RING20 RESEARCH AND SUPPORT UK CIO — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 19 February 2016
Removed: Not supplied
Financial period: 1 April 2024 – 31 March 2025
Latest income: £37,103
Latest expenditure: £35,758
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: LYTCHETT HOUSE, UNIT 13 FREELAND PARK, WAREHAM ROAD, POOLE, DORSET, BH16 6FA

Website recorded by the regulator: http://www.ring20researchsupport.co.uk/ (displayed as text)

02 Activities

What the charity does

We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 January 2026
Date Annual Return Received: 4 December 2025
Date Accounts Received: 4 December 2025
Total Gross Income: £37,103
Total Gross Expenditure: £35,758

Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 January 2025
Date Annual Return Received: 28 October 2024
Date Accounts Received: 28 October 2024
Total Gross Income: £50,152
Total Gross Expenditure: £23,341

Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 January 2024
Date Annual Return Received: 18 December 2023
Date Accounts Received: 18 December 2023
Total Gross Income: £40,340
Total Gross Expenditure: £45,324

Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 January 2023
Date Annual Return Received: 9 November 2022
Date Accounts Received: 9 November 2022
Total Gross Income: £40,476
Total Gross Expenditure: £32,453

Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 January 2022
Date Annual Return Received: 8 December 2021
Date Accounts Received: 8 December 2021
Total Gross Income: £43,839
Total Gross Expenditure: £12,779

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 4 December 2025
Total Gross Income: £37,103
Total Gross Expenditure: £35,758
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 28 October 2024
Total Gross Income: £50,152
Total Gross Expenditure: £23,341
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Due Date: 31 January 2024
Ar Received Date: 18 December 2023
Total Gross Income: £40,340
Total Gross Expenditure: £45,324
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Due Date: 31 January 2023
Ar Received Date: 9 November 2022
Total Gross Income: £40,476
Total Gross Expenditure: £32,453
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 7

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 April 2020
Fin Period End Date: 31 March 2021
Ar Due Date: 31 January 2022
Ar Received Date: 8 December 2021
Total Gross Income: £43,839
Total Gross Expenditure: £12,779
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 14

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 104
Classification Type: What
Classification Description: Disability

07 Official extract

Charity Event History

Charity Name: RING20 RESEARCH AND SUPPORT UK CIO
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2016-02-19T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - Association Registered 19 Feb 2016
Charitable Objects: “THE OBJECTS OF THE CIO ARE: THE PRESERVATION AND PROTECTION OF HEALTH AND THE RELIEF OF NEED IN PARTICULAR BY:A) PROVIDING ADVICE, SUPPORT AND INFORMATION TO RING CHROMOSOME 20 SYNDROME (R)20 PATIENTS AND THEIR FAMILIES;B) PROVIDING OR ASSISTING IN THE PROVISION OF INFORMATION TO THE PUBLIC ABOUT THE CONDITION (R)20;C) SUPPORTING MEDICAL PROFESSIONALS IN THEIR UNDERSTANDING OF RING CHROMOSOME 20 SYNDROME, (R)20 ITS DIAGNOSIS, PROGNOSIS AND TREATMENT;D) SUPPORTING RESEARCH INTO THE CONDITION, (R)20, ITS CAUSES AND THE MEANS TO IMPROVE THE OUTCOMES FOR THOSE SUFFERING WITH THE CONDITION AND PROMOTING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH.

09 Official extract

Charity Policy

Policy Name: Risk management

Policy Name: Paying staff

Policy Name: Bullying and harassment policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Volunteer management

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Serious incident reporting policy and procedures