LAM ACTION — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 10 June 2016
Removed: Not supplied
Financial period: 1 January 2025 – 31 December 2025
Latest income: £157,609
Latest expenditure: £115,683
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: FS Accountants Ltd, 2 York Street, CLITHEROE, Lancashire, BB7 2DL

Website recorded by the regulator: http://lamaction.org (displayed as text)

02 Activities

What the charity does

LAM Action?s main objectives are to: provide support and information for those with lymphangioleiomyomatosis (?LAM?) and their families; support research which furthers understanding of LAM; increase awareness amongst health professionals about LAM and promulgate good clinical practice for its management; and share research, clinical and patient support experience in the UK and overseas.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026
Date Annual Return Received: 14 October 2026
Date Accounts Received: 14 October 2026
Total Gross Income: £157,609
Total Gross Expenditure: £115,683

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 14 October 2025
Date Accounts Received: 14 October 2025
Total Gross Income: £89,392
Total Gross Expenditure: £57,816

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 30 October 2024
Date Accounts Received: 30 October 2024
Total Gross Income: £102,582
Total Gross Expenditure: £63,955

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 12 December 2023
Date Accounts Received: 12 December 2023
Total Gross Income: £65,464
Total Gross Expenditure: £69,970

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 31 October 2022
Date Accounts Received: 31 October 2022
Total Gross Income: £44,647
Total Gross Expenditure: £64,884

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 14 October 2026
Total Gross Income: £157,609
Total Gross Expenditure: £115,683
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 20

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 14 October 2025
Total Gross Income: £89,392
Total Gross Expenditure: £57,816
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 20

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 30 October 2024
Total Gross Income: £102,582
Total Gross Expenditure: £63,955
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 11

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 12 December 2023
Total Gross Income: £65,464
Total Gross Expenditure: £69,970
Charity Raises Funds From Public: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 11

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 31 October 2022
Total Gross Income: £44,647
Total Gross Expenditure: £64,884
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 11

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

07 Official extract

Charity Event History

Charity Name: LAM ACTION
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2017-04-20T00:00:00
Reason: Funds transferred (incor)
Assoc Organisation Number: 3994438
Assoc Registered Charity Number: 1096637
Assoc Charity Name: LAM ACTION

Charity Name: LAM ACTION
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2016-06-10T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - Association Registered 10 Jun 2016 as amended on 23 Jun 2021 as amended on 21 Jun 2023
Charitable Objects: 1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS ("LAM") AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.

09 Official extract

Charity Policy

Policy Name: Internal risk management policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Conflicting interests

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Trustee expenses policy and procedures