BritDB

CCEW Charity Commission profile

CARDIOMYOPATHY UK

Registered charity 1164263 · organisation 5068435

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
5 November 2015
Removed
Not supplied
Financial period
1 January 2024 – 31 December 2024
Latest income
£1,054,678
Latest expenditure
£1,149,954
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: 75A Woodside Road, AMERSHAM, Buckinghamshire, HP6 6AA

Website recorded by the regulator: www.cardiomyopathy.org (displayed as text)

02 Activities

What the charity does

Cardiomyopathy UK saves lives and reduces the misery caused by the heart muscle disease cardiomyopathy. We want people affected by the disorder to live long and fulfilling lives and work to achieve this by raising awareness of the condition, improving access to quality treatment, promoting clinical research and supporting anyone affected by cardiomyopathy every step of the way.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
1 July 2025
Date Accounts Received
1 July 2025
Total Gross Income
£1,054,678
Total Gross Expenditure
£1,149,954
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
15 July 2024
Date Accounts Received
15 July 2024
Total Gross Income
£1,053,351
Total Gross Expenditure
£921,272
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
10 October 2023
Date Accounts Received
10 October 2023
Total Gross Income
£1,031,133
Total Gross Expenditure
£892,213
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 October 2022
Date Annual Return Received
31 August 2022
Date Accounts Received
31 August 2022
Total Gross Income
£945,478
Total Gross Expenditure
£901,250
Fin Period Start Date
1 January 2020
Fin Period End Date
31 December 2020
Ar Cycle Reference
AR20
Reporting Due Date
31 October 2021
Date Annual Return Received
4 August 2021
Date Accounts Received
4 August 2021
Total Gross Income
£771,829
Total Gross Expenditure
£793,361

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
1 July 2025
Total Gross Income
£1,054,678
Total Gross Expenditure
£1,149,954
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 80001 90000
1
Count Volunteers
100
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
15 July 2024
Total Gross Income
£1,053,351
Total Gross Expenditure
£921,272
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Volunteers
50
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR22
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
10 October 2023
Total Gross Income
£1,031,133
Total Gross Expenditure
£892,213
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Volunteers
50
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR21
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Due Date
31 October 2022
Ar Received Date
31 August 2022
Total Gross Income
£945,478
Total Gross Expenditure
£901,250
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
150
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR20
Fin Period Start Date
1 January 2020
Fin Period End Date
31 December 2020
Ar Due Date
31 October 2021
Ar Received Date
4 August 2021
Total Gross Income
£771,829
Total Gross Expenditure
£793,361
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Volunteers
150

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
1 July 2025
Income Donations And Legacies
968969
Income Other Trading Activities
32433
Income Charitable Activities
42700
Income Investments
10576
Income Other
0
Income Total Income And Endowments
1054678
Income Legacies
120224
Income Endowments
0
Expenditure Raising Funds
£326,868
Expenditure Charitable Expenditure
£714,577
Expenditure Other
108509
Expenditure Total
1149954
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
0
Expenditure Support Costs
108509
Expenditure Depreciation
7793
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£564,589
Assets Total Fixed
16185
Assets Own Use
16185
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£823,118
Assets Total Liabilities
£96,618
Assets Current Investment
0
Assets Total Assets And Liabilities
£742,685
Creditors One Year Total Current
96618
Creditors Falling Due After One Year
0
Assets Cash
£604,354
Funds Endowment
0
Funds Unrestricted
564589
Funds Restricted
178096
Funds Total
742685
Count Employees
20
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
15 July 2024
Income Donations And Legacies
1014883
Income Other Trading Activities
0
Income Charitable Activities
32700
Income Investments
5768
Income Other
0
Income Total Income And Endowments
1053351
Income Legacies
195068
Income Endowments
0
Expenditure Raising Funds
£303,664
Expenditure Charitable Expenditure
£558,891
Expenditure Other
58717
Expenditure Total
921272
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
0
Expenditure Support Costs
58717
Expenditure Depreciation
3852
Gain Loss Investment
5767
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
-3852
Gain Loss Other
0
Reserves
£678,875
Assets Total Fixed
17320
Assets Own Use
17320
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£897,283
Assets Total Liabilities
£76,642
Assets Current Investment
0
Assets Total Assets And Liabilities
£837,961
Creditors One Year Total Current
76642
Creditors Falling Due After One Year
0
Assets Cash
£575,185
Funds Endowment
0
Funds Unrestricted
678875
Funds Restricted
159086
Funds Total
837961
Count Employees
19
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR22
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
10 October 2023
Income Donations And Legacies
895732
Income Other Trading Activities
0
Income Charitable Activities
135208
Income Investments
193
Income Other
0
Income Total Income And Endowments
1031133
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£289,164
Expenditure Charitable Expenditure
£540,890
Expenditure Other
62159
Expenditure Total
892213
Expenditure Investment Management
0
Expenditure Grants Institution
57628
Expenditure Governance
6000
Expenditure Support Costs
323310
Expenditure Depreciation
5525
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£516,974
Assets Total Fixed
4882
Assets Own Use
4882
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£758,949
Assets Total Liabilities
£57,949
Assets Current Investment
269433
Assets Total Assets And Liabilities
£705,882
Creditors One Year Total Current
57949
Creditors Falling Due After One Year
0
Assets Cash
£489,516
Funds Endowment
0
Funds Unrestricted
516974
Funds Restricted
188908
Funds Total
705882
Count Employees
18
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR21
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Due Date
31 October 2022
Ar Received Date
31 August 2022
Income Donations And Legacies
945478
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
0
Income Other
0
Income Total Income And Endowments
945478
Income Legacies
89500
Income Endowments
0
Expenditure Raising Funds
£276,593
Expenditure Charitable Expenditure
£547,978
Expenditure Other
76679
Expenditure Total
901250
Expenditure Investment Management
0
Expenditure Grants Institution
81882
Expenditure Governance
6500
Expenditure Support Costs
70179
Expenditure Depreciation
4603
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£393,910
Assets Total Fixed
8871
Assets Own Use
8871
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£630,096
Assets Total Liabilities
£72,005
Assets Current Investment
273665
Assets Total Assets And Liabilities
£566,962
Creditors One Year Total Current
72005
Creditors Falling Due After One Year
0
Assets Cash
£356,431
Funds Endowment
0
Funds Unrestricted
393910
Funds Restricted
173052
Funds Total
566962
Count Employees
18
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR20
Fin Period Start Date
1 January 2020
Fin Period End Date
31 December 2020
Ar Due Date
31 October 2021
Ar Received Date
4 August 2021
Income Donations And Legacies
770655
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
1174
Income Other
0
Income Total Income And Endowments
771829
Income Legacies
4000
Income Endowments
0
Expenditure Raising Funds
£271,179
Expenditure Charitable Expenditure
£457,255
Expenditure Other
64927
Expenditure Total
793361
Expenditure Investment Management
0
Expenditure Grants Institution
1646
Expenditure Governance
5050
Expenditure Support Costs
59877
Expenditure Depreciation
2751
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£331,200
Assets Total Fixed
8857
Assets Own Use
8857
Assets Long Term Investment
0
Defined Benefit Pension Scheme
0
Assets Other Assets
£606,599
Assets Total Liabilities
£92,722
Assets Current Investment
165914
Assets Total Assets And Liabilities
£522,734
Creditors One Year Total Current
92722
Creditors Falling Due After One Year
0
Assets Cash
£440,685
Funds Endowment
0
Funds Unrestricted
331200
Funds Restricted
191534
Funds Total
522734
Count Employees
18
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
306
Classification Type
How
Classification Description
Provides Services

08 Official extract

Charity Event History

Charity Name
CARDIOMYOPATHY UK
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2016-12-14T00:00:00
Assoc Organisation Number
803262
Assoc Registered Charity Number
803262
Assoc Charity Name
THE CARDIOMYOPATHY ASSOCIATION
Charity Name
CARDIOMYOPATHY UK
Charity Event Order
4
Event Type
Asset transfer in
Date Of Event
2022-08-25T00:00:00
Reason
Ceased to exist
Assoc Organisation Number
327529
Assoc Registered Charity Number
327529
Assoc Charity Name
THE MOSS FAMILY CHARITABLE TRUST
Charity Name
CARDIOMYOPATHY UK
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2015-11-05T00:00:00
Charity Name
CARDIOMYOPATHY UK
Charity Event Order
3
Event Type
Asset transfer in
Date Of Event
2019-04-18T00:00:00
Reason
Transfer of funds
Assoc Organisation Number
5042956
Assoc Registered Charity Number
1154847
Assoc Charity Name
ALEXANDER JANSONS FOUNDATION

09 Official extract

Charity Governing Document

Governing Document Description
CIO - Foundation Registered 05 Nov 2015
Charitable Objects
TO RELIEVE PEOPLE SUFFERING FROM THE CONDITION OF CARDIOMYOPATHY AND RELATED CONDITIONS IN PARTICULAR ( BUT WITHOUT PREJUDICE TO THE GENERALITY THEREOF) BY:A) DEVELOPING AND MAINTAINING A NETWORK OF SUPPORT FOR PEOPLE SUFFERING FROM THE CONDITION AND THEIR FAMILIESB) PROMOTING EDUCATION AMONG SUFFERERS OF THE CONDITION, THEIR FAMILIES AND THOSE HAVING THE PROFESSIONAL CARE OF SUFFERERS ABOUT THE SYMPTOMS AND THE TREATMENT OF THE CONDITION; ANDC) PROMOTING OR ASSISTING IN THE PROMOTION OF RESEARCH INTO THE CONDITION AND ITS TREATMENT AND THE PUBLICATION OF THE RESULTS OF THAT RESEARCH.

10 Official extract

Charity Policy

Policy Name
Campaigns and political activity policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Volunteer management
Policy Name
Complaints policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Complaints handling
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Risk management
Policy Name
Serious incident reporting policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Conflicting interests
Policy Name
Bullying and harassment policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Paying staff