CCEW Charity Commission profile

CHILDHOOD TUMOUR TRUST

Registered charity 1165777 · organisation 5067490

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
26 February 2016
Removed
Not supplied
Financial period
1 April 2024 – 31 March 2025
Latest income
£186,241
Latest expenditure
£171,320
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: 7 The Close, Fairlight, HASTINGS, East Sussex, TN35 4AQ

Website recorded by the regulator: WWW.CHILDHOODTUMOURTRUST.ORG.UK (displayed as text)

02 Activities

What the charity does

We support children and young people up to the age of 35 and their families affected by Neurofibromatosis Type 1 (NF1). We organise residential camps for children and days out for families. We are passionate about mental health and wellbeing. We work closely with health visitors to raise awareness and early diagnosis of NF1.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
29 January 2026
Date Accounts Received
29 January 2026
Total Gross Income
£186,241
Total Gross Expenditure
£171,320
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
30 January 2025
Date Accounts Received
30 January 2025
Total Gross Income
£198,961
Total Gross Expenditure
£167,012
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
18 April 2024
Date Accounts Received
18 April 2024
Total Gross Income
£108,694
Total Gross Expenditure
£184,607
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
22 January 2023
Date Accounts Received
22 January 2023
Total Gross Income
£149,667
Total Gross Expenditure
£95,934
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
26 January 2022
Date Accounts Received
28 January 2022
Total Gross Income
£70,455
Total Gross Expenditure
£54,414

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
29 January 2026
Total Gross Income
£186,241
Total Gross Expenditure
£171,320
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
Yes
Employees Salary Over 60k
No
Count Volunteers
20
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
30 January 2025
Total Gross Income
£198,961
Total Gross Expenditure
£167,012
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
20
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
18 April 2024
Total Gross Income
£108,694
Total Gross Expenditure
£184,607
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
Yes
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
20
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
22 January 2023
Total Gross Income
£149,667
Total Gross Expenditure
£95,934
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
15
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
26 January 2022
Total Gross Income
£70,455
Total Gross Expenditure
£54,414
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
10

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
310
Classification Type
How
Classification Description
Other Charitable Activities
Classification Code
117
Classification Type
What
Classification Description
Other Charitable Purposes
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
201
Classification Type
Who
Classification Description
Children/young People

07 Official extract

Charity Event History

Charity Name
CHILDHOOD TUMOUR TRUST
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2016-02-26T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - Foundation Registered 26 Feb 2016 as amended on 09 Dec 2024
Charitable Objects
THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF YOUNG PEOPLE UP TO THE AGE OF 24 WITH NEUROFIBROMATOSIS (NF1) AND THEIR FAMILIES IN PARTICULAR BUT NOT EXCLUSIVELY BY:- FUNDING AND ORGANISING SOCIAL EVENTS AND ACTIVITIES FOR THEIR BENEFIT/THAT RELIEVE THEIR NEEDS AND BY PROVIDING OPPORTUNITIES TO MEET UP WITH OTHERS WITH NF1;- RAISING MONEY FOR, HELP FUND AND ORGANISE HOLIDAY CAMPS FOR YOUNG PEOPLE WITH NF1;- SIGNPOSTING AND LINKING PEOPLE TO THE BEST INFORMATION/RESOURCES AVAILABLE FOR NF1;- RAISING AWARENESS OF NF1 THROUGH CAMPAIGNING, WORKING ALONGSIDE OTHER ORGANISATIONS, THE NHS AND RESEARCHERS TO IMPROVE BOTH DIAGNOSIS AND BETTER CARE OF FOR PEOPLE WITH NF1;- FUNDING PEER-REVIEWED RESEARCH INTO NF1 WHERE THE USEFUL RESULTS OF WHICH ARE MADE AVAILABLE FOR THE PUBLIC BENEFIT.

09 Official extract

Charity Other Names

Charity Name Id
569290
Charity Name Type
Working name
Charity Name
CTT

10 Official extract

Charity Policy

Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Complaints handling
Policy Name
Social media policy and procedures
Policy Name
Volunteer management
Policy Name
Risk management
Policy Name
Bullying and harassment policy and procedures
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Complaints policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Internal risk management policy and procedures