross Expenditure
£144,226
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
6
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 December 2021
Fin Period End Date
30 November 2022
Ar Due Date
30 September 2023
Ar Received Date
31 May 2023
Total Gross Income
£121,436
Total Gross Expenditure
£78,227
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
Yes
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
6
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 December 2020
Fin Period End Date
30 November 2021
Ar Due Date
30 September 2022
Ar Received Date
31 May 2022
Total Gross Income
£164,923
Total Gross Expenditure
£50,436
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
Yes
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
6

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
205
Classification Type
Who
Classification Description
Other Charities Or Voluntary Bodies
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
117
Classification Type
What
Classification Description
Other Charitable Purposes
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
101
Classification Type
What
Classification Description
General Charitable Purposes
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
310
Classification Type
How
Classification Description
Other Charitable Activities
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
105
Classification Type
What
Classification Description
The Prevention Or Relief Of Poverty

07 Official extract

Charity Event History

Charity Name
CYSTIC FIBROSIS CARE
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2015-06-29T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - Foundation Registered 29 Jun 2015
Charitable Objects
FOR THE PUBLIC BENEFIT THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH OF SUFFERERS OF CYSTIC FIBROSIS AND THEIR FAMILIES BY PROVIDING:- FACE-TO-FACE, CONFIDENTIAL SERVICES THAT INCLUDE:- EMOTIONAL SUPPORT AND COUNSELLING AT TIMES OF ACUTE STRESS OR DISTRESS;- PRACTICAL HELP THAT INCLUDES ASSISTANCE WITH OFFICIAL FORMS AND HELP TO NEGOTIATE SOMETIMES COMPLEX PROCESSES AND OFFICIAL SYSTEMS;- ADVOCACY AND REPRESENTATION IN RELATION TO HOUSING, EDUCATION, EMPLOYMENT AND AT DISABILITY APPEALS TRIBUNALS;- FINANCIAL ASSISTANCE FOR ESSENTIAL ITEMS THAT ENABLE OPTIMUM HOME SUPPORT OR RESPITE BREAKS;- TRANSPORT TO HOSPITAL APPOINTMENTS;- BEFRIENDING AND MENTORING FOR YOUNG PEOPLE WITH CYSTIC FIBROSIS;- AND MASSAGE THERAPY IN HOSPITAL FOR ADULTS WITH CYSTIC FIBROSIS.

09 Official extract

Charity Policy

Policy Name
Complaints policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Conflicting interests
Policy Name
Internal risk management policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Volunteer management
Policy Name
Paying staff
Policy Name
Bullying and harassment policy and procedures
Policy Name
Investment
Policy Name
Serious incident reporting policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Complaints handling
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Investing charity funds policy and procedures
Policy Name
Risk management
Policy Name
Financial reserves policy and procedures